Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

I am new here

Dec 01, 2015 1:50 PM

I have been involved with chronic back pain for 20 years. The last ten have been a living hell. I had to quit work, on disability now. Either I am home, or at a medical facility. We have done everything known to man to resolve. The nerve damage put me on catheters now. I have both a neurostimulator and a morphine pump. The pump improved my life considerably. I have been house bound for four years. Lost contact with the world. I don't like being around people now. My wife is a saint.

But it all changed swimming in a hot pool. That strengthened by legs and core muscles without causing pain.

I lead a blessed life. I have a good long term disability package and I was approved on my 1st attempt with disability. More importantly, I have faith in the future.

I want to help others that are scared and suffering. That's why I joined this.

Dec 01, 2015 6:47 PM

Welcome aboard our community Clwinbe! I'm sorry for all you have gone through. Each of our circumstances are varied, but we bond because we all know chronic pain. Most of us, like you have very little to no interaction with the outside world, other than family or medical professionals.

Over the past year I've averaged 6-12+ appts each month. It's gotten old very fast and I'm so tired of this phase of my life, but I refuse to give up. I've accepted I'll never improve to return to work, but I would like to improve so I can occasionally go out and enjoy more than 30 minutes without being bedridden the next day or two. I may have false or unrealistic hopes, but without hope, what's left? My psychologist is working with me on this "realistic" goals. Lol.

Anyway, welcome. And I look forward to hearing of your experiences and guidance for others. Itoo feel blessed in many ways, compared to others here. My hubby works so we don't struggle as many others do. He's also a very good supporter for me. And my faith in God is my strength. 🙏🌼

Dec 01, 2015 8:37 PM

Welcome to our support community Clwinbe. Although our stories are all different, we all have Chronic pain and are here to support, listen to, laugh with, and cry with each other.
God be with all of us.

Dec 01, 2015 10:03 PM

Welcome! This is a great place to feel like you aren't alone. The chronic pain is different for each of us, but the faith of some of us it's what the others really need. To point them toward God or anything that May give hope our inspiration is reason enough. As you well know, CP is sometimes a very unpredictable part of life. The support here is just what I have needed. I haven't posted much, but I still appreciate everyone here. Keep the faith! The plan is not our own, but we just can't give up. Keep up the LOL strengthening. :-) :-D

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