Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Hi, I'm new in the neighborhood:)

Aug 08, 2016 12:55 AM

I'm so happy to have found this app:) my name is Carly and I have had a few diagnosis but still trying to figure out what's going on. I'm in lots of pain but on reading the different experiences everyone's having, I'm in awe at how brave y'all are and it encourages me a lot. Thank you to all who share.

Aug 08, 2016 2:24 AM

Hello sweetie, ๐ŸŒท
welcome to our community ๐Ÿค—
So nice to meet u. ๐ŸชThere are many friends๐Ÿ‘ฌ๐Ÿ‘ญ๐Ÿ‘ซ here to answer questions, or just be here to listen to u vent! We all understand...so u r safe here Carly.๐Ÿค” There are many threads to learn new tools to help u to deal with the pain ur ๐Ÿค—experiencing... the pain diary ๐Ÿ“ฒ is great to print out and take to show ur specialist. Best of all... ๐Ÿ˜‰u can laugh... or cry ๐Ÿ˜ญwith us & we are all in it together ๐Ÿ˜š

Aug 08, 2016 11:33 AM

Hi Dilapidated,
You've come to the right place girl. I had checked out several other forums/apps before coming across this one with much frustration. People here are so caring. We understand pain without the drama so many other places have. We pray for each other when needed, listen and share wisdom, strength and (virtual) hugs!! ๐Ÿ™๐Ÿ™Œ๐Ÿ™†๐Ÿ™‡๐Ÿ’

Aug 08, 2016 2:53 PM

Hi Carly, welcome aboard, as you can see we are always happy to greet newbies but it's sad that you're suffering. We all know what it's like and this is sure the best place you can be. There's so much information, caring and laughter that we can get through anything when we do it together. We're here to listen if you need to vent, we're here to celebrate victories, hold your hand when you're having a bad day. I've been in pain 24/7/365 for over 25 years and don't remember what it's like NOT to feel pain. It is what it is and I get down and my peeps help pull me up. This is definitely the place to be. I wish you the best and look forward to getting to know you.{{{Hugs}}}๐Ÿ’•๐Ÿ™๐Ÿป๐ŸŒป๐Ÿ˜Š

Aug 12, 2016 1:07 PM

Welcome to our community family Dilapidated4now! You will find that although we are quite a diverse group, were all share chronic pain. Our ages range from teens to 60-70's. Some have a few diagnoses (dx) while others have many dx. We vent, cry, laugh, pray, send virtual hugs and energy, etc; whatever is needed. And you're never alone because usually someone else is always online. And if you ever have a question just ask because that's how we learn. I know so much more now than when I joined, and everyone is so helpful. Occasionally someone goes off the radar, but it's usually not for long. I'm recuperating from surgery on Monday, so I'm just now coming back on to try and read the posts. Tell us a little about yourself if you feel comfortable doing so. You may be very surprised to find how many of us share symptoms and dx with each other. I'm 54, married 34+ years, 2 children, 4 grandchildren, 1 furbaby, and a long list of medical problems (AlwayZ is my secret twin...lol ๐Ÿ˜‰). Hugs love & prayers you find the support you need here! ๐Ÿ™‚๐Ÿ’•๐Ÿ™๐ŸŒธ

Aug 12, 2016 2:42 PM

Hi glad you found us. Welcome to our group!

Aug 12, 2016 9:32 PM

Welcome to the group.i look forward to hearing more from you.

Aug 21, 2016 3:55 PM

All of you are Amazing and Awesome!
Thank you so very much for all the kind post's I can't thank y'all enough๐Ÿ˜‚๐Ÿ˜˜๐Ÿ˜ for the encouragement, I can't put into words how much it's meant to me reading the posts๐Ÿ’Œ
Thank you all so very much for the warm welcomeโค

Aug 21, 2016 4:19 PM

I forgot to mention.... I'm a 32 year old woman with 3 step kids and a husband of 6 years. My husband and I are also foster parents but I've had to put that on hold due to physical limitations, I feel that's been the hardest part as I truly love fostering children.โค
I was diagnosed with rumatoid arthritis at age 9. I was given Metrotexate (I'm sure I'm spelling it wrong, sorry) and Prednisone for six years, also tried all sorts of alternative methods.
Around age 15 I stopped meds and had much less pain, occasional but not constant.
Even at the time I felt I had been misdiagnosed but....I'm no Dr๐Ÿ˜‰ at age 23 I came back to the US after having lived 16 years in Central America.
All I could find due to my lack of education (only made it to the 5th grade) were pretty labor intensive jobs.
Around age 25-26 I started having physical pain that has gotten worse over the years. I'm taking Enbrol, Diclofenac, Tramadol and when it's real bad like lately, Norco or Percocet.
Latest diagnosis Ankyolosing Spondilitis but the Dr feels it's something else, as I'm having a lot of muscle problems.
Anywho....I'm so sorry for writing such a looooooong post and will try to keep them shorter in future๐Ÿ˜€
Warmly and sincerely,
Carly

Aug 21, 2016 6:15 PM

Don't apologize for long posts. We all do it, at least me! Lol It helps us to get to know each other, and how each of us might help another with suggestions. I hope you can get the answers soon. If you feel a doctor isn't listening or is just brushing you of, don't hesitate to be seen elsewhere. It's taken many of us years to get correct dx(diagnoses). And I learned from others that once you get one Autoimmune (AI) illness you are prone to get others. I was dx with fibro 2012, Sjogrens & hypothyroidism in 2015, and the jury is still out on Raynaud's (never acted up in front of docs). Lol go figure! Hope you have a blessed evening with your family! ๐Ÿ™‚๐Ÿ’•๐Ÿ™๐ŸŒธ

Aug 22, 2016 1:36 AM

Thank you lady81
I did not know that if a person is diagnosed with one autoimmune disease they are prone to get another.
Thank you for the encouragement and I am going to have to look up Raynod's (which I like doing as that's a good way for me to learn๐Ÿ‘)
I do know what you mean about an ailment not showing itself to the Doctor, as this has happened to me as well and it's very frustrating๐Ÿ˜•
Thanks again and blessings to you and your loved ones๐Ÿ’•

Aug 22, 2016 1:58 AM

Hi Lady81
I looked up Raynoud's (I know I'm spelling it wrong, sorry) it sounds very uncomfortable and I read that it's aggravated by stress, which personally is always hard for me to control, I don't know if it's the same for you but more pain=more stress and more stress=more pain.
I'm sorry you are going through this and I really appreciate your compassion and encouragement you give. โค๐Ÿ’• hugs and hang in there.

Aug 22, 2016 1:39 PM

I'm glad to be of help. I knew very little about any of my new dx when I joined the community, especially AI issues. I'm sharing what others have shared with me. That's what we're do here; help each other by sharing info and giving support. And we gain friends in the process. You're so right about stress = more pain, and more pain = more stress. Thank you for your kindness. I've had the roughest 6+ years of my life, since surgery in 2010. Without God & the community family I would have fallen to pieces by now. I just keep hoping at some point things will level out and nothing else will be added. But alas, I know that's only in la-la land. I've got other spine issues and others on the back burner, to take care of the most prominent. But as I often tell others I have to remind myself, one day at a time, one step at a time. Hugs love & prayers for strength & endurance as you wait to be diagnosed! ๐Ÿ™‚๐Ÿ’•๐Ÿ™๐ŸŒธ

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