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How frequent do you see your GP / Specialists?

Jul 26, 2015 5:31 PM

I think I'm doing it really often but I think maybe it's due to my age at 35.

Every week, my GP wants me to go see her to do a review of how I'm doing with my meds. I only have enough meds to last me for 2 weeks at a time. I'm so sick of telling her how I feel each week, especially once I tell her I feel better with the meds dosage I'm on, she wants to decrease it right away....it was what was working for me and every week she seems to just wants to play around it. I feel so insecure telling her I was good when it was.

I would like to know how often do you have to see your doctor for a med review and how often do you go in for meds?

Jul 26, 2015 5:32 PM

Wanted to add also I have been in pain for the last 4 years...And in and out of hospital at least 2-3 times or even more when flaring during these 4 years.

Jul 26, 2015 6:10 PM

I see my GP a few times per year, and for follow ups if I get one of the 2 week stuck in bed illnesses. Specialists vary, it can be once and never see then again, or see them every week. One week doesn't seem like long enough to have figured out effects/side effects. Every med that's new, I get scheduled out a month or further.

Jul 26, 2015 8:12 PM

For me, when not in a flare up of MRSA, every 4-5 months for my PCP. Surgeon every 3-6 months(again, depending on if there is a flare up going on), ortho every 3 months give or take, infectious disease at least monthly here lately, pain management monthly.

Jul 26, 2015 8:16 PM

I know this may seem a little dishonest. But I don't view it this way. But if I am feeling a little better for a week or so, I don't tell my doctor. I don't want her to mess with my dosage of my medicine. I am able to take 15 mg of oxycodone four times a week. I don't think it is enough sometimes. but that is how I am suppose to take it. I also am suppose to take Methadone 15mg three times a day. Because methadone is so dangerous for overdose and death, I try my best to get by with as little as I can. i have overdosed on it twice. It was when I had a doctor who put me on too many pain medication that I was overmedicated. I was in a lot of pain still but I shouldn't have been allowed to take that much medicine. I was on 300 mg of Fentynal patches and 60 mg every four hours. But right now, Even though my pain is significant at times. About an 8 several hours a day but always a 4 or 5. I have been able to get by with lidocaine patches and taking 10mg once or twice a day because I am scared of it. and I try to get by with one dose of oxycodone. But there is many days during the month that I can't do that. I have to take the full doses and they wont help all I need. But if I told my doctor of the times I was feeling well, sure enough she would reduce my medicine. And with the scare on pain medication in the U.S,, doctors don't want to prescribe them anymore. I think that I would have a hard time getting them increased. So I think the only time I would say anything is if I was to feel good for several months. But I do try to take advantage of all alternative treatments to work on my pain so that they know that I am not just seeking narcotics. I am sure you all are the same way. I am just saying how I want my doctor to percieve me. I want them to seek as being active in trying to work on my pain. I hope you all are feeling the best that you can.

Jul 26, 2015 8:27 PM

I see my rheumatologist as little as possible because I hate his front end staff and my last appointment made me hate him too, so I'm at once a year right now. They have made so many mistakes with me and are so unprofessional, it's very hard to go back but I will because I'm FINALLY controlled after 6 years of meds either not working or horrible side effects.

All Dr will have different approaches but if you feel she's screwing you around, say something; get her to explain herself and if you don't like the answer say so or go to someone else. You NEED to make yourself heard and be proactive in your treatment and no it's not easy to do but just because they went to medical school doesn't necessarily mean that they know what's best for YOU.

I have fallen through the healthcare cracks soo many times and been so heartbroken to learn the truth is that a big majority of the people in healthcare don't give a fuck about us. It's just a job to them and they are not good at it. But once you figure this out it gives you a free pass to be blunt and annoying!! Yay us!! So you make multiple calls to make sure the reports were sent to your specialist, or that your MRI has been properly booked or speak up when your doc wants to stop the drugs that are working to try something experimental that has worked great in Sweden but has the side effect of making your ass fatter!!! Just, no!
Ok my little rant is over 😉

And I will add I have met some wonderful healthcare men and women. They help counter the ones I want to punch in the junk.

Jul 26, 2015 8:58 PM

I have type1 diabetes so I see mine every other month and my endocrinologist every other month. The neurologist every six months

Jul 26, 2015 9:01 PM

That being said my PCP is the only one who will prescribe me my lorazepam and Vicodin. I get exactly two a day of each to last just enough until the next appointment and I had to sign a contract. Crazy! It is never enough to alleviate the pain.

