I wanted to thank Flappy (I think) for the info on the Voltaren gel. I asked my PCP for it, and she ordered it--no appt. I've been on diclofenac before, so not so big. She's been my primary care doc for 10 years.
I think ferritbandit talked about magnesium spray. Two bottles of Calm have been in my fridge for years, but I think it's disgusting. Both a neuro and my PCP suggested Mg. I ordered some Ancient Minerals off Amazon. Got a glass spray bottle. We shall see.
Just wanted to let you guys know that your kindnesses are appreciated :)!!
I get 4 procedures: Botox injections, trigger point injections, occipital nerve blocks, and cervical RFA. Read a paper on RFA. Apparently, when doing it with spinal nerves, there are 6 sites at which the RFA can be done. I assume that there are 6 because they produce 6 different results. The RFA helps me a lot, however, I know some people have had disasters. The diagnostic procedure is really important in finding what works best. And finding a good doc (of course!!). My first pain doc was an awful man, and years passed before I saw another. The one I have now is awesome. He's young (I think he's my age), and went into pain management to actually help people--he doesn't subscribe to the old rule that doctors are gods.There are so many condescending bleeping doctors out there. I have had so much crap thrown at me.
Right now, I'm at my brothers with my uncle. Point being, my uncle--whom I love and like very much--is a doctor, yet he's given me some terrible advice. So even someone who absolutely has your best interests at heart may not be helpful.
On May 20, I turn 40. I am thankful that I am alive. I am thankful that I finally have the correct diagnoses (everything, not just pain). I am thankful that I finally have competent doctors. I am thankful that, even with my limitations, my brain is actually working, and I can enjoy helping my nephew (age 8) put a fish tank together for the three goldfish he won at a fair today :). I am thankful that all of you are here, and that you all support one another.
If there's one thing that makes me sad, it's that I wanted to have kids. It wasn't my body--it was being on a slew of unneeded medications which meant that getting pregnant was a bad idea. It is what it is.
I have given up on keeping a pain chart. The pain chart is not actually useful for me. But being here helps. My personality really changes with pain--that's my problem.
I hope you all have a pain free second, a pain free moment, maybe a pain free day.
And regarding shoes--I find that because shoes effect the way I stand and walk, they really effect my pain levels. But it's been impossible to find shoes that are really helpful. I wear Dansko shoes--the ones nurses often wear in hospitals--but I'm still holding out that there is something better. So was wondering if anyone else finds this is true, and how you deal with it...