Hi, have been keeping a diary which helps, I have certain headings for each day, on advice of pain psychologist, been really helping to keep positive, well, most days. Accepting life long chronic pain is a grieving process I am still getting to manage. This looked like a helpful app.
I have Ehlers-Danlos syndrome (Hypermobility type) or simply EDS-HT, but basically it's faulty connecting tissues / collagen, given so much of our bodies are made of this, it's a multi systematic 'disorder' also brings with it for me and many others a heap of side affects like PoTS, other automonic function failures, diverticular disease, costochondritis and a whole heap of odd and weird sods such as not taking to local anaesthetics which is a life time of fun for our already shoddy teeth.
It can all make working full time in quite stressful job hard bloody work. Some days, ok most, well I mean all don't i? Are an absolute crush to the soul to get out of bed.
On the plus side, I have a lot of good help thanks to working for an insurance company, but other issues there that don't help too! I do all I can to keep myself moving as much as I can, I will never be strong, but I do all I can to try and get stronger and fight off the pain. it's hard to ask for a seat on the train when you look 'so well' you want to just pass out thanks to dodgy body functioning.
Anyhow Interested to hear other experiences and advice! Thanks for reading