Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Hiya

Nov 04, 2016 5:31 PM

Didnt know we could talk to each other. Hiiiii. Im 30 and have eds hypermobility classic and vascular types. Gastroparesis. Pots and possible raynards and dysautonomia. I try hard but some days i dont cope at all with the pain

Nov 04, 2016 5:48 PM

Welcome,im glad you found us. Im excited to learn more about and I'm sure you'll find that everyone here is here to help love and support you. Please feel free to ask anything you may want to know.

Nov 04, 2016 5:52 PM

Hi Rhiannon, welcome to the family. oh that sounds like a whole mix of different conditions and of course there will be days where you can't cope with the pain, I mean after all you are only human.
Its only natural as with anything in life you'll have your good days and you'll have your bad days or even a mix of feelings from one minute to the next.

The support on here is amazing and as fellow pain sufferers we will understand more than what family and friends who don't have chronic pain will.

Sending positive vibes your way xx

Nov 04, 2016 6:23 PM

Rhiannon, you're the first person I've come in contact with who has Gastroparesis and Raynaud's as well. I have severe Gastroparesis to the point I may be placed on a tube very soon. No medications work and it's such a painful illness. I'M glad to have someone with something in common. Do you suffer with temperature regulation and severe circulation issues due to Raynaud's?

Nov 04, 2016 6:23 PM

I am 33, forgot to say that. :) I also have several other issues, you can see in my profile. WAY too much to list.

Nov 04, 2016 8:38 PM

Hi! I am new here too! I also have joint hyper mobility as well as RA. I totally feel the same way and have many days where I can't get to class (I'm 20 in college). Sending lots of positive thoughts and love your way

Nov 04, 2016 10:10 PM

Welcome to the family!!! I'm glad that you found us. There is such a wealth of information and support here that I am sure you'll be even happier as time goes by. Sit back, enjoy a giggle or three and use the search tool and look back on old threads. You'll see a lot of questions and information you may seek is discussed at length. Sending warm welcomes and well wishes your way. {{{Hugs}}}💕😊

Nov 04, 2016 10:35 PM

Yes samantha!!!! Yes!!!

Nov 04, 2016 10:36 PM

I have 2 options. Liquid or low fodmap. Im trying low fodmap. Spend most days uttering kill me

Nov 04, 2016 10:39 PM

Just got back from the drs and i have been taking double the pain relief so i cant take any more until i have a liver function test and bloods done...

Nov 04, 2016 10:43 PM

My liver and kidneys BLOW. I have chronic idiopathic Kidney stones as well EVERY month. I say "kill me" or, "I give up" once a day. Funny but, not. LOL

Nov 04, 2016 10:47 PM

I've unfortunately gotten to the point I can hardly eat anything. It's gotten really bad the past three months. I went from not using the bathroom but once every three weeks to now vomiting every day for three months... nothing stays in more than 4-6 hours. My teeth are destroyed. Sorry if that's too graphic. :/

Nov 05, 2016 4:38 AM

Just panadol oesteo and i was taking 3 every 4 hours. Aparently u can only have 6 in 224rs

Nov 05, 2016 4:40 AM

Im not that bad. I can only go every 3 days and if it is almost coming up to 4 days i start to get a fever . Apples and wheat are things that i had to say goodbye to because they made me has nasty nasty pain for up to a week straight

Nov 05, 2016 4:42 AM

When i have the fever im vomiting too. I have a hernia in between my breasts that i sometimes rupture when i vomit

Nov 05, 2016 8:39 AM

Hang in there Sweetie... I've been with people who have had kidney stones and I've seen firsthand what it did to them. I've never had them so I can't say I know how you feel. I hope there is something they can do to help you with that. Sending well wishes, gentle {{{Hugs}}} and good karma your way. 💕😊

Ready to start relieving your pain?

Join Community