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How do you cope?

Mar 20, 2018 8:10 PM

How do you cope when you are feeling your worst? There are days when the medication doesn't touch my pain and the only person that remotely gets it is my psychiatrist who treats others with fibromyalgia.

Mar 20, 2018 9:42 PM

I do not have fibromyalgia but I have arthritis pain! Spinal fusion L4-L5 and neck pain which goes into my arms! Ialso find it hard to get my pain under control! It is really hard!

Mar 20, 2018 10:45 PM

I too do not have fibromyalgia. My pain stems and from AS,
of spine, Neuropathy, DDD, Psoriatic Arthritis and many other spine related disorder.

Mar 20, 2018 10:49 PM

Sorry I can’t read/see my posts. Distraction helps some. Deep breathing, hot shower, massage, 🙏 and just crying relieves some of the stress. Talking to a compassionate loved one or friend. Just tugging it out.

Mar 21, 2018 7:11 AM

Some days I use all of my tricks and no relief. Inversion table, accupressure mat, ice, heating pad, Epsom salt bath, pain cream, binaural beats, meditation and medications. It is frustrating when it renders you unable to move. When I am in a flare, sounds, smells and light make me feel worse. Just being alone in a dark room is all that I can tolerate. I feel so awful when I have to tell my husband that he needs to stop talking because it is overwhelming. At least he is supportive and doing the best he can. My cat and dog also help with their cuddles.

Mar 21, 2018 6:04 PM

Nothing helps me either when I have bad days not even crying to relieve the stress. My cat helps me too he to keep me calm. I have no diagnosis and prob won't now for next 8 months just been told to deal with it till I see the next specialist in a long list and still might not get answers. Talking on here helps a lot it's nice to know ur not alone and it's too strangers but that's easier sometimes but honest vent because other wise u will blow I know from experience

Mar 23, 2018 12:57 PM

I don't have fibro but I have constant pain in my chest and ribs. I haven't had anything to ease the pain for three years now. Nothing helps. So I've had to learn to live with it, or try to. On really bad days I usually cry, and sometimes it feels a little bit better mentally after that. Then I try to count my blessings. If I have just a little bit of energy I try do to something I can control. That definitely helps, I can't control my pain but I can control other things in my life. I hope you're doing better today 💕

Mar 24, 2018 6:44 AM

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Mar 24, 2018 3:58 PM

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Mar 28, 2018 3:12 AM

Why flag someone who might can help? The docs are scared to prescribe us this. Fibro has me on the brink of suicide, 31 yrs of pain, I'm tirefr!

Mar 28, 2018 3:53 PM

I sleep on and off all day, use lavender incense and lavender Epsom salt in my foot massager. My husband is golden and will let me shout, scream and cry with no consequences, he'll just listen, cook for me and massage my hands which bizarrely seems to smooth me. I also have a real hot bath with Epsom salt in, candles and incense burning. I find using incense relaxes me in turn relaxing my muscles/body. I'm a slight hippie at heart lol ✌️hope that helps. Love Hayley 🌈

Mar 28, 2018 3:54 PM

Oh! Forgot to add my GP will increase my meds temporarily while the bad flare ups are happening.

Mar 28, 2018 6:26 PM

I have had 0 success with pain meds and although my pain is only a 3-4 it is constant and overwhelming and wears me down alot. I try to set my self small goals/ productive hobbies to try to distract myself when it gets too bad. I find that even something like reading or making my bed makes me feel a bit better a bit more in control. I write a list sometimes to show I'm moving forward every day. I talk to my friends and family.

I bathe and use hot packs and alot of the time I cry, but if I can see that in some ways I'm being productive, even in a small way insignificant way, even though the pain's still the same it helps me have the strength to cope.

Mar 29, 2018 1:17 PM

Sazvivin I find making beds helpful too! I thought it was me being weird lol I randomly like cleaning my kitchen - I think it's the stretching tbh

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