Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Hypothyroidism

Sep 08, 2016 8:02 AM

Ive been diagnosed with hypothyroidism for nearly 2 years now. ...ive had it longer i get intense burning pain in my hands and feet followed by extreme weakness in my hands and wrists as well as painful crampy shins. Any ideas?

Sep 08, 2016 11:15 PM

That's normal unfortunately, have your estrogen and vitamin D checked as well. What mg thyroid med are you on? Do you have leg spasms? I have hypothyroidism and fibromyalgia it's super debilitating. Hopefully your seeing an endocrinologist.

Sep 09, 2016 1:09 AM

Not seeing anyone other than my gp. I take 100mg and all kinds of supliments including vit d

Sep 09, 2016 8:21 AM

I was taking vitamin D1000iu, found out it wasn't enough my calcium was not letting it absorb. They put me on 50000 iu of d3 once a week. If your estrogen and d3 are low it will cause those symptoms can't hurt to have it checked.

Sep 09, 2016 8:23 AM

No not all thank you

Sep 09, 2016 8:25 AM

I couldn't imagine having these health problems 20 years ago no cell phones no Internet. Your welcome have a blessed day. πŸ™‹πŸ’ͺstay strong.

Sep 09, 2016 6:10 PM

Getty do you have alot of swelling in your neck, if so how do you relieve it?

Sep 09, 2016 7:19 PM

I'm the same as Rachel, but my thyroid is damaged. My PCP didn't want to treat even though all other doc's said I should be on meds. My psych sent me to endocrinologist.

Sep 09, 2016 8:54 PM

You are same as me, only now my endocrinologist wants to do there own evaluation, meaning take me off my levothyroxine cold turkey for a month just to recheck my level herself. 2 days off my leg is throbbing and my neck is swollen not fair. I have fibromalgia also and osteoporosis I'm only 41 it's tough. All stems from my hysterectomy when I was 20.

Sep 12, 2016 4:12 PM

Oh that's got to be tough! I'm sorry. I'm 54 and had my hysterectomy at age 34. I don't have osteoporosis but I am osteopenic (just before). I'm sure you'll have lots of negative affects from being taken off. I had another doc tell me my adrenal glands were not functioning. So I went to my endo doc. She ran blood tests then an adrenal gland function test. It was fine, the other doc overreacted because he tried to put me on these meds, but I wouldn't take it until I saw the endo doc. Your doc is just trying to be thorough. Hugs love and prayers for strength and reduced pain while you go through this! πŸ™‚πŸ’•πŸ™πŸŒΈ

Sep 13, 2016 1:04 AM

I dont get any swelling in my neck and i dont see an endocrinologist. I have just had another set of bloods done including vit d and hormone levels they have all come back normal😲😲 and yet ive got out of bed this morning and my left hand wont close or grip anything????. Ifeel like i am just whinging at the docs

Sep 13, 2016 9:11 AM

That's awesome thyroid checked out good. Both my wrist have hurt the last 3 days also not sure why since I have fibromalgia and osteoporosis a rheumatologist won't see me until fibromalgia is cured. Maybe you should talk to your doctor about rheumatologist or osteoporosis doctor. Nothings helped my wrist other then sleeping on a ice pack and Epson salt baths. Try soaking wash rags in Epson salt and wrapping around your wrist. I hope you feel better.

Sep 14, 2016 5:36 AM

Rachei
I don't understand your comment about a Rheumatologist not wanting to see you until your Fibromyalgia is cured? There is no cure to Fibromyalgia?!! Also usually a Rheumatologist is the person best to see because they usually diagnose Fibro! Just confused?

Sep 14, 2016 11:06 PM

Hey Gerty, I also have hypothyroidism and when mine acts up it's hard for me to swallow or I feel like I have to cough to clear my throat. I never knew that it could affect your leg's like that! My leg's can get very restless sometimes, I just learned something new! Thank You!πŸ˜ƒ I see my GP for my hypothyroidism and my rheumatologist for my Sjogrens syndrome, I take Vitamin C every day I was taking B-12 but my levels were to high so I had to stop taking those. I will have to look into the vitamin D through, I am learning a lot about something I really knew very little about except for the name. Thank you for the information on this, it something I should have already knew about and been brushed up on! Love, hug's and Prayer's for a brighter and better day's ahead!πŸ™πŸ’–πŸŒˆπŸ’πŸŒž

Sep 15, 2016 5:27 PM

Yes Anna that's correct, that's the reason I was upset with my endocrinologist for telling me this. Moving from Tennessee to New Mexico I am having to replace 6 doctors one being my rheumatologist when I mentioned this to my new endocrinologist that's the statement she made to me. Since then I have been able to find and make an appointment with a new rheumatologist and a new center 4 life.

Sep 15, 2016 6:45 PM

Rachei
I am so sorry you are going through this! If it's not one thing it's another! It's hard enough going through pain and fatigue and everything else but to add all this BS with your doctor's man that's terrible! I hope things get better for you!!πŸ™ƒ

Sep 15, 2016 6:51 PM

Thank you so much, I'm fortunate to have this support, I appreciate the help and support. If there is anything I can do to help others feel a little better I will. ❀️

Sep 16, 2016 12:32 AM

I'm 4 generation of hypothyroidism and Hashimotos. I also have fibromyalgia. Try a warm 15 min or longer Epsom salt bath. Keep track of the pain mention it to your Dr. Unfortunately there is no medical blood test extra for fibro just pin points your Dr. Will check. If insurance allows see an endocrinologist for your thyroid! Take your pill one hour before you eat. Make sure to drink a full glass of water too. My pharmacist years ago said to wait 2 hours before calcium. Also read thyroid sexy on FB!

Ready to start relieving your pain?

Join Community