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How are you using the pain colors?

Oct 08, 2015 8:12 AM

When I draw the pain on the body to represent mine I figure each of the colors represent 2 numbers on the pain scale. So for me the lightest is a 1/2 and the dark red a 9/10. I am not downplaying anyone's pain here but I see people using the lightest color talking about how bad thier pain is and I think man I would kill to be at a 1/2. So that is why I am asking.

Oct 08, 2015 8:31 AM

I think of the areas of my body and the level of pain in that area compared to other places. I am reluctant to use the "unbearable" darkest red. My arms and hands for instance, compared to my low back, hips, legs & feet are mild comparatively. I don't really think of it in terms of the pain scale numbers I guess.

Oct 08, 2015 8:59 AM

Shammegren, I think you need to take into account that we all have different tolerance levels. I have a high pain levels and can't cope with them like I used to, although have had to "get used to" just the same. It's hard to judge sometimes.

Oct 08, 2015 9:00 AM

I use the colors the same way as anonymous, and everything is relative. I also have times where I only use the dark red, but that's during flares, mostly. I figure if the pain I feel isn't the worst I've felt, it's not worth the darker color. I also think it depends on how you define the pain scale

Oct 08, 2015 9:04 AM

Here's mine:
1) I feel like crap

2)This sucks

3This needs to stop

4)Rrrgh. Why!?! I should be used to this by now...Rawr!

5)Oh god, not again.

6)Someone's going to die. ?...Me? No, you, or, you, or...yeah, me. F**K THIS!

7)Welcome to hell.

8)Ooh, dying sounds so FUN...let's play!

9)Oh help, I'm hallucinating. Dad, is that really you? No, just a shadow. Damn it! Dad! Dad! DAD! Where the heck are you? I'm going to die, please make it fast. I'm begging you, just make it stop. Kill me now! KILL ME NOW!!!

10)I CAN'T MOVE! Help...am I dead? I should be dead. Where am I? CAN'T. MOVE. Get help. Why can't you hear me? Is this pain? Why can't I feel it? AM I IN SHOCK?!? Need help. NOW!!!

That's why i try not to use the color by numbers, and instead rate the pain separately.

Oct 08, 2015 9:09 AM

Boy can I relate. Although, lately have been having very high levels and have said several times.. OH GOD, Someone please take me out of my misery. I've also said kill me now.. Matter of fact yesterday.💕🙏🏻🌻

Oct 08, 2015 9:48 AM

Big hugs alwayzinpain. Your struggling but support everyone else. I think your amazing xx

Oct 08, 2015 10:21 AM

Thank you for the answers I think I am getting a better understanding.

Alwayzinpain hang in and my thoughts are with you. I have thought and said those things and more. I think i shared that in another post. As I tell my husband from time to time if it wasn't for the pain I might not realize I am alive.

Ferretbandit I sooooo agree. You hit the nail on the head and I have heard myself saying many of the same things. I could use your scale 100% with only adding at about 8 asking have I been such a bad person in life that this is my punishment.

I am not sure if this applies to all countries as i have never lived anywhere but the U.S.A: If pain is relative to each person then why when we walk into a dr office are we are asked to state on thier scale of 1 to 10 where our pain is which they describe 1 as being little or no pain and 10 being the worst ever. I have matched the pain scale here to the medical field and write the scale down when I give them copies. I do the same for disability because this 1 to 10 scale is so widely accepted.

Now I am not crying right or wrong here. Infact this has helped me understand the difference and I think that it mostly lies in what we are using the information for.

My log is mostly to share with the doctor. I know from experience taking my pain color picture in with the scale light to dark with only the lightest color used they looked at it like I was fine. I said but I have a high pain tolerence the answer was that i may have a high pain tolerence but this is relating how liveable the pain is fore right now. So basically a 10, 9, 8 would be bad pain whereas 1, 2 or 3 on the pain scale would be liveable and manageable.

