Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

How to choose new doctor for FM

Nov 03, 2015 12:52 PM

My current doctor diagnosed me with FM, IBS and migraines. However she tells me I am just depressed and causing myself to be sick. I need a new doctor who takes me seriously. And someone who may help me with disability. I also live on the Illinois side of the quad cities and medical marijuana will be available very soon for sale. I would also like a doctor who will help me with that process. Does any one know of good doctors in my area for FM?

Nov 03, 2015 1:48 PM

Try a rheumatologist. I'm in Texas but maybe that will give u a direction in which to go.

Nov 03, 2015 3:09 PM

I agree with cearea..I went to several other types of doctors but when I went to a rheumatologist I was officially diagnosed on my first visit. I would also suggest to bring along any and all medical records you have or can get when u go. So that the new doctor can go ahead a d get a full picture of what u have been through medically.

Nov 03, 2015 3:36 PM

What about a neurologist? Do think that would be good as well?

Nov 03, 2015 4:37 PM

We don't have a decent neurologist in the quad cities but I do have appointments with gastro specialists, a rheumatologist, and dermatologist coming up in November and December .

Nov 03, 2015 5:31 PM

It's treated by rheumatology in the uk, so I'd go with them

Nov 03, 2015 6:57 PM

It's the same in the states. The gastroenterologist won't be able to diagnose fibromyalgia and neurologists don't tend to believe it exists even though they say it's overactive nerves. Funny how a neurologist doesn't believe a nerve problem exists huh?

Nov 03, 2015 8:43 PM

My rheumy referred me to a pain specialist for the fibro. But she's treating the sjogrens. 🙏🌼

Nov 03, 2015 9:06 PM

Gastro doctor is treating me for post infection IBS. So while helpful, it's doesn't do anything for the FM.

Nov 03, 2015 9:09 PM

I have a gastroenterologist for IBS & GERD & pelvic floor dysfunction that affects my bowels. They stay strictly on GI stuff. I'd say try your rheumy first, but if they won't then be prepared with some names of pain specialists, so your rheumy can refer you. Our Neurologists don't treat fibro here. They stick strictly to brain and nerve diseases like Parkinson's, ms, and such.

Nov 03, 2015 10:05 PM

My Neurologist is treating my Fibro as well as sleep apnea.

Nov 04, 2015 6:22 AM

That's good Weezie. The neurologist who sent me to Mayo didn't even want to be bothered with me coming in for a follow up, on rx he gave me. He had his nurse call and say my pcp can do my meds and since her already dx what Mayo dx I didn't need to come in.

For some reason, at least around here, if you aren't visibly physically symptomatic, they don't want to be bothered. I've been passed off from one doc to another for the last 2 years. If they don't immediately know the answer, rather than continuing to try and find out, they pass me on to another. And I'm not the only one around here that's having this happen.

I actually got to speak with a patient advocate RN yesterday on my back. They suggested going back to a chiropractor since the Ortho nor Neuro says there's nothing needing surgery and they can't do anything for me. I told her they didn't want me to see a chiropractor. She said, "well they haven't helped you, so it's your choice now. ". 🙏🌼

Nov 04, 2015 6:34 AM

A neurologist actually diagnosed my fibro and my CRPS/RSD. My pain specialist is treating it all.

Nov 04, 2015 6:34 AM

I'm sorry your doctors don't listen, that is a pain in the rear! Glad you got an appointment with a neurologists as he/or she should be able to help you with your migraines, pray they will listen to you! I was blessed that my daughters neurologist listens to her even if she is a kid. I will be praying for you and that your upcoming appointment's are successful and that they actually take the time to listen.

Nov 04, 2015 7:13 AM

At this point no one is treating my pain/FM beyond the lyrica my PCP gave me. She says I am depressed and although she diagnosed me with FM that I am doing it to myself. It is beyond frustrating. I have been asking for a referral for six month before she would finally set it up for me.I am really hoping the rhumetologist is helpful.

Nov 04, 2015 7:21 AM

Keep pushing the pcp to get you that referral to the rheumatologist if they haven't gotten it for you already. Never let them drag their feet on letting you see a specialist to diagnose and treat things that they can't!! I hope that the Rheumy you're going to see is kind, listens and is willing to go the extra mike to figure out what's going on with you and how to treat it. Sending you {{{Hugs}}} and prayers to pull you through this. 🙏🏻🌻

Ready to start relieving your pain?

Join Community