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How many of us use wheelchairs?

Jun 23, 2016 4:03 PM

Hi guys, just a question to find out how many of us use wheelchairs,Powerchairs or manual, or a scooter. whether that's full time, part time, and what is it that led to you having to use one, and how does it make you feel?

So me, I'm a full time Powerchair user, I'm quadriplegic so have limited use in my arms. I realise now that my Powerchair is just an extension of me, but initially I hated being confined to a chair.

Jun 23, 2016 6:33 PM

Well I'm use a chair for trips longer then 10 mins or distance lo get the. Half a mile. I use a cane all other times. I hate both. I'm getting use to the idea of the chair only because it's been longer thst I've had to get use to it but once my condition continue to deteriorate and the cane had to become a support for me. It has really taken a mentwl tole I feel I have to try and hide the cane or I wait til everyone has passed a d then I get up. I have cps and adbomal tumors which have attached to my bladder and spine. All of these things seem to continue to bring my health down. And I feel have to have excuses ready foe the ones who doubt my need for these things.

Jun 23, 2016 8:08 PM

Until January 2015 I could walk fine, just not without pain, swelling & fatigue. But suddenly out of nowhere I was unsteady with dizziness and tremors. I also became unable to walk for long periods without triggering severe shortness of breath/asthma. My doctor told me to get a cane & walker. I can never tell if it's going to be a cane day or a walker day though. If I go to the grocery stores or shopping places and there's a motorized scooter available I use them. Before I agreed to do so I almost collapsed on various family members who were with me. So I swallowed my pride and use them. My hubby says one day we will probably have to buy one; I keep hoping not. The fact that my hands have bad tremors, especially when gripping anything, people aren't as judgemental (as at first) but are actually offering to assist me to reach the high shelves. I stopped shopping alone last year because Im afraid I won't make it home safely. I also feel I'd be an easy target for criminals to purse snatch or car jack. πŸ™‚πŸ’•πŸ™πŸŒΌ

Jun 23, 2016 10:46 PM

I use a cane-chair or a knee scooter for most everywhere, definitely for anywhere longer than about 1 minute walk. I hate it but I realized that I only hate it when I think people will judge or I might run into someone. I tell myself "no one actually cares" and can push myself to get out on a good day.

Jun 24, 2016 6:36 PM

I do if it's too hard and long to stand with my cane. Always at an airport. I hate it, because I really need my leg elevated from my RSD, and wheelchairs kill my back.

Jun 25, 2016 12:03 AM

That's one of the things, most people don't care about the chair Nd genuinely adi if they can help........But!!! You do get the odd few that are either totally unhelpful ie: try to push you,or are just plain ignorant. That really is the minority though in my experience. Remember you have the right to fully use your mobility/adaptive equipment,so stick a middle finger to anyone who says otherwise (or makes "that face" ) 😊

Jun 25, 2016 8:02 AM

JAHMAC, if I lived near you, girl....me and you would have so much damn fun...i used a scooter a couple of years ago, just at the grocery store,i had a broken ankle , well....ummm....i swear, I tried.I kept running into problems , like steering, getting stuck at the end of a lane and not knowing how to back out...then when I figured it out, sounding like a dump truck ,beep beep beep, lol...I was a freaking mess...it may have be the pain meds.Thank God I was not "pulled"over...lol . So , I am such a dweeb. Put i can push a wheelchair pretty good though, I never hurled a patient out of a chair ..so I did good there...πŸ˜ƒ... I do think I need to have access to a cane these days, my left hip hurts more often than not and I am a little off on balance.miss talking to you...much love,Terri

Jun 25, 2016 9:08 AM

Terri, most definitely, I think we would be dangerousπŸ˜‚
I just wanna say, when I read some of your replies to posts on here, it always give me something to think about,I always try to be positive on here but, I am human and sometimes feel poo. Ad when I read some of your replies and others on here, it picks me up, even though it isn't a reply for me. I think we're quite alike... life happens, we have to deal with it head on. 😊

Jun 25, 2016 12:09 PM

Awe, thank you so very much for that compliment!!! It made my morning! I am sorry I have been out of commission, so to speak; in our fire circle and in here. I have had a hard time dealing with myself...lol. I feel more positive now, and feel I can contribute. Much love my European friend!!!! Terri

Jun 25, 2016 1:07 PM

😊😊, I definitely AM European! Very saddened about how our vote went to leave the EU. But life goes on. I'm glad you're back in a more positive place, sometimes we just have to go into hibernation and wait it out, then come back like the new flowers blooming in the spring!! 😊x

Jun 26, 2016 1:23 AM

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Jun 26, 2016 4:57 PM

I have fibromyalgia that often manifests with severe pain in my feet and legs. It feels like I've got broken glass in my shoes and my legs can be unreliable. I use a wheel chair on high pain & fatigue days. I love it! If it weren't for my chair, I would miss out on so much. No way would I have made it to every one of my son's basketball games last year. Have you walked through a high school lately? They're huge! Because of my chair, I got to go see the Christmas lights and Windows downtown last year with my family. My chair lets me go grocery shopping with the kids. My little ones (8&9) have learned to push the cart and that it's no big deal to ask for help reaching an item on the top shelf. My older teens have learned not to care if people stare, and how to spot a person who could use a helping hand.

Yes, my chair is as good as a flashing neon sign telling the world that I'm not 'normal'. You come rolling in and every single person who sees you is going to know you've got some sort of problem. But so what? I do have a problem. I do need extra help sometimes. That's no reason for me to hide away. If I have the energy to travel and roll along, I'm there!

Do people stare? Yes. So what? The vast majority of people are good and kind and willing to help if I need a hand. They're not judging me. They're curious. Heck. When I see someone in a chair, I'm curious, too. And if I happen to meet one of the rare people who does judge and is rude, well why would I care what that kind of person thinks of me anyway?