My pain has become an onion...a 7 last year is not a 7 this year. This year that 7 would be a 4 because the pain keeps graduating so to speak.

Oct 09, 2015 3:52 AM

I have know idea about the colours as I've o ly joined today. But I have put everything a the middle colour. Then each day I can work out if it's better it worse than today. If I do that everyday and using the previous days as I guide I can work out what us what. I have however put red fir my head and wrist, as I don't really want to use either. But this may change as the day goes on. Good luck on working out how you want to use it. Sorry to here people are having a crap day today. But I always say there is some always worse than me. But I must be good at hiding my pain as my friend is always trying to get me out and do things. Yesterday was a bad day. I managed to to drive her about but didn't get out. Glad I rested a little as we're off to the cinema today.

Oct 09, 2015 8:20 AM

I view the colors in an objective and subjective way. In the objective view, I see the colors in my head like the stages of a bruise/wound. It goes from Dark Red - Internal Bleeding bad to Light Yellow barely there going away.

In the subjective way, I view them emotionally. Dark Red is deeply depressed, tears streaming but silent from exhaustion and end of my rope no hope for the future suicidal. Red is unbearable, agonizing, crying, raging, disappointment, frustration why why why. I've never had light yellow so I imagine that would be sunny, smiling, optimistic, and hopeful.

Oct 09, 2015 8:24 AM

Sally, I say the same thing.. There is always someone who is worse off than me.

Oct 09, 2015 6:13 PM

The only time that I have used the deeper red color is during a flare up or after a surgery/procedure. Also, I know somebody asked this question the other day and I don't remember who, but I try to update only once a day. Pain is in pretty specific areas most days. The only time that it does tend to move around is if I am up and around during the day. But not always the case. Pelvic pain typically on left, but that sneaky little buggar has begun to shift over to the right as well.

Oct 09, 2015 8:57 PM

When I use the colors I also allot two numbers for each; uncolored=zero pain, light yellow= 1-2 (mild... Can accomplish a lot today), dark yellow = 3-4 ( moderate.. Can do 2/3 of what needs doing), orange = 5-6 (intense & distracting, but still fairly mobile), light red = 7-8 (severe, barely able to accomplish ADLs), and dark red = 9-10 (extremely impossible to bare, headed to doc or ER!). I basically try to place the line where I think it would be at the same number of the colors. But then I found out the line pain scale is only a 1-5 choice. It's not consistent with most physician pain scales. When I line it up I break the line into 10 portions (same portion where you choose sad to smiley face). 🙏🌼

Oct 12, 2015 12:06 PM

I've done as someone posted above, using the 1-10 pain scale. Those scales are subjective to each person using them. A 7 to me may be a 4 to someone else. We all tolerate pain differently.

Oct 12, 2015 12:42 PM

Just use the colours as you see fit. I'm guessing that most people took a fair few entries to kind of calibrate their pain to colours.
I consider it a rough guide only as (as most have said before) as our actual perception of pain severity, on a day to day basis, is effected by so many different factors. In short it's a snapshot in time that may help you understand why on some days you are more receptive pain than others.
For example the day after a regular activity may show increased pain trends (darker colours) from the previous day regardless of which colours you use.
Hope this makes sense. ...

Oct 12, 2015 8:10 PM

I was not trying to criticize anyone or find a way to use the colors. I have been using the app for about a year now. I was simply trying to understand how people use them and the thought process. For example this app notifies me when it thinks people have similar pain to me, but since it is not setting a pain scale it really shouldn't have that feature. In addition I have learned a lot about pain and how people feel about thier pain. I do not what so ever regret asking this question.

Oct 12, 2015 9:29 PM

Shammagren, I agree with you that the match up notifications of similar pain doesn't really work with the pain scale. I'm glad you asked the question because I wasn't sure if I was using the colors in an overkill or underkill frame of mind. Now I see that there really isn't a set idea of use, because we all are different and tolerate & interpret differently. Thanks for creating the topic! I hadn't thought of asking. I hope you have a good night. 🙏🌼

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