Hi again guys, I've had so many flare ups lately, I think my pain is starting to deteriorate and get worse again. How do you guys cope? I just can't anymore. I can't wait for physiotherapy any longer when the sixties and my mum think it will get Rid of my pain "magically" but i know it won't.it might help me walk but that's it. I can't and I'm sorry for posting this
Reece, Do not be sorry for your post. Anyone living with pain has hit this point at some time. That is why communities like this one are so important. Those who are not in our shoes do not understand. They do however what to help. They do not want to see us in pain, so they pin their hopes on the next thing. As to how to deal with your pain it may not seem like it now but you will find a way. That is how I get by. Everyday I educate my self a little more and work to make my self a little better. You can do this.
Reece, never be sorry for saying what you're feeling. This is a good thing to get off your chest because then it gives us the opportunity to tell you how some of us cope. I sometimes put on old sitcoms and try to get distracted. If that doesn't work, I put on soothing music and I sing. I'll warm some lavender oils so the smell soothes me, take warm showers and wrap up in a nice quilt. Sometimes I cry, sometimes I get angry and rant, sometimes I even have a pity party and get mad at myself for allowing myself to even think I'm any more special than anyone else and why shouldn't I have these issues if God feels this is my path. Hang in there. Show your Mum some of these posts so she can get a better handle on what you're going through. Also that this is NOT going to be gotten rid of... It's something you're going to have to live with and use every resource at your disposal to educate yourself and find tools to help you cope. Good Luck, Reece. We're all behind you!!!
Reece don't ever sorry for saying how you feel we here have been there and like said before me just hang in there tell and show mom what we've said and hopely she will see your side and get you to some help Keep us posted we on your side
Oh Reece, it kills me to think of you going thru this. If one of my kids were going thru what you are i don't know what I would do.....I would be crazy with worry. But I think I would be like that because I live with chronic pain and understand what that means. I think that Alwayzinpain's suggestion to have your mom read some of these postings is a great idea. It might give her some insight as to what you are feeling, physically and mentally. In 2014 I came to some kind of 'inner peace' that what I am going thru is my reality for now. Not that it is easy every day but told myself I would try to do the best I could with each day. But I don't come close to the level of pain that you have ....know that I care about you. 💐
Reece, it is so good that you posted. This community is amazing. I have followed threads by a few of those posting here before me & their insight, wisdom & genuine caring is apparent.
Living with chronic pain is not only raging to the body but to the mind & spirit as well. One thing that I've done that's helped me is to get therapy. Pain is draining & there are times that it's more than we can handle, even with the most loving people around us. Therapy is helping me find coping techniques for the times you find yourself in now.
Whatever piece of advice you follow, just remember that the people here genuinely care about you & how you're feeling. Hang in there & keep posting.
Reece, Don't apologize for your feelings. That's why we have this site. We've all been where you are. As a matter of fact my past week hasn't been my best. But don't worry about tomorrow, for it will come soon enough, even the next hour. Just focus on getting through the moment you are in. And distractions (movies, books, video games) may be a help. Take every day one step at a time. I'm praying for you.
@Deena I've asked for therapy 1 billion times, I've had it for anxiety and depression with no success and my hospitals keep telling people to help me but it never actually happens (NHS).
I was at an appointment tia 0 and guess what GOOD NEWS! !!!!! I'M PATIENT F**KING ZERO of a new condition/programme. I'll make a part about it tomorrow or when by pain is okay and my mind is less fuzzy
Reece , just do what you can when you can, and be satisfied with that; knowing that you did what you could do…
You need not apologize for your post nor an inability to perform like you would like to, Or even perform like those who look at you and can't see anything wrong with you so they expect that you can do what anybody else can do don't fall into that trap I think that's a trap that all of us fall prey to at some point or another but be satisfied with yourself; You can't control what others think.
Please, hold on and be happy when ever you can for whatever you can be happy about.💐🌻☺️
Reece, I feel for you and with you😒 never apologize for expressing how you are feeling that's why we are here to listen and support each other. We really cant blame others for not understanding if they have never experiened chronic pain. Even those in our lives that try to understand simply can not. So, we get our support from online friends, and yes I consider you all friends, this is a safe place to really express yourself and we will do our best to support you. It is ok to roll your eyes at all of the suggestions that we use when trying to cope but when you feel a little better give some of them a try. We really do need to care for our mind, body and soul. I have been trying to cope with pain for 20+ years so I have experienced some pretty low times but just know that there will be better days😎. Hang in there. My two cents...be the best you can be and be ok with that for right now and always keep trying to do what you can to be as healthy as you can.