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How do you feel about this statement

May 23, 2017 7:29 PM

So it's been a horrid week. And my public face is wearing thin. So i was told that there is always someone who has it worst then you. And even though i I know it's true that doesn't help me in my current pain and level of life.at this moment I'm not concerned about the other people. I know it sounds harsh but it's hiw I feel. So am I alike in This?

May 23, 2017 8:51 PM

It is understandable. I believe we all go through this.... Many times. I know I have. Take care of yourself right now. Give yourself "me time" don't let distractions take you away from "you time"

Best advice I can give you. Praying for you.

May 23, 2017 11:28 PM

Of course there are always people that are words of than I am, but that doesn't mean my pain is any less valid. I don't think you're being harsh. Just human and honest about your feelings. Nothing wrong with that.

May 24, 2017 1:47 AM

True there is always someone in a harder spot but that doesn't mean yours don't count . I agree you are not being harsh or selfish . My opion is who ever thinks you are is the ones who only cares about themselves. Sending prayers your way. And remeber you time is very important.

((Gentle hugs))

May 24, 2017 11:02 PM

Totally! Lets throat punch them all! You have every right to feel that way & i think we all do. I mean, we're tough chronic pain warriors... we have enough to deal with, can't take ignorant comments too.

May 25, 2017 10:54 AM

@ Joey311. I (100 % agree ) we all have enough on our plates . Don't need to add to it . The glass does over flow.

May 25, 2017 12:46 PM

Thank you guys..it feels good to have support. I'm so hard on myself and I'm struggling to find balance in this new life.

May 25, 2017 6:22 PM

When I was finally diagnosed with fibromyalgia by a rheumatologist he said "well this is a lifetime condition, basically you will be in pain everyday, how do you feel about that?" I was shocked and overwhelmed, I said wow that doesn't feel fair. He took a very stern stance and leaned towards me and said "do you think it's fair that a 12 year old has diabetes? Sometimes that's just how it is." I was so embarrassed that i mumbled something about him being right. Lucky for me I had a very good family doctor who was appalled by his callousness, but I still felt hesitant to say anything to family and friends for several years. I have learned that my pain is mine and I don't have to "balance" it against anyone else's nor do I have to justify it. Living with the constant ding of pain is exhausting and unexplainable to someone who doesn't.

May 25, 2017 6:26 PM

Ltb10 your so right and yes it's awful how the rhumtololgist was so cold towards you. It's sad that the ones who need tge most care and concern are often the ones who get the least.

May 25, 2017 7:53 PM

You know if the naysayers traded places with us they'd whine like the dickens! 😄

'fk the naysayers cause they don't mean a thing' 311 (my fav band)

May 27, 2017 8:40 AM

I'm weighing in late on this:
But, I have had dics say really callous things and I don't see that as being callous. He asked Ltb10, how do you feel...and if you ask any of is that question...your response probably be the same...when you were adjusting to this life you've probably said that many times...
Although we didn't get to hear the tone of the doc...but it made Lbt10 think about their condition and what others are going through...
What I find harder is people saying "you don't look sick"
"Why do you have a handicap plate...why are You using the electric cart at grocery store"
Talk about profiling or discrimination!
@311--thanks for not saying whine like little girls...
"they don't mean a thing" from a late 1930-1940s song..still applicable today!
All my best (from big thumbs on lil squares)

May 27, 2017 3:18 PM

I do live with pain & fatigue every day. I am researching & trying to apply what I learn to better my condition. I have not given up but if I need support via the electric cart or a closer parking space then don't be disapproving & get close to me cause I'll spend my last bit of energy in a " throat-punch".

May 27, 2017 3:21 PM

I'm loving the throat punch .. there are times I feel that is the only way. Ha.. people get on my nerves so badly.

May 28, 2017 1:54 AM

Newfibrogirl2 😊 pm me anytime you need to talk. I am always hard on myself too . I guess it's easy for us to be our own worse bully. But hang in there. Stay strong. Sending prayers your way

((Gentle hugs))

May 28, 2017 6:41 PM

I have found this statement dismissive and unhelpful, and been miffed or frustrated by it. No one has said anything like that to me in a long time, but just lately I've been starting to think it sometimes to myself from a place of gratitude. I'm stronger and more optimistic in those moments. But if it came from anyone else, or if I forced myself to think it but didn't attach it to a positive feeling, I don't think it would be helpful at all.

May 28, 2017 9:21 PM

As my good friend and fellow spoonie would say "It's not the pain olympics". Keep kicking ass girl

May 29, 2017 1:06 AM

"How can you be happy when there are people getting married right now??" If you turn it the other way round it shows you what a dumb statement 'you can't have it hard coz other people have it harder' really is.

May 30, 2017 12:56 PM

I love Michelle Obama's quote &quote:When they go low, you go high‼ We are ALL WARRIORS‼ Let's not be diverted by people's ignorance and stupidity‼👏👍💯

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