Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Hypokalemia... Anyone else familiar with it? Still doing tests to find out why.

Jul 20, 2014 8:16 PM

Hi there,

I was diagnosed with critical Hypokalemia (low potassium) in the beginning of June. My doctor decided that in order for me to have a level of 2.2 and not be paralyzed, or to have gone into cardiac arrest, my potassium had to have been depleting over time. I've gone from 10mg of potassium supplements and high potassium intake during the day via juice and/or food, with an increased level to only 3.0; to then 20mg/same diet, with an increased level to 3.1; to now 40mg/same diet, with only an increased level to 3.2. My doctor has determined that since taking the supplements my potassium should have balanced out. So I either have a kidney or hormonal disorder.Given the constant pain I have with my back, chronic headaches, and the unexplained water retention, with my kidney tests coming back normal, my doctor has decided to test me for Cushing's disease.I won't be able to see a nephrologists until November.

I was wondering if anyone else has had experience with critical Hypokalemia, and how you deal with it on a daily basis just to get through your day. I had plans to train for a Spartan race, but can't even walk up my stairs without feeling like I ran a marathon. So, I'm trying to find ways to get through this to achieve my goal.

Also, I haven't gotten the test results back, but if anyone is familiar with Cushing's, or have other reasons for your Hypokalemia, I would love to get any input you might have. :)

Thank you in advance... <3

Ready to start relieving your pain?

Join Community