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CatchMyPain Community and Pain Diary App to manage chronic illness

Hope in this exsausting journey we face daily

Jun 27, 2017 2:44 AM

Having chronic pain really can set someone in depression and make you feel like you have no worth, recently I decided that I am going to fight it and the Sjogrens Syndrome and not or walk in a 5k race that the Sjogrens Syndrome foundation plus on every year.. So I am going to try and set up a blog on Facebook on my progress, the next one should be in a year so I have time to train. I'll give my updates her on my progress s well... Trying to share a little bit of hope in this exsausting journey we face everyday. What are some of the things you do too try and keep chronic pain taking over your life?

Jun 27, 2017 4:55 AM

I'm doing PT in a heated pool. It helps everything except my back.

Jun 29, 2017 2:14 AM

Competitive ranked video games. I'm no pro but its as close as I can get to the sports I used to do, and it's something that I can keep trying to get better at. Not to mention I often get so focused on the match I forget most of my pain.

Jun 29, 2017 10:55 PM

Sjogrenspain77 that sounds like an amazing challenge to set yourself and it sounds like you're looking forward to it. I know you will put everything you have into it but also remember to listen to your body and try not to push yourself too much to quickly otherwise you'll do yourself more damage and end up in a flare.

I've just subscribed to the National Trust here in the UK, they look after many old house's, castles, the grounds that they are in and many forests/woods and coastal areas, basically place's of great interest over here. I've joined them as not only do I like visiting old properties to see their history but also I like to walk around the beautiful gardens set within their grounds and my daughter likes to build dens in their woods/forests and I like to go for nice slow walks to take in the scenery where possible.
Having this pass will mean that when the summer holidays are here I can take my 2 for days out that aren't too expensive especially if we bring a picnic with us.
Being out helps bring my mood up, I will naturally be getting my vitamin D and if I can't manage to walk very far I have a picnic blanket and a cushion in my car so I can sit or lay down and let my daughter run around or build dens in the woods xx

Jun 29, 2017 11:41 PM

Animallover2, that heated pool sounds amazing!

Zebravado, my son loves video games, but of course what teenager don't lol!

Sezzy, thanks for that advice, I am actually on a day off from training today, my body says that it needs rest.. So that is what I did today. I will be back at it tomorrow 😉 building forts sounds like a ton of fun and the amazing scenery that you get to look at sounds like a ton of fun!

Jul 02, 2017 3:34 AM

Sjogrenspain77: They can stay with you your whole life. People don't always appreciate how enriching and rewarding they are, or all the good they can do for you. Gamers tend to be better at problem solving, taking the initiative, and depending on the game, reaction times, teamwork, self dicipline, and time management. If I only watched tv or movies, I think I would end up wasting away and getting extremely depressed. Video games on the other hand keep you engaged and keep your mind sharp and questioning.

Jul 03, 2017 10:28 AM

That is true, my son is really good at math and fixing computers. That's why I don't get on him about to much, I play allot puzzle like games on my phone to try and keep my wits about me because of the brain fog that comes with Sjogrens.

Because of the storm weather we have here today, I had too put my walking/jogging portion of my training on hold, so I am concentrating on the exercises I can do indoors. Good luck on your next compition 😉

Jul 09, 2017 11:08 AM

Got a gym membership on Friday to help me train better, on Monday I have an appointment with a personal trainer who is going to help modify an exercise program based on my goal and the fact that my disease affects my joints and muscles, I can't wait to get started! Went to the gym yesterday and did treadmill for an hour and decided to go home after that so not to push myself. More updates to come later! Stay positive all 😉

Jul 12, 2017 9:29 PM

Got a great workout today, sore but the first one will always make you sore. I am having a fantastic day! Can't wait till my next personal training an session! Stay positive All!!

Jul 28, 2017 2:16 PM

Been busy with training and I'm currently out of state helping parents find a place to live and trying to make time to see my friends that I have grown up with, hope everyone is doing well, stay positive all!

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