Many of you know my story. With anyone who is new, I will do a recap. About 4 months ago, My arm started in extreme pain. I felt about 5 parts. Each was 2 inches wide in circumference on the inside under my skin. Some would be on my chest. When palpating it later and understanding what I was dealing with, I discovered that there was a wall around the circle, then a little trench. In this trench, I discovered is a worm in a circle. Then it goes under the muscle and what feels like the tip of the tail comes up in the middle of the circle in the miccle of a sac. Well, about three days later, it would pop. The cycle would start all over about every seven to ten days. This was there cycle for producing more worms. These were parasites that I later came to be find out to be hook worms. I came to that conclusion based on their face and beady eyes which when I saw in my stool and explained to the doctor, I even thought I sounded crazy. I never heard of a worm with beady eyes. So when I told them about it, they thought I was delusional. But if they had known what a hookworm looked like they would have recognized my account. Because I had no imagination for a worm that looked like that. At the time i had a tore rotator cuff. If anyone has one or has heard about them, they are extremely painful. I would say between a six and seven on the pain scale. But this thing with reproducing on my arm, that was an 8 at least and i could feel no other pain. My narcotics, anti-imflammatories, muscle relaxers did not work. The only relief I was able to get was from lidocaine patches. They are a life saver. They are normally $250. a box but Rite Aid sells them for $113.00 a box with the GoodRx discount card.
Well after that happened,I broke out in nodules all over my arms, chest, and complest stomach. They were about the size of erasers on pencils but had a flowery design to them. If you would feel the top, it was not smooth. It was like a brain but hundreds of them. My doctor said they were lypomas or fatty tumors. I told her and him that they don't just appear. I had to huge fatty tumors that went from each side of my sternum to the end of my ribcage. The worms may have lived their but they broke to pieces and are no longer their. I asked a dermatologist about this and he said lypomas don't go away or shrink but must be surgically removed.
I went back later and showed them that they had disappeared. They told me that fatty tumors sometimes do that against what the specialist said. and said it was fine. Then they came back. I informed them and they kept saying I was fine. Those nodules end up being worms. If you pulled up on them, They would come out and start moving around your body. The last thing that really got me the most concerned was that I could feel them in my head.
My doctor said I was delusional. They called my psychiatrist. My wife called my psychiatrist because I said if this kills me, make sure you have an autopsy done so you can sue them so you are provided for. So she called my psychiatrist saying she was worried about my harming myself. I was so mad. People were able to say I was out of my mind and I was not allowed to be sad. Strange things were happening to me. I went to the hospital a lot. They would refuse to run test on me. Sometimes they would just ask me what type of test do I want. Every time they required me to talk to someone on the psych team.
The statistics are amazing. 85% of people do not get diagnosed correctly for parasites. They are usually treated for something else like a psychiatric problem. delusions. The interesting thing was my doctor said that the delusions usually last about 3 to 4 months. Another report says that a person with a good immune system can expel the parasites within the same time periods. It makes you wonder how many people have allowed themselves be put on anti-psychotic medicine for this problem.
Also, you can have a parasite problem for over 15 to 20 years and not even know it. They would it would manifest itself would be by diseases that resemble irritable bowel syndrome, imflammation of muscles and joints, athritis, chronic anemia, rashes, infections.
This was such an interesting part to me. When I was 15 to 19, my mother and father go a divorce. Instead of moving on with her life, my mother decided to get dogs. She was severely overweight. I am overweight too but mine is from my medical non movement. Still no excuse. I could have done better. But my mother would do noting in the house and she would let those dogs crap all over the house. I was so embarrassed and ashamed to live there. When I was 17, I went out and purchased one of those steam cleaners on my own. But they were not strong enough nor hot enough to remove or kill anything on the carpet. So I think I have had my infection with them since those days. Shortly after getting married, I started getting rashes, anxiety attacks which I think was part, I started getting arthritis everywhere for no reason.. I have not cartilidge in my shoulder. It is bone on bone. I have had so many infections, it is pathetiic. My body registers like it has an autoimmune disease when it has none. My muscles ache all the time. I have fibromalgia. My blood work would always show inflammation. I was anemic 7/8 of the time. But the doctors took none of the evidence into consideration.
They have sent me to specialist within their own network. They read their file that suggest that I am delusional. They then spend no more then 4 minutes with me. The last time I went to the er, they said they refused to run test on me when I felt the worms wrapped arround my neck
So as to HOPE, Today God answered my prayers. I have been so very scared. I mean terrrfied. I have been alone except with my God and if I come here you would have helped me but I was so hurt that my family didnt want to help me anymore and only wanted to believe I was delusional. It got to the point they were so uncompassionate. I was trying so hard to get someone to feel them or see them, my wife. I would ask her to check something. She would only give me a minute. I felt this is my life. I have worms in my head. I allowed myself to be put on anti-psychotic drugs to be open minded. But none of them wanted to help me towards the end. At the end, I told them, I will do it on my own. I had a biopsy. I needed someone to drive. He said, I thought you weren't going to ask for any one elses help. That hurt so bad. I took myself. It was in my arm. I just drove home one armed.
So today, God has answered my prayers. This past week I have been crying so much. That I have been calling out my prayers to God. I didn't care who heard. I wasn't trying to be heard. In fact, I don't think anyone did. But I started blowing my nose. I could tell it was coming from my sinisus. Little worms started coming out. I was happy to have some proof but I figure these are little, they are going to dry out before I get there. Then I blew my nose again and this one hurt and a huge worm came out. I took really good pictures of it. and I brought the sample to the hospital.
I got to the hospital. I showed the doctor the sample. He said it looked like snot. I told him it was breaking down. He just offered to put me on the hook worm medicine to make me go away. I thought they had to put me in the the hospital since it was in my brain. He said the medicine will cover it. But before I left, I had to make a doctor believe me. I made him look at the good picture on my phone. He said it was a worm. I was so happy. One person said I wasn't delusional. My regular doctor wasnt so kind. She said she is not so sure even though the er doc said it was.
The part the hurt a little more is I told my son, who 2 days previously said if I had not gotten the answer I wanted my July, That i should acce[t I have a psychiatric problem. I realized I taught my kids to love. I have always apologized to my kids many times as an example. But I can't recall them ever saying sorry to me. My son did not say he was sorry for being so hard on me. I have to get over it. I need to focus on the blessing God has given me. A diagnosis and some medicine. Let us see if it helps. I hope a lot of you have things that are not dangerous come forward that make your diagnosis easier so you can get the best help you can get. I feel bad because I know many of you are not in my situation right now. I know my problems are far from gone. But from a chronic pain sufferer, this is like a love story. ha ha. I am sorry for the novel. Have a good morning. I hope you feel the best you can.