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Hi, i'm new here, & I have a question about alternative treatments.

Apr 05, 2018 2:38 PM

I have Ehlers-Danlos syndrome, chronic fatigue syndrome, postural orthostatic tachycardia syndrome, non epileptic attack disorder, depression & anxiety, and suspected gastroparesis, oh and last year I slipped a disk in my spine. I'm having a pain flare up for past few weeks, my painkillers aren't helping much and my GP isn't listening or helping at all, here's my question, has anyone with similar issues found alternative treatments such as massage, or acupuncture helpful? I'd really appreciate any suggestions/ advice. Thanks

Apr 05, 2018 3:09 PM

Hi Zebragirl95,

I don't have any of those diagnosises but I know someone who has some and she has felt relief with acupuncture. It's different for each person and it's a bit of a journey to find what works for you. But as my Nan would say nothing ventured nothing gained - everything is worth a try.

Take care Hayley 🌈

Apr 05, 2018 4:05 PM

Thank you and your right, nothing ventured, nothing gained. Thanks again. Take care

Apr 05, 2018 5:51 PM

I’m using a gel pack that you can heat up or freeze for my spine. I see you have NES ( nonepileptic seizures) so do I. Frustrating isn’t it? I’ve narrowed down the triggers to acute episodes of pain. Out of the blue sometimes they come on. Don’t like needles so acupuncture is out for me. Lol 😂 what about imagery or deep muscle relaxation? Can’t hurt. Might help with your gastroparesis to. Have you gotten checked for an Intestinal obstruction or is it just sluggish? Good luck with any new alternative treatments.

Apr 05, 2018 6:45 PM

Hi Painwarrior, thank you. I use heat & ice which helps a lot with pain from Ehlers-Danlos syndrome, I'll definitely look into imagery and deep muscle relaxation I've not tried that before. NES is very frustrating, after a few years of seizures I've identified some of my triggers including severe sudden pain and/ or stress. My neurologist aldo suspects that my seizures are sometimes caused by too much fluid surrounding my brain therefore putting pressure on my brain. I'm not even going to attempt the spelling of what she said that's called lol. Sometimes I get a brief "warning sensation" before a seizure but often, as you said it's out of the blue. As for the gastroparesis i have a gastrenterology appointment coming up soon so hopefully that'll bring some answers. Thank you again for your comment. Take care :)

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