Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

How can somebody say they understand when they truly dont(vent)

Jul 25, 2015 1:36 PM

Hi guys,
At this point I am truly frustrated and fed up with something. How can a person who doesn't live with a chronic illness or chronic pain say they truly understand when they don't? I'm just some damn frustrated at this point. Having another MRSA flare up this weekend and scheduled to go on vacation in 1 week. Well, there is a possibility that that might not happen this time. The only thing that really works for me is IV antibiotics which means daily infusions, which means no vacation. I already know what my doctor said the last time. Person in question said, "just think positively and it will be better." I said to myself, " I know what my doc said and how this stuff affects me. Everybody is affected slightly differently so how can she tell me that it will be better." Does she not understand the hell I have been through for the last 8 months with 3 big surgeries,2 minor ones and a set of spinal injections? I just feel kind of off at this point. Don't know what is getting me down at this point, but something is and I just can't shake it.

Jul 25, 2015 10:45 PM

Amanda, one year my husband cut his hand. A few weeks later he developed blood poisoning from staph. It was going up his arm in streaks! I made him go to the ER. We were to leave for a weeks vacation the next day. It didn't happen because they put a port in my hubby's arm and he had to go twice a day for 7 days to get IV antibiotics. They were going to hospitalize him, but he begged them not to so we could at least treat the kids to a local arcade place and the movies. It was very frustrating to say the least. I understand your frustration and disappointment. I can't tell you it will be OK. I will suggest, if the doc does keep you home, just try and treat yourself to some special things you don't normally do, so you won't feel completely cheated. ((Hugs)) of understanding & support and prayers it won't be as bad as you read! 🙏🌼

Jul 25, 2015 11:03 PM

I'm sorry Flappys, I didn't mean to sound so negative but I'm really down on myself tonight. Feels like I've about reached rock bottom already. Just got to keep fighting it already. I'm not going to quit. That's not in my nature.

Jul 25, 2015 11:09 PM

It's ok, I truly understand. Sometimes it's like, "when is enough enough?" We all have moments, days, weeks like that. No apology necessary. 🙏🌼

Jul 26, 2015 9:21 AM

I'm truly feeling like that this morning as well. When is enough, enough already!!!!!!!

Jul 26, 2015 10:10 AM

Believe me, It ticks me off when you have these people who have never had a migraine in their life tell me what to take for a headache. Number one, most things you take for a headache cause a bounce back migraine. They have no idea what a migraine feels like. My sister has had one and said to me, how do you deal with these all the time. I told her, you either learn to deal with them or you kill yourself.

Jul 26, 2015 10:17 AM

I'm sorry amandamiddleton that your feeling that way . I can't answer that question because every time I start to feel that way and think I've hit rock bottom I only feel worse a little latter , but all bad new aside when my grandkids show up I always get lifted up a few more steps off the ground I hope you feel better soon if I could carry your pain and worries for a few hours or days let me know cause I'll would be a happy camper know I help you and flappy lady feel better and smile because you can

Jul 26, 2015 10:19 AM

Just seen headache I'm still sorry for them too

Jul 27, 2015 8:20 PM

My headaches hurt the most because they affect more senses than back pain, neck pain, fibro pain, or neuropathies. A headache affects my vision, my hearing, my focus ability, my nerves, ability to move around or not, etc. And the worst ones want to take the top of my head off. 🙏🌼

Jul 27, 2015 8:25 PM

I know the feeling. I can't concentrate on anything when I have a migraine. It takes up my whole life.

Jul 28, 2015 8:29 AM

This was the vacation you were talking about? Sorry I was being nosey. But that's great.

Jul 28, 2015 8:44 AM

That's really great! 🌴 Relax and enjoy it!!! 🙏🌼

Ready to start relieving your pain?

Join Community