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Hydrocephalus & Spina Bifida

Mar 25, 2018 3:17 AM

Hi my name is Brittany,I am new to this app & would love to get to know people that have hydrocephalus &/or Spina Bifida,I have been having headaches for 10+ years now & I have been seen by so many drs for them but no one can tell me what is causing them,I see a new neurologist/neurosurgeon April 24th

Mar 25, 2018 8:29 AM

I don't have hydrocephalus or spina bifida. But, I do have Tethered Spinal Cord, which is closely related to Spina Bifida (and depending on the specialist - a form of spina bifida). From my understanding of hydrocephalus, it creates pressure within or around the brain, which would cause headaches.

Mar 25, 2018 1:47 PM

Yes it does (pressure) I have a shunt that is meant to drain off the fluid from my brain....& I’ve had one since birth

Mar 26, 2018 2:27 PM

Welcome Brittany and I hope you find out the cause, that is a long time without any answers!

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