Anyone else have bouts of a sudden onset of extreme weakness and fatigue, as well as shakiness combined with pulsing nerve pain all over. Fingertips are on fire! My whole body is so weak that I can't walk! My eyes can't hardly stay open! It has taken probably 30 min just to type this message! I feel my nerves jumping all over my body. I have stinging everywhere, even my tongue?!! Please! I don't understand what's happening to me! This happens just out if the blue from tome to time. I can be fine one minute and the next I'm I'm from head to toe, nerve pain and debilitating weakness! When I see my Dr tomorrow, he will probably think I'm crazy.
My body gets that weak when I over exert myself, like walking too much or picking up too many things, my legs will give out and I can't move my body until I relax some. Just be open and honest with your doctor and hopefully he will understand! I hope you get some answers from him tomorrow! Good luck!
I get the extreme fatique and weakness although I normally sut before I fall. Yesterday I felt pretty good when I got up so I made lunch deep cleaned the coffee pot and finally unpacked my car from when I moved home. Yes it's taken me months. But once I came from low 40 temperature I just lost all focus I layed down and the next thing I knew it was four hours later. I have had the stinging nerve pain but mine comes more with emotional upset or physical stress. I've also have fallen several times and gotten sudden shakes. I was told bit was a sugar bottom..but lve tested to not be diabetic. So they tell me to keep candy or something sweet with me all the time. Also if the Dr says or gives u the impression he thinks he crazy find another Dr. I'm do over these people thinking they r somehow better then us just because they still live their lives pain free. You pay him to treat you . he or she works for u. If ur not happy with the job performance you fire them.plan and simple..
Thank you for your replies. I don't feel alone with this. My neuroade me feel like an idiot when I'm sure he could see that I was desperate to have answers that made some sort of sense to me. Not going back to that jerk again. I didn't need that. I see my rheumy tomorrow and my hubby said he's going with me. He hasn't gone but to one other rheumy appt with me, so I think this will be good for both of us.
Sleeping, yes I have felt that way more times than not. Your doctor shouldn't think your crazy, not if they understand the illness/disease. There are times where my eyelashes hurt, that's when I know the day will just be horrible!
Anniesgt, my rheumy seems to understand and sympathise with my having fibro, but prefers for me to see other specialists and just treat the RA. He and his partner are the only two rheumitologists in this area. He has sent me to neurology and a physiotherapist. The neurologist was a cocky jerk, (the one mentioned earlier), and I never actually saw the Dr at the physiology office, just the therapists and a nurse practitioner who only wanted to give me muscle relaxers, more pain meds, and homeopathics that I could not afford. My insurance didn't cover the cost of them, and my family Dr told me that she should have never given me all that mess to take if she'd only looked at my meds, she would have realized the negative effect of them combined with what I already take. I was really messed up bad for a while. He was so angry at her told me that if she had any qualms about it, to call and talk to him personally, lol. I love my family doc. He's a good one. I just wish all of my drs cared as much. I really don't know which way to turn. I feel like I'm left hanging to deal with this on my own, because I can't take muscle relaxers without spending most of my time in bed.
I have most of the same symptoms, and am currently using a wheelchair for the last 3 months. You should try keeping track of your heart rate and blood pressure. I've found that lying flat on my back for about 30 minutes my HR is about 90, sitting up it's 120, standing (using a standing frame) 150, walking (using a rollator) 180, and when I have to crawl up stairs around 200 after half a flight. I've heard that fibro can wreak havoc on your autonomic nervous system like that. When I was taking prazosin 8mg (a blood pressure medication that I was using for PTSD nightmares) my symptoms were much better. It may not relate to your case but keeping track of those numbers is a good idea anyway.
Sleepingbeauty, I'm sorry you've been experiencing these symptoms. Like several others, doing too much causes over fatigue, and except for the tingling nerves I feel pretty much like that. I oppose you were able to find out something today. (((Hugs))) & prayers! 😷🙏🌼