So it's been a horrid week. And my public face is wearing thin. So i was told that there is always someone who has it worst then you. And even though i I know it's true that doesn't help me in my current pain and level of life.at this moment I'm not concerned about the other people. I know it sounds harsh but it's hiw I feel. So am I alike in This?
Of course there are always people that are words of than I am, but that doesn't mean my pain is any less valid. I don't think you're being harsh. Just human and honest about your feelings. Nothing wrong with that.
True there is always someone in a harder spot but that doesn't mean yours don't count . I agree you are not being harsh or selfish . My opion is who ever thinks you are is the ones who only cares about themselves. Sending prayers your way. And remeber you time is very important.
Totally! Lets throat punch them all! You have every right to feel that way & i think we all do. I mean, we're tough chronic pain warriors... we have enough to deal with, can't take ignorant comments too.
When I was finally diagnosed with fibromyalgia by a rheumatologist he said "well this is a lifetime condition, basically you will be in pain everyday, how do you feel about that?" I was shocked and overwhelmed, I said wow that doesn't feel fair. He took a very stern stance and leaned towards me and said "do you think it's fair that a 12 year old has diabetes? Sometimes that's just how it is." I was so embarrassed that i mumbled something about him being right. Lucky for me I had a very good family doctor who was appalled by his callousness, but I still felt hesitant to say anything to family and friends for several years. I have learned that my pain is mine and I don't have to "balance" it against anyone else's nor do I have to justify it. Living with the constant ding of pain is exhausting and unexplainable to someone who doesn't.
I'm weighing in late on this: But, I have had dics say really callous things and I don't see that as being callous. He asked Ltb10, how do you feel...and if you ask any of is that question...your response probably be the same...when you were adjusting to this life you've probably said that many times... Although we didn't get to hear the tone of the doc...but it made Lbt10 think about their condition and what others are going through... What I find harder is people saying "you don't look sick" "Why do you have a handicap plate...why are You using the electric cart at grocery store" Talk about profiling or discrimination! @311--thanks for not saying whine like little girls... "they don't mean a thing" from a late 1930-1940s song..still applicable today! All my best (from big thumbs on lil squares)
I do live with pain & fatigue every day. I am researching & trying to apply what I learn to better my condition. I have not given up but if I need support via the electric cart or a closer parking space then don't be disapproving & get close to me cause I'll spend my last bit of energy in a " throat-punch".
I have found this statement dismissive and unhelpful, and been miffed or frustrated by it. No one has said anything like that to me in a long time, but just lately I've been starting to think it sometimes to myself from a place of gratitude. I'm stronger and more optimistic in those moments. But if it came from anyone else, or if I forced myself to think it but didn't attach it to a positive feeling, I don't think it would be helpful at all.
"How can you be happy when there are people getting married right now??" If you turn it the other way round it shows you what a dumb statement 'you can't have it hard coz other people have it harder' really is.