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How much more before I collapse?

May 24, 2015 6:51 PM

Fibromyalgia flared its ugly head again, right in the midst of trying to adjust to the new thyroid meds and too much fatigue from the Sjogrens issues, and the tremors.

We took a ride to see my dad yesterday, one day after the sciatica flare calmed down. My dad's going to be 85 in June and he been diagnosed with Alzheimer's. Sadly he beginning to struggle remembering and recognizing faces of his grandchildren. I showed him a pic of my two daughters at one's graduation from college, and I could see him struggling to figure out who they were.😒

In the past 2-3 weeks my fatigue has been horrible, and I've actually been having my hubby drive all the time he's been home and not working. I've also been using electric cars when available and bought a rollable walker. I have to say it's easier and less staining on my back than using a cane. πŸ˜₯

Anyway, my dad's 90 minutes away and of all things we ran into a 35-40 minutes construction delay so we were in the car 3-4 hours round trip. I was so tired when we got home I don't even remember going to bed.😴

I didn't wake up until 9am again, second day. But the minute I tried to get out of bed... Fibromyalgia stiffness! I've struggled all day, even after a shower. We had to go to the grocery store and pet store and I'm exhausted. They've got to get my meds right or I'm going to literally collapse in public one day. Other than to doctor appointments I won't go shopping alone because I can't get through the stores and back to the car and then unload it all. My hubby is worried, I'm worried. I'm too tired and getting weaker every week. Keep me in your prayers!! πŸ™πŸŒΌ

May 24, 2015 6:53 PM

***electric carts & rollator walker

May 25, 2015 2:15 AM

Awe sorry to hear that your in pain hunny. I too have the beloved fibromyalgia 😑. My meds have been cut in half as there trying to wean me off them! Pregabalin (lyrica) since halfing them since last week my migraines have came back with a vengeance 😒 and never sleeping for more than about 4 hrs a n8ght because of the pain in my legs and the keep locking up and cramping! I also suffer with my spine and awaiting facet joint injections and hoping they work. Hugs hunny x

May 25, 2015 8:40 AM

MrsFlossy, thank you! I'm feeling some better this morning but still stiff if I'm stationary too long. We'll see how the day goes when we get out later to go see my mother in law. Usually my shower and hair drying wipes me out, at least the past two months (about the time I found out I had hypothyroidism and possibly Sjogrens). I seethe endocrinologist tuesday and I know she will run labs to check the levels, and she may change the med levels.

I'm sorry you're going through the meds weaning at the same time of your other issues. I also have chronic degenerative disc disease all down my spine. I've had facet blocks and other epidural steroid type injections, and they gave me a lot of relief, but I had a series of three at each level. It took two years to do two rounds all down my spine but it lasted about 15 months. I need them again at my neck for migraine/cervicogenic headaches, and the lumbar/sacrum area now. But he won't do any because I'm too go to Mayo clinic to figure out why I have tremors (began February). He said the injx could mask the cause. I hope your injx give you relief. You may have to get more than one series to give long term results. We all know it's only temporary, but every little bit helps.

I had severe insomnia and restless sleep and used ambien for nine years. They had to wean me because I was dependent and couldn't sleep at all. At the same time they did a genetic test and found I don't absorb B Vitamins. My psych doc has me on deplin for the vitamin issue, and he said it can affect my sleep and various health issues. But he ran blood tests and kept increasing my antidepressant until my blood levels were right, and now I only wake to use the bathroom. Are you on anything for sleep, or an antidepressant? (We all are probably suffering depression and anxiety from all the health issues!)

Prayers and hugs for you too! πŸ™πŸŒΌ

May 25, 2015 10:21 AM

Flappsy, first, let me say, I am so sorry for what your Dad is going through. I know it can be so terribly painful to watch someone you love so very much struggle to recognize those they love and love them. My heart goes out to you and I send you gentle hugs and my love. I am sorry that you are having such trouble with your health. I think that some of it stems from stress as well as these rediculous and weird weather patterns of late. This week in NY it's going to be very warm but raining and humid and I am already having bad effects from it. They eye infection is bad and my ear, sinuses and throat are hurting and I am now carrying a low grade fever. I am in the beginnings of a fibro flare and I'm dreading it... We both know it only gets worse before it gets better. I am going to, as always, keep you in my prayers and hope that your doctors can get the medication issues sorted so that you can feel better. Hang in there, I'm with you, my friend.

