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Humorous ignorance ( kind of long sorry)

Dec 29, 2015 5:44 PM

So its been over 24 hours since I've slept been in severe pain for two days now. I had some business errands to run today that had to be done. I took my sister with me so I would have an extra person to help me think.
Once we got back home which before that I was so tired I had forgotten inhad driven to her house so we picked up the car and headed back to my house in which my calls to tell me that dad had fallen and the ambulance was there. ( dad is OK he was checked out by home nurse and emts)
So while we are sitting trying to catch our breath my sister says oh she thought indid not notice ( referring to me) we walked in a dollar tree and down the walk to another store. And walked around that store.( it was small too,smaller then dollar tree) . she was referring to the fact I was not in visible pain. She is seeing this as an improvement since in Walmart or large stores I have to use the cart.
So the point she was making was that I'm walking more and I'm not in pain anymore. Little does she know I was in horrible pain. Plus exhausted but i had to get the errands ran not to mention the walking I did was stop and go and I was leaning on the shopping cart.
I find it funny that they look for every opportunity to say I'm not hurting anymore. But if they only knew how much pain I was in and the reason I choice to walk to the next store was because it would hurt more to get in the car an out again then it would have been to just walk down to the corner.
I love how my family is hopefully that I will someday wake up all better. But I really wish they would teybto understand how hard I work to hidy discomfort from them. Not to mention the stress of my dad being hurt and the stress that was surrounding that. Since mom was allowing dad to refuse treatment. Even though he had a half dollar sized gash in his head. ( dad is a double cancer patient on blood thinners)
so me, my sister and our neighbor were all vetoing this. It was maddness. Dad was not able to stand and had lost the ability to move is lower half for a few moments. So I was in a panic but yet still trying to not show my frustration.
So this whole day and all I got done and they just don't get how painful it is. Oh..and my sister earlier after running stairs like rocky at 50 yrs old her leg kind of clinched out a few times. And she was comparing her Charley horse to my pain when I loss control or feeling in my leg. I wish she knew how insensitive that is.
So sorry maybe I'm wrong.. But this was a heck of a day for me.

Dec 29, 2015 6:12 PM

It hurts when our own family is insensitive self centered jerks.....oops did I just type that...well its true, sometimes they are only concerned about you when it " affects" them. Sorry , just had to release that thought...Newfibrogirl, I completely understand!!!!! Love and Blessings ,Terri

Dec 29, 2015 6:16 PM

New, I also completely understand where you are coming from. Hugs.

Dec 29, 2015 10:56 PM

Newfibrogirl, I understand where you are coming from. It's like kids on the playground comparing boo-boos, of who's got the biggest or deepest or bloodiest one. Sometimes I agree with Terri, that it comes from them being insensitive and selfishly focused on themselves, how we affect & impinge on their lives. Then at other times I think it's pure ignorance & blindness, maybe a little from unwillingness to believe we won't improve. I'll never forget the look on my hubby's face when he commented about being glad when I'd get well enough to go back to a normal life without taking all the meds. The doc whirled around on him and told him he must not understand that these conditions I have are forever here to stay, that I'd never get better not would I be able to live without the meds. After that visit he became my best advocate, but occasionally I still have to yank on the reins when he makes stupid comments. Lol πŸ™‚πŸŒΌπŸ™πŸ˜·

Dec 29, 2015 11:35 PM

Sorry your day was so stressful.
I get that a lot too, especially when I need someone to do something for me. The most common one is writing, where everyone seems to say "here, have a pencil" and I get to explain all over again that yes, I can walk now, no I cannot use a pencil! But most don't get it, or forget.

Dec 30, 2015 1:31 PM

Sorry about the nasty remark yesterday about self centered family, I was having trouble with with a particular issue with my parents... Thank you for not judging me , I have had a painful two months with my mom and dad... I am sorry I let it out in that way. I am working on it. Love and Blessings, Terri

Dec 30, 2015 1:46 PM

Hey Terri..no worries I had no problem with your remark. It's OK. I took no offense to it. Sometimes I feel that way about my family. And I feel bad for always talking about my family here. I don't want people to think I have a bad family. But they do get on my nerves

Dec 30, 2015 2:09 PM

No problem Terri.. That's the great thing about this group we can speak openly as long as its with love. .so me and you golden... Thank you.

Dec 30, 2015 6:48 PM

I have a "friend" who likes to compare my fibromyalgia to her broken tailbone. I just smile and nod most of the time, but I want to scream at her. She tells about how it hurts when it rains or if she sits on it wrong.... I know it hurts, broken tailbone are no fun.... But I hurt ALL THE TIME, ALL OVER!! It's worse when the weather changes, the wind blows, the moon is crooked, the neighbor's cat is smiling or just whenever and always. There's no reprieve no cure no end. It's not a competition but I want to smack her when she says things like, "oh yeah, I know what you mean, it's just like when I ..... " no it's not!!! She even says really thoughtless things sometimes like, well, when you get over this.... Or, if they fix your back you won't have anymore pain problems, right? Or, my favorite, you need to be more positive and I bet it'll get better. Oh yeah and the latest one: take turmeric, it fixes EVERYTHING! She doesn't come around as much anymore because it's not as convenient to be my friend. She's like all the rest. But she's still trying to fake it by every few months asking if I need to go to the store. Am I being too demanding to ask for quiet sympathy not competition or pretend understanding?? Is that more than I should ask? I miss the old me too, but I can't just ditch myself, much as I'd like to... I miss having friends to hang out with as much as I miss being well.

Dec 30, 2015 7:17 PM

Oh phoeix..I know that right. Heck no its not to much to ask. I would also love to just be heard. Not to have a compation on whinis hurt more. Or if I would just do......

Dec 30, 2015 7:32 PM

New, Phoenix- I understand, and have family who likes to compare their every ache and pain to mine also. Hugs!

Dec 31, 2015 5:20 PM

New, 0hoenix I get it. My husband always says. "Its all in your head" man do I wanna slap him when he says that. They have no idea what we go through on a daily basis. I love that I found this group.

Happy New year!!!

Dec 31, 2015 5:41 PM

Amen....... determinedtobeatthis.......

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