Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

How do you cope?

Jan 10, 2018 3:15 AM

When flare ups are at their worst I find myself trying to sleep through them or just waiting in brutal agony. I’ve tried meditation and yoga. But I’m barely able to move, frozen in fear perhaps but just frozen. It gets bad enough that I cry and throw up. I’ve called my doctor and begged him for help but his solution is to take me off what little I have. Two years ago I was running a 5K every night. Now I can barely get out of bed to go to work. I can’t focus and my family pays the price. How do you cope, what helps you. I hope I’m not alone but hope even more that others don’t have it as severe or worse. How does one survive?

Jan 10, 2018 3:49 AM

Wow, I thought you wrote that about me. Pretty much the same. I always wake up in pain. For me medical marijuana at night. Other than that not much. I just keep going. How I haven't got a clue.

Jan 10, 2018 6:29 AM

I've thought about stopping the pain meds (Nucyenta) and just doing Marijuana when I'm not working. But it's not legal in my home state. So I'd have to figure that out while avoiding getting caught. Who knew living with pain would make me consider doing something not allowed.

Jan 10, 2018 7:14 AM

Nucynta is a really great med, if you can afford it. MJ, on the other hand, has so many social baggage tied with it, if you do that you'll end up being labled as something which can make it impossible to get the legal meds, too.
Best to let the doctors do their treatments. If Nucynta isn't working enough let your doctor know, and perhaps an adjustment or change will help.
Regardless, everybody's pain experience is different, so don't let the doctor talk you out of what you need to be able to function.

Jan 10, 2018 10:15 PM

I try to find small things that can make me smile just for a second to be distracted. I like lityle cute stuffed animals. It doesnt take away the pain, but i like them. I got one of those massage things that straps to a chair at home for my back pain. It really helps when i can muscle through the pain to get my back to relax.

Jan 11, 2018 1:52 AM

Problem I have is my dr won't listen. I tell him how bad it gets and he tells me to suck it up and pain won't kill me. But I can't find anyone else in the area

Jan 23, 2018 9:51 PM

I win small achievements if possible. My psychologist calls it self-efficacy. Coloring books, simple puzzles, and other achievable daily goals really do help if I’m not completely bedridden that day. I know it sounds hokey but it’s just one tool in my toolkit. Also heated blankets at all times. The cold flares me bad, even if it’s just air conditioning. I take blankets and gloves everywhere. It’s hilarious because I moved from the midwest to south Texas to escape the weather but did not consider how Texas cranks the AC! I have fibromyalgia osteoarthritis spinal stenosis and Raynauds, just to name a few...stay strong. And stay warm.
Mo

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