My RSD/CRPS sent me to the hospital today. My left side is basically immobile. I cant puck up my son, I can barely stand. My head is pounding. I have to go see a neurologist. Im really scared and nervous. I have no pain meds and Im really struggling. Has any body experienced this? My back is also swollen and red. Im shaky, weak, and light headed as well.
I'm sorry your going threw this right now. But i have experenced it as well. I have full body, and internal crps and there are time (usually it will begin at night for some reason, idk) that my whole body goes completely paralyzed, other times it will be like my atm or one side like yours is. I tried looking up things online about it, my doctors say it has nothing to do with CRPS. I think that because the amount of pain we are in our body goes into some sort of shock or something like that. Also,could your back be developing the CRPS? Since you said its red and swollen. I know that when I mine spread to about mid back I started fainting alot, getting light headed, and having a LOT of those paralyzed moments. I know I didn't really give advice. But i hope things get a little better soon. Gentle hugs
Actually this helps so much!! I called the neurologist and the earliest they could get me in is March 8th. I. I have good days and bad just like you and Im hoping I will be able to begin treatment. I have not fainted yet and hope I dont. Im sorry you are going through this as well. Sending gentle hugs your way as well.
I'm glad I was able to help! If you ever feel like you are going to faint make sure you sit down and focus on breathing, you do not want to fall and injure yourself and cause any more spreading. Sorry you appointment is so far away but at least its not months away because that happens too often.
This has happened to me 8 times in my feet and one time for 2 months so I know the pain hang in there you have to get up and walk get some crutches and lean 50% of your weight on them and 50 on your feet also try and sit up straight.feel better