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How do you guys get your "team" to communicate with each other. Terri, any help is appreciated.

Dec 22, 2015 8:07 PM

I've run into some issues lately and it's beginning to irritate me already. Have been diagnosed with an extremely stubborn case of CA-MRSA. Therefore due to multiple allergies and sensitivities, my body is resistant to almost all of the MRSA fighting drugs available(vancomycin, sulfa, penicillin,tetracyclines, clindamycin, etc). Really the only options I have left are IV antibiotics(Cubicin, Synercid or Tygacil). I have been trying to get my surgeon and the infectious disease specialist to please communicate with each other but I still feel like I'm the go between. Any thoughts or ideas please? It seems like the only one in that practice who understands my predicament is the physician assistant(thank god). He originally started me on Clindamycin again, but no dice. Have continued to flare up since then(2 abscesses opened in 2 weeks). Terri, any help would be appreciated.

Dec 22, 2015 8:16 PM

Well at first u will be the go between but as it seems he at the point that the lack of communication is causing frustration. So what I did was I mad an appointment with each or even call and leave the question with the. Nurse. Tell them what u need and ask them if they can please talk to the other one. Sans then sign the papers so that each doctor will have the others notes in there files so that way when either of them pulls up your file the notes to the other don't is already there. If any one of them will not agree to tell then u !ay want to find a new doctor. Hope this helps

Dec 22, 2015 8:23 PM

Thanks new, it does help. Going to ask the infectious disease doc to please call the surgeons office tomorrow just so they can get an update of what has been going on. I know the question is going to come up Thursday morning so just wanted to cover my basis on it.

Dec 23, 2015 6:05 AM

Put this request in writing to each physician so you have documentation that you have asked that they refer to each other on your case. Love and Blessings, Terri

Dec 23, 2015 6:10 AM

Terri, thank you!!!! Much appreciated. I must say that when I discussed it with my surgeon the last time, he looked at me like I was crazy. Kind of hate to go behind his back, but I did tell him that oral meds don't work for me at all. He could have even looked at the results of the culture done back in April, but didn't. At this point, I just need to do what's best for me already.

Dec 23, 2015 6:16 AM

Document everything... That kinda spurs them along sometimes. I am so sorry you are having difficulties getting rid of this infection. Ask your infectious med doctor if he thinks someone can go over daily care measures for you to make sure you are doing the right things in your daily life to help reduce infection and recurring infections. Maybe have a nurse visit you at your house to help identify areas that might be a concern.

Dec 23, 2015 6:18 AM

This is a tough antibiotic resistance you have, so maybe getting a social worker involved can help advocate for your health. Love and Blessings, Terri

Dec 23, 2015 6:28 AM

Terri, that is the first thing we go over at every visit. Hibiclens once daily and bactroban to any spots that are festering. I'm going to definetly think about getting a social worker involved with it. I also am intolerant of Zyvox as well so that limits choices as well. And my mom and I have made a decision that there will be no more "open" surgeries unless it's an emergency cause it just makes the MRSA flare worse already. Already experienced that the hard way this year after 4 trips back to the gyn after the laparoscopy was done in October.

Dec 23, 2015 12:20 PM

One more thing if in case you have to have surgery, demand you are the first for the day. The ORs are the most clean, then later.

Dec 23, 2015 12:22 PM

Keep me informed and I will keep my ole nurse brain on for you. Love and Blessings, Terri

Dec 23, 2015 12:51 PM

Terri, they finally started communicating this morning without me bitching about it. Finally, it's a miracle!!!!!!!!! I tend to believe that the physician assistant had something to do with that. Amen!!!!! But given the issues with infection, mom and I have made the decision on NO more open surgeries unless it's an emergency. It's just too risky for me and I do agree. Took us two months of hard work and persistence to get the last surgical wound closed(from back in October). Finally closed in December.

Dec 23, 2015 1:01 PM

For that one, no. It just took months of hand irrigating it twice daily with hydrogen peroxide, a trip to the ER and a course of IV Cubicin. With the last abscess that was opened, the plan is 7 days of IV Cubicin and weekly trips to the surgeons office for them to keep an eye on it. Will ask one of the techs for instructions on changing the packing in it. But that's not until the morning. The infectious disease specialist couldn't get a culture on it this morning because it's still a fresh surgical wound and he didn't want to pull the packing this morning and risk me bleeding everywhere.

Dec 23, 2015 1:03 PM

Ask for a wound care team, they can come to you at times.

Dec 23, 2015 1:22 PM

Terri, I only hesitate in using a wound team because my surgeons is great at getting chronic wounds to heal. Might take them a month or two, but with the surgery back in May, it took daily trips to the surgeons for packing changes and the help of silver nitrate to finally get it closed.

Dec 23, 2015 1:28 PM

Silver nitrate burns like a mother!! Holy crap, I've had that used on my open wound when I had staphacoccolus aureas. The infection was so bad it lasted for over a year, ate all the way down to my pelvic bone and started making little tunnels (almost like necrotizing fasciitis) and they use that in the hole. OMG, I almost punched the doctor in the face. He said "it's not that bad" and I said to him "well, if I punch you in the throat will that be bad?" LOL!!

Dec 23, 2015 1:36 PM

Lmao at Always..Amanda I know what you are getting at..just throwing out ideas! Love and Blessings

Dec 23, 2015 4:47 PM

Calling it a night. Cubicin makes me very sleepy along with the rain. Also have to get up at 5:30 in the morning. Lucky me, haha not!

Dec 24, 2015 10:01 AM

Amanda, wound care clinics are awesome. That is all they specialize in as you can tell by the title. It would not surprise me if they did a better job then your doctor in closing your wound. I had a severe wound that my doctor kept on saying was o.k but kept on getting deeper in me. It was like a half an inch inside me on my ankle and he said it was fine. But the wound care clinic had it closed and back to normal in a month. They were the best. They may be worth your consideration. Best wishes.

Dec 24, 2015 3:33 PM

I worked in a long term care hospital. We took patients with horrible infected wounds that others couldn't heal. We always got their wounds healed. Then several docs opened an outpatient wound care clinic to help those not needing hospitalization. A wound care clinic is where I'd go. 🙂🙏🌼

Dec 24, 2015 4:37 PM

Oh yea I did wound care too. That is an amazing area, also increase your protein , ask your Doctor to referred you to a nutritionist, to go over how much protein and stuff you need EXTRA for healing wounds.healing takes a lot of things including good nutrition. Terri

Dec 24, 2015 5:54 PM

Well, with my Aunt the doctors always contacted each other about what was going on, her reg doc and cardiovascular doctor anyway, but if you can't get them to talk to each other do what my mom does for my Dad, and that is she gets a copy of everything and takes it to each doctor and then they have a complete history and anything new.

Dec 24, 2015 6:05 PM

Mopar, they have actually started to communicate finally with each other. I really think the PA had something to do with it though, but as long as they are sharing information, that's really all that matters to me.

Dec 24, 2015 8:21 PM

Glad to hear they are finally communicating

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