Jul 26, 2015 9:17 PM

I am please with the amount that I am on right now. My previous doctor was the one who overmedicated me. I just don't think you should tell your doctor you feel better right away when it has only been a month when it comes to being a month. I will say that I am getting breaks in my pain every now and then without suggesting that it has been a constant reduction until I know it is certain. I just reduce the pain myself. If they were really interested in knowing, they could look up when I pick up my prescriptions.

Jul 26, 2015 9:38 PM

I only see my GP/Family Doctor once a year for a physical or o get sick in the winter. I go and get my annual physical which consists of height, weight, checking the size of my lymph nodes, checking eyes and ears. Also BP and blood work up. I have a Medicare supplemental policy that is a PPO and allows me out of Network so my Neuro, Rheumy, Gasto, etc. without a referral and get taken care of it. Right now I'm dealing with intense pain on the lower left side of my back and it wraps around int my abdomen where my Neuro from years ago left wires in my spine and belly and said he couldn't get them out. Certain ways I move, I can feel them tear and it's very painful and I hate it. Hoping to get it removed along with those huge hunks of scar tissue to try and make it a bit better.

Jul 26, 2015 11:03 PM

Profiler, I think it's fine not to tell your doc that is working if there's a record of your dosage getting messed with.

Jul 26, 2015 11:42 PM

I usually see my PCP once a month or have a phone appointment. I too have a signed contract and must get drug tested/screened every 6 months to make sure I'm following my plan and not doing anything illegal. I would lose all medications if I fail my screens. I get exact amounts per month as well to keep me on track. The ER will often not treat me due to this as well.

Jul 27, 2015 8:34 PM

My PCP every 4-6 months. My rheumy doc & endocrine doc every third month. Pain specialist, for now, every three months. Other specialists every 3-8 months, depending on the last visit with them. 🙏🌼

Jul 28, 2015 6:40 PM

Right now every 4-6 weeks. It's exhausting keeping up with it all!

Jul 31, 2015 6:36 PM

Hmmm in my second post I was meant to say minimal 2-3 times a month! It's just crazy. Since my last appointment, I was given a script for my oxycodone 5mg, one morning and one night. I stupidly told her honestly I still have a repeat of my amitripline and still had 4-5 pills of my morphine 5mg which I had been taking 1 everyday that has worked for me. After last week I told her that on a need to need basis there wasn't any point in taking the morphine after I flare because it's useless, only useful to maintain my pain before flaring.

Despite what was said, she said she doesn't mind me having a dose of the morphine on a daily basis but during a flare when I'm desperate I should head to ER. I told her about me passing out twice because I took an extra dose which knocked me out and woke up with confusion. I told her honestly because I care and I really don't want to go through an addiction phase.

So anyways, since my last appointment, only 3 days ago now, I don't have my morphine pill on hand and I basically can't contain my pain levels. So after knowingly, she made a note she don't want to see me till I finish my oxycodone which is 2 weeks time. Zzzzzzzzzz last couple of days I didn't touch my pills because I really need it in case of emergency, it has been very long days and I'm just consuming so much Panadol and ibrufen to contain what I have now and still not functional to go to work.

I'm based in Australia, I'm not sure about the opioids law that binds the doctors in putting me into a long term treatment plan. I'm personally so sick of pulling my ass up there every week begging for what works for me and 100% sure that I'm on the lowest dosage possible. I'm so sick of myself being critisied by doctors when they are the ones whom I should trust and understand what I'm going through from all the sick patients they see day in day out.

It's been 4 years of weekly hospital visiting, don't they get it?!? Geez!

Jul 31, 2015 10:34 PM

Once a year for a physical unless I'm having surgery and then I have to go to him for clearance. The other docs are specialists and since I don't need any referrals, I just make my appointment and go.

Aug 01, 2015 7:44 AM

Octobot, is there a way to break your pills in half, or are they capsules? I break a lot of my meds, and the docs are ok with it. I'm just thinking if you could take half the dose it may take the edge of the pain you're in now. Sending you (((hugs))) & you're in my prayers! 🙏🌼

Aug 01, 2015 8:25 AM

Thanks flappy..I've used to do that when I'm really low, it just doesn't take the edge of when you are coming out from a flare. It almost feels like I'm going back to one. Thanks your concerns though, knowing people out there whom understands really helps. I'll just go straight to ER if I'm desperate, so tired of living in pain when I don't need to be if it's a quick fix. Well not living in no pain but tolerable pain...you get what I mean.

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