Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

hoping for things to get better

Apr 13, 2015 11:01 PM

Let me start off by saying not getting better with pain, sleeping, or the memory and such. Just have had some really bad weeks and may finally be coming to the end of the tunnel. I haven't been able to work since August and trying to find help for me and my family has been really rough. Finally though my wife has gotten a job and we are suppose to be signing papers to move to a low income apartment. Which couldn't have come at a better time cause I got served with papers for being late with March and April's rent. So besides still owing the money that I just don't have, I can tell them when I go to court that I am moving. So that's my little bit of rant mixed with good news for the night. Here's hoping to be able to get some sleep and that I can maybe help a little during the move.

Apr 14, 2015 12:32 AM

Sorry Jays, sometime it feels like we just get to be the lucky ones to step in it.... So sorry

Apr 14, 2015 1:28 AM

I understand your position all to well. You are in the right place here. I was recently told i am never getting better my future is medication additions like I am not on enough now. I have been unemployed for over a year, I was the major income provider. I rarely see my husband as he puts in long hours and doesnt take time off just to pay the rent. Where I live there are Facebook pages where people help each other. Here in my town we have buy nothing City name and be neighborly city name. It is amazing how much people are willing to help. The stuff they give for free is always nice and it has been a great way for us to downsize from having to sell our house to an apartment and now getting ready for a smaller apartment. Anyway I have seen people help from packing, organizing, help moving and so on. I am not sure where you are but there are community resources that can help also. I keep seeing the light at the end of the tunnel and thinking it is a train. So as my neighbor who is disabled told me, "you hold your head high, ask for help be it food, gas vouchers for dr appointments or other help you got nothing to be ashamed of just do what you gotta do for your family" best wishes on your life journey. And hoping one day we find that miracle to feel better.

Apr 14, 2015 7:59 AM

JayS77, Its good that your wife got a job. And I'm sorry you're having to move. As Shammagren said, there are people willing to help. Contact a local food bank even if you have food stamps. They're very helpful. There's no shame in asking. Some may say no, but many will say "how can I help you?". We filed bankruptcy years ago when we were overwhelmed with my medical costs, no one wanted to work with us on payments, and we were barely treading water. Since then, and because of my chronic conditions and new ones, we scaled way back. We have yard sales to get rid of clutter we collected over the years. Even if we only got $200-400 each time, it put money in our pockets and got rid of stuff we weren't using. We now buy everything strictly on as-needed basis. I'm praying you'll find some local community help via Facebook or churches or food banks etc. I don't do Facebook, ever since my email got bombarded with spam, but I do know many find help that way. Prayers for you and your wife! 🙏🌼

Apr 14, 2015 10:01 AM

Jay, glad to hear that your wife has gotten a good job and very sorry to hear that not only do you have to move but have to go to court. What a nightmare. On the positive side, thank God you are getting assistance you need with the low income apartment. I wish you only the best and hope that things start to improve for you now. Make sure you apply for food stamps if necessary. Also with the Affordable Healthcare Act, you should be eligible for programs to help you pay your copays and meds, etc. You will be in my prayers.

Apr 14, 2015 1:29 PM

JayS77 I am so sorry that you and your family are going through. We had to go thru the same thing 2 yrs ago,and still dealing with cerditor's. We are starting the paperwork for Bankruptcy this week. We lost our 3b 2 b double wide, our 2011 dodge 1500 ,to reposesion. We live in a 14 x 32 cabin open room, with a loft. It is very crowded, but we deal with it. We have got to have a garage sale and hopefully make a little money on things we can't use anymore.

Apr 14, 2015 3:09 PM

Hi Jay77, I am sorry to hear things are so tough and that you are in so much pain. And I am glad that you're receiving at least a little bit of help. I don't know if this may help, but getting in contact with a social worker can help you find access to a lot of services. Like there is a lot of free medicines out there by the drug companies that make them so that they can continue to get grants from the federal government and also there is a drug card discount call good RX. It works really well. The salvation army works with making electric payments. These are some of the services I know of an used.

I'm sorry that you're having problems with your memory and those other things. They to get me down. Just a little note, and it doesn't work for everybody. I just started a new medicine, it is a generic to Cymbalta. It is really helping me a lot better than the anti-inflammatories and pain medications and it is also an antidepressant but primarily used for fibromyalgia. It's helping me deal with the pain much better. But I have heard that after a while some people it doesn't work. I'm hoping that is doesn't happen to me. But I recommend it to my doctor to try on me and he did. It was just a thought. It could be a free drug. I hope things get better for you.

I went to church this past weekend. It had the perfect talk for me. It was talking about worrying about the future and imagining terror. And I don't know if you're a man of faith., But it was saying that if we work on our faith, and look to our hope. And try to imagine The things that we look forward to in the future that are good. The things that we have now that are good. To try to do well not so much on the things that we can't control. I'm not suggesting you're doing anything wrong. You were being a human being. But since I heard that talk, it has made me have more happier and positive in a distressing problem I am going through and a little bit more happier. I have to work on my faith more with being so tired and scared about what's happening to me. And not getting any answers I need or help at all from my doctors. But I bet I hope today that you were feeling the best that you can be and I hope that you you are having some good thoughts today. I hope today, that someone is giving you a little bit a help. At that talk, it said that we should pray. It's sad that it's like a sweater. When we are cold, we put on a sweater. If we continue to be cold, we put on another one. And on and on and on. They said that prayer should be the same way. If we have the same problem, keep on praying till you get the help you need or you get the comfort and the peace that you need and want. Also to pray for the wisest way to handle your situation. That is what I need to continue praying for, I need to learn how to handle my doctors better. I think I get a little bit excited over my problem. Plus I don't Bring enough evidence. But new ideas came to me. I thank that's a God. But my hope is that you were getting the help you need and you're having a good day today. Best wishes, Dan

Apr 14, 2015 10:57 PM

Thanks everyone, I didn't think to mention we are on food stamps which is good. If it hadn't been for a local lady in my community that helps veterans I wouldn't have found any of the help I have gotten. I was just a bit frustrated the other night when I posted this because of the whole court thing, but I signed my new lease today. So here's to moving forward.

Apr 15, 2015 2:39 AM

I wasn't suggesting you were being negative. I was just suggesting to you and myself to not use our imagination on the worse case scenarios which is out of our control. I think that is what is wrong with me and many people, we think we are in control. How wrong that is. We are only in control as to how we react. Focussing on the good we have, and that is ahead,. The things that have been done for us. These are the things that give us peace and hope. That was all I was saying. Don't think I was suggesting there was anything wrong with your post. That is what they re there for. To say how you feel.

Apr 15, 2015 3:03 PM

Profiler I wasn't taking your comment wrong. After thinking things thru and rereading my post I was focusing on the negative. I've been trying to stay positive but some days it just doesn't work so well.

Apr 15, 2015 5:51 PM

JayS77, don't feel bad. We all do that from time to time.

Apr 16, 2015 12:53 AM

Jay, like I told you. This is advice I learned at church this weekend. I am just now putting it into practice. I thought it was the ultimate great advice especially for some situations that i am in. But I look to the negative a lot. That is my goal to look to the positive. It sounds like you have a head start on me.

Ready to start relieving your pain?

Join Community