May 25, 2015 7:00 PM

Thank you AlwayZ. And I'm praying for you. I'm in the chair relaxing before trying to go to bed. We had another active day today and I'm worried about the consequences tomorrow. I have to many doc appts this week and I can't cancel or reschedule any. I dread it! Sweet rest for you and all of us I hope and pray! πŸ™πŸŒΌ

May 26, 2015 2:41 AM

Hey hunny thanks for the well wishes! I've uped my meds to help me and it's helping with the migraines and legs at doctors today and going to tell her about it! Awful having to live in pain! Hope you're feeling better soon x

May 26, 2015 2:46 AM

I also have chronuc migraines, spondylosis, osteoarthritis, loss of disc height, bulging discs in multiple places, and osteophytes! No I'm not on any antidepressants hunny and none sleeping meds either!
I am on pregabalin (lyrica ) oxycodone, oramorph when needed and was on naproxen but thy don't help so said oo stop! I think I may have sjogen too as my mouth I super dry my voice keeps going , I can't speak all of a sudden my mouth is that dry I can't do anything like speak or my tongue gets stuck to roof of my mouth! X

May 26, 2015 7:00 AM

Mrsflossy, you may want to try using low dose melatonin to help you sleep. It's a natural occurring chemical in our body, but with illnesses such as all of us have it's sometimes depleted. You can buy it anywhere, and I'd recommend the 3mg. Other than that is say ask your doc for a rx of antidepressants and/or sleep aid. Some antidepressants also affect the pain signals in our bodies, reducing our pain slightly while we sleep.

I hope you get some relief soon. Have a blessed day! πŸ™πŸŒΌ

May 26, 2015 11:25 AM

Awh flappy, I hope Fibro leaves you alone awhile

May 26, 2015 12:51 PM

Flappsy I am so sorry that you are going thru all of this. I know how hard

May 26, 2015 1:06 PM

I'm feeling slightly less stiff today so I'm hoping to keep improving. Thanks to you both!!! πŸ™πŸŒΌβ˜Ί

May 26, 2015 1:11 PM

Oops !! I accidentally hit the wrong button on my phone. Like I was saying I know how hard it is to have a parent with any form of Dementia. My sweet mother had Dementia brought on from strokes she had three bad ones and she had TIA'S frequently. She had minumal sight it was best in mornings,and gradually got worse as the day went, she eventually stopped talking unless we asked her something and she would only say one or two words, she was still able to walk with assistance but was very unstable. She went to a Salvation Army Adult Day Care Mon-Fri. One day in May 2000 her aide carried her to the bathroom left her to go and get a diaper in the stall next door someone told their patient to stand up and Moma stood up and fell she broke her hip. They operated on her the next morning and she never woke up she lived for 7 days before she passed on. It is a hard thing to watch your parent to go away and you know they won't be back, their whole personalities change, into people we sometimes don't know. I will keep you and your family in my prayers.

May 26, 2015 1:18 PM

I'm sorry flappysLady but you are in my prayers everyday as well as my c.m.p family

May 26, 2015 8:58 PM

Weezie, I'm sorry about your mom. I had to watch both my mom and her dad (Pawpaw) slowly fade over a period of 10 months. Both had congestive heart failure after heart attacks. I wish some memories of those last days would fade with this stupid dementia I now have, but they're burned into my brain like a hot branded calf. Unfortunately too is my dementia affects short term memory. Bittersweet memories.

Thanks Eddieray. I'm trying to rest as much as I can but having so many appts in one week doesn't help. And the down pouring rain I had to drive home in made me tense up. I feel for areas that have flooded! We had a flood in'04 that was a centennial record breaker... Like Texas right now.

Hoping and praying for a very restful night for all! πŸ™πŸŒΌπŸ˜΄

May 27, 2015 3:17 AM

It doesn't get any easier like you said Flappsy bittersweet memories . Thank you It's storming right now, I can't remember it ever raining this much here in East Texas, my yard is like a swamp it's rained so much we are having roads washed out it's terrible. I heard last night we are going to have this for two more months. I don't know where all of the water is going to go. I know God Knows What He Is Doing By Sending US All Of This rain.

May 27, 2015 8:20 AM

Weezie, our news this morning started being in a southern El Nino (from S. America), and though our hurricane forecast is low the whole southern USA, coast to coast should expect a lot of rain even into winter. We all may be floating down streets in boats by winter! I'm so thankful our house sits up off the street level where our front yard slopes down. Our back yard sometimes floods but it stays in the center where diseased trees were taken down and the ground sunk down, so the rain doesn't come towards the house.

My all over achy pain is increased due to the rain and heat, but at least it's not as bad as last week. Wishing a tolerable or pain free day to all! πŸ™πŸŒΌ

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