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Hi to my fellow sufferers! Was anyone else told when they were young that it was just growing pains?

Apr 23, 2017 9:34 PM

I'm 32 and have had severe fybro my entire life! No one believed. Now I'm in bed 22 out of 24 hours a day and struggling with the will power to survive much longer! Am I the only one?

Apr 24, 2017 9:25 PM

Absolutely! I should be over 10 feet tall by now. Started to be noticeable to me at age 12. Although i am sure its been there for ages. Am so sorry you are dealog with this.

Apr 25, 2017 7:34 AM

Yes I remember being told that when I was a child. I know I was diagnosed with scoliosis in 9th grade but I don't remember if I was in pain or not until my later years.

Apr 25, 2017 7:39 AM

I have had this problem all my life. When I was a little girl I couldn't understand why everyone could behaving fun while playing soccer and all I could do was try to play the game without so much pain. I had many many years of this until I was diagnosed in my thirties. I'm now 60 and have had a full life of losing my parents when I was 12 and 20 then got married and had two ( beautiful boys ) then of corse had a divorce. Then I remarried and have had to spend the last 15 yrs (accepting) (lost my job) my limited life and letting my family know I'm not lazy and they have to (accept) that if they love me I can only do so much. I'm not wonder women and I need a little support on the days I can't do anything. They do tease me a lot but I try not to take it to heart (sometimes I cry) but I put my big girl patties on (lol they are big) and (accept) this is me now and I still am a loving, caring, smart, beautiful woman and I also (do not feel) sorry for myself. When I stopped beating myself up about this, things got so much easier for me. Less stress. I don't like it at all but I will manage it the best way I can. I find my crazy sence of humor is what keeps me going. I'm always looking for funny thing to read or see. 😜🙃

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