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How others understand your pain.

Jun 12, 2014 1:41 AM

I get really angry with some people who say they understand how you feel but actually they don't. People at work make snide little comments about that I don't or can't do certain jobs. When I explain they say yes we understand, then why say it in the first place. Or others, because im not in a wheelchair or constantly use my crutches they think im ok, but inside im in agony. Do others have any experiences like this, or im I just reading into this too much.

Jun 12, 2014 11:28 AM

yes. my coworkers think I'm on and off drugs thanks to the fatigue and fibro-fog. my family think I'm bipolar. It breaks my heart and no matter what information I print out, people don't believe what they cannot see. On a positive note, connecting with others who suffer from "invisible illnesses" makes me feel like it's not in my head.

Jun 13, 2014 12:44 AM

Well im glas it isnt just me. I have osteoarthritis in my knee and bursitis in my hips. Perhaps we should wear a placard saying this lady has a debilitating condition with no outward symptoms. Do you think that would help them understand.

Jun 15, 2014 10:14 PM

I'm full fibromyalgia with depression and anxiety. I thought about a very visible tattoo stating something like "Fragile, handle with care" or a purple ribbon on my right hand. Are you still able to work?

Jun 16, 2014 1:53 AM

I still work full time, but I have to say its getting harder and harder to. Why cant people be a bit more understanding. Its like "oh god she's moaning again" . So now I don't bother saying anything at all. The people who care know ehen im in pain because I go very quiet, the others think ive got mardy head on. Xx

Jun 17, 2014 5:45 PM

Just do the best you can ,do not push it ! See a pain specialist get the help you need. Gw

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