My chair protects me in crowds. I can be easily hurt just being jostled in a crowd. My chair eliminates most of that danger. As a result, I can safely attend activities I might otherwise skip. As an added bonus, there are often shorter lines for wheel chairs that allow me to skip some of the exhaustion that comes from waiting.

If I had to choose, I'd pick a strong healthy body every time. Since I don't get that choice, I choose to make the most of my life with the body I have. That means using adaptive technologies without embarrassment or resentment. I am profoundly grateful for my chair!

Jun 28, 2016 7:17 PM

I think if you use a chair part time, it's important that you do have access a chair, it's the whole pacing game, if you save yourself energy by using your chair to go into town or grocery shopping, it means that later on you may have the energy to do the......'whatever' it may be. It's really important to tell yourself 'right, I need to take a break' save some of that energy and potentially prevent a flare up that probably would happen if you didn't use a chair!!😊

Jul 17, 2016 2:51 PM

Are there any others who use wheelchairs,walkers or some sort of mobility device on a part time basis or full time basis? What do you think about having to use them and how does it make you feel? 😊

Jul 17, 2016 3:56 PM

I was in a manual wheelchair for 1 year and 8 or 9 months. I hated being unable to walk and it still frustrates me that I cannot walk very far. The only reason it was a manual wheelchair and not a power chair is because the NHS wouldn't pay for the purchase or rent of a power chair and I couldn't afford it. It led to my already bad shoulder issues getting far worse. I am now out of my wheelchair and can walk somewhere between 800 meters and 1 km but if I try to walk further I will collapse.

Jul 18, 2016 12:15 AM

It is so important to keep yourself out of a chair where possible,if you're an par time user, it means that you have the chair for those days when things are too much,but the other days you Pace yourself. The NHS would not provide a Powerchair unless you were a full time manual chair user(meaning in and out door) and there is a list of about 10 other things that Must apply for someone to need an EPIC/EPIOC Assessment.(Electric powered indoor/outdoor chair). I'm in a Powerchair from the NHS but I'm Quadriplegic so have no choice, let me tell you, you don't want a Powerchair unless it's absolutely medically necessary, I'm working hard getting into my manual chair, this is one of my goals, I've used it quite a bit now but my hand function and tri's and biceps have reduced in tone and capability recently, so I have to work hard on those before I'm allowed to get back into trying my manual chair.

Jul 18, 2016 1:04 AM

I 🐧 use my chair when i go out to town or on longer trips... πŸͺbut i make sure im wearing killer shoes, well i cannt walk... ⚘so i decided to wear those stripper shoes... the ones peeps like us cant walk in! I get some funny looks... but mostly people compliment me!🐫 Its my way of sticking my middle finger up at the chair... and now its not so hard getting in the bloody thing... cos i get a reward...πŸ‘ wearing my shoe-porn everytime i have to use it!

Hugs πŸ€— to all... hope u had a safe weekend 🌹

Jul 18, 2016 1:37 AM

Love it Lulabel 😊

Jul 18, 2016 1:43 AM

Getting my feet tattooed on friday too... cant wait to see how pretty my tootsies are gonna look then hehehe x

Jul 18, 2016 10:24 AM

I've got a big Maori tattoo on the front of my right foot, had it done before I was paralyzed... I should take advantage of no feeling and get my whole leg done..πŸ˜‚

Jul 18, 2016 10:39 AM

Omg yea... u should. I however enjoy the pain as it distracts my mind from my usual pain load 🌸🌸🌸

Jul 19, 2016 2:57 PM

Lulabel, you rock those shoes girl! πŸ˜‰

Jul 20, 2016 10:14 AM

Hi, I walk around at home with a walking frame. I have an NHS power chair for when I go out somewhere. I have Progressive Hereditary Spastic Paraparesis, CRPS, Chronic Pain Syndrome, Osteoarthritis and Lymphedema. Unfortunately I'm classed as being complex. I started using a manual chair when I was 19 and I was confined to it for that first year and I hated it. I value my independence greatly as I am gradually losing more and more of it.

Jul 20, 2016 4:03 PM

I use an electric chair at only 28 X

Jul 20, 2016 4:57 PM

I own a chair. I need it when I have a fibromyalgia or ME flare. It's very difficult to accept.

Jul 20, 2016 5:51 PM

I've been disabled since birth but my parents always insisted that I did not need a chair. In 2010 I went against their wishes and got a prescription for a rigid manual chair. I then went to the closest trauma hospital wheelchair clinic. I was able to borrow a couple different ones for a few days each.

The PT, wheelchair specialist and I decided on a Quickie Q7 w Spinergy wheels. No arm rests. The L wheel is slightly more forward than R to accommodate different arm strengths.

With wheels and cushion it weighs 27 lbs! I love it! The body fits in the back seat of my Coreolla(sp)? And every thing else fits in the trunk.

Getting the chair has opened the world to me. I still use my braces/canes for short distances but do things like mall or clubs etc I take the chair and become more independent than ever before!

Jul 31, 2016 12:27 PM

AspirewithAmy you're lucky hun. I started using an electric chair at the age of 19. I am age 40 now.

Sep 03, 2016 10:14 AM

What make of wheelchair do we all have??

Sep 06, 2016 5:28 AM

I know JAHMAC, at the time when we were thinking of a powerchair, we thought that I was stuck in a chair for life. I can now walk a bit and use crutches and a manual wheelchair for anything over several hundred meters. I still think it's bad that the NHS can't help me a bit more because my family are low income and I need a spinal suspension but I can't afford to rent a chair with spinal suspension so I just have to use a normal chair and hope.

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