Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

I could use your help

Dec 26, 2018 11:47 AM

Hi, i’m Iris and 21 years old. I’m new here.

I’ve been diagnoses with MS since 2016.
Recently i noticed that walking is getting harder. I’ve tried different thing to keep my leg muscels stong and engaged but nothing really helps. My nurse suggested that i should think about using a cane to help me on hard days. I’m not trilled about it, because i’m so young and a cane is mostly used by elderly people.
What do you guys think.
I’m kind of lost...

Dec 26, 2018 7:09 PM

I think you should go for it. I started using a cane last year (I’m 19) and it was definitely weird at first but I just got used to it. I won’t lie people stare and it’s uncomfortable at times but being able to get through those rough days made it worth it.

Dec 27, 2018 9:47 PM

My husband is only 37 and, due to a broken leg and subsequent problems, he's had to start using arm crutches. It sucks, but it's been a game changer on his pain. Do what helps get thru the day. That's all that matters!

Dec 28, 2018 12:36 PM

I’ve been cane shopping today, really weird but when i went for a test walk it was great! It is a portable one so i can put it in my purse when i don’t need it 💪🏼 thanks for all te support you guys!! ❤️

Dec 29, 2018 2:10 PM

Look into the Wahls Protocol book. I know several people personally that that has changed their life for the better.

Dec 29, 2018 5:33 PM

I'd recommend trying EMS (Electrical muscle simulation) if it is affordable and available where you are along with various physiotherapy exercises. Using a cane can be very helpful and I've had to use various walking aids at different points in my life but I like to take the view of exhausting every possible treatment or therapy (as long as it isn't unsafe or too risky) in order to prolong your timbre walking without aids and then subsequently to prolong your time walking with a cane etc. This is just the way I personally wanted my treatment when I needed help with mobility, when it comes to it, you have to do what is right for you because that is the only thing that matters 😊

Dec 29, 2018 5:45 PM

A cane is definitely a good way to go. A friend of mine has been using one since he was about your age & it has made his life much easier. Nobody thinks it is weird, they just assume that he needs it 😊

Dec 30, 2018 8:13 AM

It is weird to walk around with one because most people don’t know about my MS diagnose, so it a chock to them. It been not even a day it helped me so much!
I still do my muscel therapy and everything but my balance is better and i don’t trip as much

Dec 30, 2018 7:26 PM

Hi again Iris, you said you aren't tripping as much, have you had any falls or are you managing to catch yourself before you fall?
I'm also interested in what treatment you're taking for your MS at present? (Only answer if you feel comfortable to of course). I only ask this because although I don't have the condition myself I have met a lot of people who do at the specialist neurological hospital I'm treated in. I also often find out about lots of treatment regimens from them and whilst each person is very different in terms of they respond it's can be good to know about

Dec 31, 2018 5:43 AM

Why do people always say that? That would be like saying “only elderly have strokes” or “only the elderly have eyesight/hearing issues”, I use a wheelchair and I am only 39, I used walking canes at one time and not once did I think “oh only old people use these”, no, I was like “Give me those, I want to keep walking”, used a walking frame for a bit too (oh that’s right, only elderly use those too).

Sorry if I sound harsh/abrupt, I am just sick of the agest b.s that goes around about Mobility aides.

Dec 31, 2018 10:48 AM

IrisP,. Sadly there are all kinds of stigmas, biases, and labels that some people can't live without, they are going to just regardless. As I've gotten older I've learned to give them no thought.

I'm 57 and I've been using a cane and a rollator and an old fashioned Walker, as well as motorized carts in stores for over 8 years. Other than OA, DDD of my spine, migraines & random minor issues, I was pretty healthy until 2008. But I developed a mass that caused many overlapping health issues (autoimmune & others) & surgeries so I'm now disabled. I've gone through strength and balance training which has helped me fall less often, but having 4 separate issues that affect my balance now I'll always run a risk of falling. At first I was reluctant to use a cane or Walker but after being in public places a few times people really didn't pay attention. Ive have to use them daily for months now due to deteriorating health problems. I gave up worrying about what others thought because they may judge on the surface but I no longer care about their opinions.

I know being much younger than me it probably makes it harder for you to be comfortable with it. But you have to do what's best for you. I can tell you that walking without a cane is more difficult and painful than when I use one. And on really bad says I use my Walker or rollator (I don't use it when having vertigo), and can tell they make it even much easier to walk on my legs because some of my body weight is distributed through my arms to the Walker, reducing pressure/weight on my legs, knees & feet. I went online to canedepot.com and ordered a cane that fits my personality (has birds on it). I also found out a "York" style handle puts my body weight directly over the shaft of the cane, which also helps maintain my balance. I added a rubber foot to my cane that helps too, because the little round tips just didn't work with my hand tremors; too easy to slip on various floor surfaces. It also allows my cane to stand beside me without falling or having to be propped.

Do what you have to do and remember you aren't alone. We are here for each other. Hugs love & prayers! 🙂❤🙏🌼

Jan 02, 2019 11:01 PM

FlappysLady81, where did you get your tip on your cane? I’m always either having my cane fall because it slides off a wall or chair in a restaraunt etc. Or having to hold onto it while reaching for something in the supermarket . I’ve thought of getting a tip like that but was afraid I’d lose it ( the cane) Also a rubber tip tends to slip in winter. I did get a metal prong put in for ice. I’ve been using a single tip cane, a quad cane (4 legged), a walker and electric cart since I was approx 30 years old and am turning 65 this year. I’ve long learned to not care what others think, but realize at a much younger age how important that was to me then. So I understand ArialZebra your feelings. How bad would you “look” though if your stumped over in obvious pain. If the cane helps you then use it. There is an old saying “ walk a mile in my shoes.” If others were in your situation what would you tell them knowing the pain you suffer? Good luck and Gods speed!

Jan 04, 2019 8:38 AM

I ordered my first one off Amazon, but now most stores that carry canes also carry these or similar tips (CCS, Walgreens, Walmart etc).

Jan 06, 2019 12:40 PM

@TiredInPainNInsane my treatment consist of my meds ( tecfidera) and physio therapy. I trip more then i should. I try to keep my diet clean but it’s not always easy. I’m looking for different types of meds . I forget to take them alot so...

Jan 06, 2019 12:43 PM

@Tyboe i totaly get you but i don’t reallt need one to ger around. I just need on bad days to release the pain in my leg.

I hope you still have a lot of fun and smile alot!

We support you!

Jan 09, 2019 7:55 AM

I started using a cane when I was 31 (I just turned 33 last month), and yeah, it's weird at first, but it's a game changer. Definitely look into one with a palm grip handle. They're the most comfortable, IMO.

Jan 11, 2019 4:44 AM

@IrisP that's a pretty strong drug. Do you mind me asking which type of MS you have and how many (if any) relapses/remissions you've had?

Jan 17, 2019 9:37 AM

One of the others above suggested Wahls Protocol book, the author has MS and is a doctor. A lot of people on my support groups use it. It is a game changer.

Feb 02, 2019 3:45 AM

I use a forarm crutch. I like it much better than my canes. Also called a Canadian crutch. I have a rubber band around the cuff, so it stays on my arm. Then I can do stuff with my hand.

Feb 02, 2019 6:03 PM

Anyone living in west LA with pain should come to laserMDpainrelief go to the website

Ready to start relieving your pain?

Join Community