Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

How do you guys handle outtings and fibromayalgia

Dec 23, 2015 4:37 PM

I saw a few threads on this so I thought I would start this one with a spin.
I have the will to want to go out in fact I need to get of this house a lot more then I do. However I don't like to feel im bothering anyone . and as many of you know when it comes to chronic pain and fatique. You ha e very small windows of time to do things.
So ..how do u deal with or handle the times when you want to go out but don't really feel like it? I tend to do all my own travel and driving. I've read articles that stated people with fatique try to plan one big trip once a month. But I actually laughed at that. Once a month is nuts especially when u live in a home with three people who have serious illnesses.
Or do u just not go. I'll give u my exact issue. I need to go to the bank and cahs a check and get some other things for Christmas. However the weather is so disrespectful. Ha... Rainy windy but yet hot and my body is upset. Of course my mom is all about driving but since the last episode she had I'm not driving anywhere with her..
So..any input?

Dec 23, 2015 5:20 PM

Honestly it's a hit or miss. I go out and do as much as I can gagging my pain levels. If it's a good day maybe an hour and a half. You just have to pace yourself and realize you may need multiple trips.

Dec 23, 2015 7:19 PM

Newfibrogirl, I agree with Dreams29, that it is a hit & miss. I can manage short trips, 30 minutes one way for myself, but longer than that and someone else must drive.

Then there's the being a passenger: I can't tolerate sitting in a car for more than 60-75 minutes and then we must stop so I can get out and stretch to limber up. When we had to go to Mayo (FL) it took 5-6 hours one way, so we had to spend several nights, & 3 trips to accomplish all they wanted. Now I have vein reflux in my lower right leg, and mild mitral valve regurgitation, so my cardiologist doesn't want me sitting to long or standing too long.

Since I started having SOB with activity, and requiring a cane, walker, or electric cart (this year) I don't do any shopping trips alone. I have asthma, but it's more than that causing issues. We went to a small grocery store last night and I walked with a buggy. We got to the register and my hubby ran back for something else. We had maybe 20-25 items in the cart and I had just unloaded the last few when I suddenly became very light headed, weak, and SOB again. I was leaning on the cart when my hubby came back. He said I was pale but I told him I'd be alright once I got back to the house, and I was.

Doing any activity, just peace yourself. And when you need to rest a spell, do so. (((Hugs))) & prayers you get your errands done without any problems. πŸ™‚πŸ™πŸŒΌ

Dec 23, 2015 8:24 PM

Thanks flappys... I like to test myself in small stores like dollar general or something like that. What is SOB?
Today I wanted til the rain stopped and even then indid not want to go but I did. I only made it to one small store and did not even have enough energy to stop and get me a bite to eat. Sadly that how I know I'm feeling real bad. Nothing keeps me from me favorite eat out spots.. Lol today it did....
But at least I've gotten some gift under the tree and my sister gift wrapped. It's huge so it was a task. Tomorrow I'll try to knock out the other stuff and LORD I hope I can get me some time alone soon. But til then I'll try to hold a good spirit.

Dec 23, 2015 9:28 PM

Thanks Terri! I forget, having worked in medical records, that everyone doesn't know the medical acronyms. Every accomplishment is one less to do later! Get some rest. Try to get out early, come home for a break (or grab a meal break), then tackle another. Good luck! πŸ™‚πŸ™πŸŒΌ

Dec 23, 2015 9:34 PM

Thanks Terri.. Uneven tried googling it and got nothing..

Dec 23, 2015 9:37 PM

Flappys I'll plan to get out early as long as its not raining. Inhaf planned to get out early today but it was horrid weather and it had me nailed to the bed. I've said it before and I'll and ill sai it again the pain. And now the pain seems to be internal . like a surgical pain. Plus my ordinary pain with swelling so lets pray the weather hold out so I can go out.

Dec 23, 2015 9:52 PM

Praying so! I'm praying for the storms won't develop and those that do will not cause anyone harm! Keep safe & may you have a blessed sleep! πŸ™‚πŸ™πŸŒΌπŸŽ„

Dec 23, 2015 10:41 PM

New, I can agree with you on this stinking weather, today was awful with thunderstorms and tornado watch's , it will take a toll on a person. I will be praying that tomorrow is a beautiful day and with no rain or storm's!

Dec 24, 2015 4:53 AM

Yep,it's raining here this morning.ugh.However,This girl has things I gotta do.I think later I will put on some Christmas music,and breath my way through it all,doing one little thing at a time.I am sure I will be poking around here for emotional support and love! We can do this y'all.
I know we are not alone and we are trudging along together!!!!!!!Gonna pray for Jenna and her family and medical team. Then start the day.Love and Blessings, Terri


.

