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Hoping for some answers tomorrow

Mar 10, 2015 8:52 PM

Sorry.
This may be a little bit long, but I so can NOT wait to finally get answers tomorrow morning. Feels like a giant weight is getting ready to be lifted off my shoulders. Then again, the anxiety of not knowing what the plan is, not a good thing tonight.
Sometimes I feel like life is just falling Part when I know it's not, but it just seems that way in the midst of the storm.

Mar 10, 2015 8:58 PM

Amandamiddleton1234 , I'm keeping you in my prayers. Hugs to you too! 🙏🌼

Mar 10, 2015 11:08 PM

Amanda I hope you can get some rest tonight. That you are going to get the answers you want. Keeping u in thoughts and prayers.

Mar 11, 2015 12:57 PM

Amanda, I hope you got positive feedback from your doctor today. I know what you mean about the anxiety of not knowing. I'm going for my CT Scan to see if I have a mass causing my ear trouble, pain and loss of hearing. Also finding out the extent of the deterioration of my jaw. It's nerve wracking. You'll be in my prayers and sending you gentle hugs. 🙏🌻🌺

Mar 11, 2015 3:54 PM

Got some good and mediocre kind of news today. Good news is no fractures. Stinky news is 6 more weeks of physical torture(aka PT). Loose weight and come back in one month. Reflexes and neuro status is normal at this point. MRI quality was crappy to say the least so we can't tell whether that disc is herniated. If no improvement, maybe looking at doing an epidural after that but not yet. The saga continues.

Mar 11, 2015 4:31 PM

That is good news Amanda. Hopefully the additional PT will turn things around. Wishing & praying for the best outcome! 🙏🌼

Mar 11, 2015 5:13 PM

I hope so too. It's looking brighter as the days go on. I think I'm beginning to see a light at the end of the tunnel on this one.

Mar 11, 2015 5:25 PM

Also, I wish I could edit that last post. Sorry. He did say that he found no evidence of spina bifida on the MRI but I question that because it was plain as day on the x-Ray. He also said that the disc in question from the way it looked, was not fully herniated. May have just been bulging at this point. He did suggest possibly a chiropractor or massage.

Mar 19, 2015 7:09 AM

No Reece, I really didn't. MRI results were so grainy, they didn't really show too much of anything.

Mar 19, 2015 7:21 AM

I'm sorry to hear that. You should demand another MRI in which your sedated and in which it is cut at 1mm

Mar 19, 2015 10:24 AM

That's a great idea. When you have a sedation MRI, you're so relaxed there's no movement and clearer images. Give it a go and see what happens. You have nothing to lose and everything to gain.

Mar 19, 2015 10:35 AM

Alwayz I never even thought about getting sedated before the MRI. I'm going to ask my Neuro to have me sedated during mine. Can't hurt to ask all he can say is no.

Mar 19, 2015 10:45 AM

There Ya go... It really is better. I also use a blindfold so I can't see where I am if I accidentally open my eyes because I am extremely claustrophobic. (I even start getting flippy in a CT Scanner.). Give it a go, they do it way more regularly now. I hope that they take good care of you and sedate you so you get better images. I'll keep my fingers crossed.

Mar 19, 2015 12:00 PM

Thanks Alwayz. Changing the subject yesterday befo r I saw my Neuro in the lobby there was an announcement about having a clinic on how to live with MS next week, I felt like I need to go to it,my sister said why do you want to go you don't know if you have it or not. I'm going to call and reserve a seat got myself.

Mar 19, 2015 2:46 PM

Prayers being said for you Amanda.🙏🌼

Mar 19, 2015 8:10 PM

FlappysLady, thank you. Just having a really rough time of it right now. I will ask for sedation if they need to do anymore imaging which is possible for my follow up appointment in April. He wouldn't do anything drastic at this point. Not even pain medication.

Mar 20, 2015 8:38 AM

I don't understand these Dr.s you need to have something for pain. I think a lot of them think when we ask for pain meds a lot they think we are hooked and need a fix. The sad thing is they are sooo wrong, they don't understand that the majority of us hate having to take so much pain meds wished we didn't need them.

Mar 20, 2015 10:22 AM

I agree. I'm frustrated because it appears my pain has actually moved down now.

Mar 21, 2015 6:03 AM

Amanda, I'm sorry about your pain spreading. I understand the feeling about claustrophobia. I'm ok if the unit they put me in has a good space between my face and it, but those that fit so close all around can give me anxiety. I start panicking and then hyperventilating. I have to take anxiety meds first.

I don't like feeling I'm trapped (or going to be). I've been like that since I was a teenager, when a friend decided to walk up behind me , covered me eyes and play "guess who", but wouldn't let go of my eyes.That's was the closest I've ever come to getting in s fight...I told her, "if you don't let go of my eyes I'm going to knock your block off!" About that time the teacher walked in and I was the one who got into trouble, because of what I said. Lol its funny now, but that actually triggered my first anxiety.

Strange enough, I fall asleep to the rhythmic noises once I relax. I wear ear buds & sometimes headphone covers if they're not doing the test on my head/neck. I do request a knee wedge so it flattens my mid-low back (i have an abnormal curve that hurts if i dont). I pray you'll be able to relax so your pain won't increase.

Mar 22, 2015 11:44 AM

FlappysLady, I believe the reason they didn't get good images is because I got stuck in the MRI machine the last time and they couldn't do a closed test for that reason.

Mar 22, 2015 12:19 PM

Yeah some of those machines are so small its a wonder anyone fits! I pray you'll have a better & less stressful experience next time. 🙏🌼

Mar 23, 2015 10:50 AM

What a nightmare, Amanda!!!!! I just read this and actually got immediately hot and started to sweat!!! I'm so claustrophobic, that I freaked just reading you were stuck!!! I hope your next experience is better and that they sedate you so that you're comfortable. Saying prayers for you.

Mar 23, 2015 11:11 AM

I hope so too. That was a freaking nightmare and I'm claustrophobic as well so when that happened, I started yelling at the tech to get me the hell out of here. Then promptly went and had an anxiety attack after. That was no fun.

Mar 23, 2015 11:46 AM

Wow Amanda that must have been an awful experience. I don't like being in tight places either I'm not really claustrophobic . I hope that this time you can go to an open MRI facility. Wii be praying for you.

Mar 23, 2015 11:51 AM

I did go to an open MRI the second time but the surgeon told me they were too grainy to see anything.

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