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Horse of a different Color

Oct 27, 2016 1:44 PM

Super tied of doc visits.
For two years I've had various symptoms that continue to flare and interrupt my daily life and no diagnosis or preventive treatment.
I'm about to have a third primary doc, an internist. I'm tired of them all. They keep screaming exercise and lose weight! I weighed a lot less at the beginning of all of this! Now it's painful to exercise and even more painful to recover! I'm just a house if a different color and I'm feeling like giving up on finding any real help. Lose weight and get mental help is code for I don't know what's wrong with you! I'm convinced!

Oct 27, 2016 1:55 PM

Please don't give up. There is a doctor out there that just might be the key to unlocking your medical issues. Did you know that the average length of time to get a diagnosis of Fibromyalgia is 10 years. Unbelievable. :(

It might be worth it to ask this new doctor if he will refer you to a specialist if this new doctor ends up being One who will take you serious.

Do you live in the US? I know there is a list put together for good doctors around the US. Not sure how accurate it is though.

Best of luck with the new doctor.

When you go to see this new doctor make copies of your pain journal and take them with you. Make a list of everything you have tried and what helped and what made it worse. Those would not only be good starting points for him but a visual where he can actually see how your pain is each day. It's kind of hard to say it can't be real when they have visuals right in front of them. :)

Good luck hun. I hope the new doc will be the right one. Don't they say third times the charm? :)

Oct 27, 2016 2:09 PM

If you have the funds maybe look into a naturopath. I have gotten absolutely no help from doctors over the last 10+ years. The naturopath was able to find things that were contributing to my symptoms as well as got me on proper supplements for my body. The only reason I'm alive today is because the naturopath help my pain go from 'kill me now' to 'mostly managable'. Due to chemical exposure in April I'm at 'somewhat managable' for pain and 'not managable' for sensitivities, medical doctors are not helping with my sensitivities at all (they just say avoid but how am I supposed to avoid everyone and everything and still survive)and the naturopath is the only one who is trying to help me.

Oct 27, 2016 3:01 PM

I am going to look into that. I think I'll have to transition to alternative treatment because current treatment sucks!

Oct 27, 2016 4:48 PM

MrsInvisiBell please don't give up. It is frustrating dealing with so many doctors and trying to find answers that are far and few between. It is true that exercise does help, because it releases endorphins that react positively. What doctors fail to say our accept is that the meds we are on adds weight as well if not more than immobility. I've been trying to stay active for over a year, even if it's not the "30 minutes 5 days a week" the doctors seem to think everyone is capable of. I started very slow at 5 minutes, in a gentle walk on a treadmill, and have only recently advanced to 15-20 minutes, 2-4 days a week, but still at a slow walk pace. I feel better when I do exercise. But I also don't beat myself up if I miss time, even if it's a week or more. I listen to my body's signals so I don't overdo it. You will know when you are able to try any exercise better than the doctors. Just keep it slow and steady.

Follow Mimikay's suggestions for notes and such. Also look into healthier dietary lifestyle changes you can do to reduce inflammation. From others in the community and a doctor, I've learned sugar causes inflammation. Another cause for me are soy and wheat. I'm working to reduce and or alleviate these foods. Oh, and ice cream is awful for me (IBS-C), and my favorite food! 😭. I can tell when I've eaten the wrong thing much easier now, whether it's a headache, GERD, bloat, itching, or whatever. If you get rashes or other visible discolourations and such, take pictures of them. My docs have dx from 2 already.

Most of all, and hardest, is to be patient. I started with fibro symptoms in 2007 but wasn't officially dx until 2012. And though I've been dx with multiple Autoimmune (AI) issues since then, I've had symptoms for them most of my adult life (30+ years). I can remember my dad calling me a hypochondriac once when I complained at 13; I never told him when anything was wrong after that, nor anyone else until I married. We are all here for you, whether it's advice, an ear to listen, or a shoulder to cry on. Just give a shout! Hugs love and prayers you will get answers and solutions sooner rather than later! 🙂💕🙏🌸

Oct 27, 2016 8:28 PM

@FlappysLady81 Thank you for your kind words. I'm sitting here thinking about following food orders but having that conflict in my head of I know what I'm experiencing. I get in the doc office and feel rushed sometimes or I feel like they're not enough time, I have so much to Mention and I hear them talk more than me. I try to advocate for myself. None of this is easy. I've been battling trigeminal neuralgia attacks for almost three weeks now.. Tonight idk how I'll fall asleep. My cheeks are just filled with pain. I have to be gentle with myself and just do my best.

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