Dec 24, 2015 5:32 AM

Flappy, I like your style! You give out so much love , as far as I have been able to tell, from past post! Hope you have a good day, low pain, and lots of Love and Blessings! Terri

Dec 24, 2015 7:52 AM

I go on small walks daily or try to. It seems to at least clear the mind and I love walking the dogs and with my husband. When I go out I learn my limits and I get the drive carts when I know it will be a big trip. I also can't drive more than local stores and as passenger have to remember my Loranzapam, pain pills and muscle relaxers. To focus on something I use the Waze app for map directions and then look for and report road issues (wreck, police, slow traffic, pot holes) seems like if I keep my mind busy while the husband is driving helps my panic attacks and takes my mind off pain. I have RAD (reactive airway disease) so the smells kill me and send me in to fits of coughing so I wear mock turtle necks out this way I can cover my nose with my shirt. I also gave up my purse as it was to heavy and carrying it on my shoulder was hurting my back. I discovered a wristlet holds my phone and money and cards then I have a car bag when needed. And then I try not to get myself all worked up over a longer trip (an hour or more 1 way) I use to stress because I know it takes me down for a few days now I just accept it and plan ahead.

Dec 24, 2015 7:58 AM

Amen,Sham.! I do the exact same thing, even looking at the Waze app.lol. I gave up my heavy purse and we limit my outings with time management. I am really encouraged when I read how others handle their daily lives with all of our issues and stuff! Love and Blessings, TERRI

Dec 24, 2015 8:48 AM

I usually get out several times a month. I have been making myself go to church even when I am in pain because it is a proven fact that spirituality helps with pain and mostly I want to be closer to God. So I try to work on that even though it hurts. But I feel better afterwards but still in pain. I just deal better with my pain. But going to stores, I usually do that maybe 3 times a month. I don't drive that much. I try to have my family drive for me because after my accident and my leg broke, it took several surgeries to repair it. They kept scraping bone away. So my right leg is an inch and a quarter shorter and it hurts my back to sit differently to make up the difference to push the peddles. So since pain keeps me home most of the time, Amazon is my friend. I do all my shopping there. I can't do long trips. They just hurts too much. I can't sleep in a bed anymore. I am going to put myself through a lot of pain though for my 25th anniversary. I want it to be special for my wife. So I want to travel then. I going to make it work somehow.

Dec 24, 2015 9:01 AM

Newfibrogirl, I know exactly what you are talking about. Due to severe anxiety issues I tend not to "plan" things because then my mind immediately starts spinning (OMG, what if I don't feel well, what if I don't feel like going, what if.. Blah, blah, blah). Then sometimes, I'll be getting dressed thinking I'll do something the next day and say, screw it, as long as I'm up and have a bra on, I may as well head out now and get it over with. That is what usually works for me. I am glad Christmas is at my house this year because when my Brother has it, I usually don't go. I can't get comfortable, it's a 40 minute drive (if I don't take my own car, I'll feel "stuck" so I have to be able to drive). That would mean I have to skip my meds to drive and then I'd only be there an hour or so and have to leave because I hurt so badly. At least at home, I can go to my room and close the door and not being down anyone else's day. Now, I am mostly home bound and go out to my doctor appointments and that's about it. If I want to do something else, it has to be for something I really want or need or if my folks need me to take them somewhere. Sorry if this is all jumbled and doesn't make sense. I'm pretty foggy today and with all the days of bad weather, my body is protesting... Loudly!! LOL!! Somehow I'm not so sure if my post was helpful.. I'm sorry. I'm trying to get my act together and get my ass in the shower. Gentle {{{Hugs}}} and prayers.πŸ’•πŸ™πŸ»πŸŒ»

Dec 24, 2015 9:07 AM

Thank you Terri! My grandmother always talked about the "golden rule" of treating others like I any to be treated. I hope you have a blessed day too! We are in a small window of storms right now, so we're trying to hold off going back out until it passes. Be safe everyone. And pray for the families who lost loved ones & their homes overnight in the storms! πŸ™‚πŸ™πŸŒΌπŸŽ„

Dec 24, 2015 9:15 AM

Shammagren, thank you for mentioning the waze app. I'll check that out! I've never heard of RAD. Scents affect me with coughing fits too. And your suggestions are great. I have a suitcase crossability please because of my epipen & asthma meds. Lol

Profiler, I miss church gatherings! My IBS usually makes it impossible to leave home before 12-1 pm. And I love Amazon! Happy Anniversary early!!

AlwayZ, there fog rolled in on me yesterday! I can't seem to function and get things done. Praying everyone enjoys the next few days, a outlet at a time!
(((Hugs))) πŸ™‚πŸ™πŸŒΌπŸŽ„

Ready to start relieving your pain?

Join Community