Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

I didn't realise it wasn't supposed to be like this

Mar 09, 2017 8:22 PM

Recently, my pain started getting worse. I started being more vocal about it, because I'm a whiny extrovert who talks to process things. And people told me that I shouldn't hurt the way I do.

I assumed it was just because I'm getting older. Which is a bit silly, i suppose. I'm not even 20 yet. I just thought that aging meant steadily increasing pain for your whole life, and that I was being a baby about it.

I'm not in anyone else's head, so i can't really know if I'm in lots of pain or if I'm just really bad at coping with it. Sometime I wonder if a stronger person would be able to push through this, and not let it bother them at all. There's a lot I'm just in too much pain to do now, and I find that really scary. I'm scared that it's psychosomatic, or something is really wrong. I don't know.

Mar 09, 2017 9:12 PM

Tez, I can definitely understand how you are feeling. I have been dislocating my shoulder since I was a baby. The doctors all told my Mom that it was our imagination because shoulders didn't dislocate that easily. Forty-three years later I was diagnosed with Ehlers-Danlos Syndrome. We weren't crazy, I actually was dislocating my shoulder, knees, ankles... At least once a year (sometimes one a month, or even more often). Now, at 46, both of my thumbs sublux (dislocate then go back in) every single time I move them.

Sadly, I am sure that you are not imagining your pain. I didn't know that pain wasn't normal until I was in my 40s.

Mar 09, 2017 9:26 PM

Tez i was told it was growing pains till i was in my twenties, problem with that is I never grew again after 14 lol. Wasn't till i got older that docs started actually looking for the cause of my pains. I'm 47 now and just got diagnosed with MS

Mar 09, 2017 11:39 PM

Totally get it. Been in some sort of pain since I was 8. Blown off by drs for years. I've always hurt so this is normal right?? Then sept 2014 I started losing function on right side. Dropping things. Muscle weakness. Told Dr about the aches and pains. But the weakness got attention. Was always acute sinuses, growing pains, stress, overweight.... Then 15 yrs ago DX with hashimotos disease. When finally saw specialist in may 2015, the ball started rolling. Fibromyalgia, CFS. And since then the following had been found... Anemic, vitamin d deficiency, degenerative disc disease (retrolythesis, stenosis, radiaculpathy, foraminal narrowing and 13 ruptured, torn or bulging discs in all areas, schmorls nodes, thoracic myeopathy), thoracic syringomyelia, rayneaud's disease, menieres disease, migraines with aura, chronic intractable tension headaches, hemiplegic migraines, hortons syndrome (cluster headaches, TAC including SUNCTA/SUNA) and waiting on results of seizure disorder testing. Also PTSD, anxiety, depression and familial tremors. Always thought all this was normal. Be 44 this month

Mar 10, 2017 8:45 AM

The best thing to start off with would be a complete work up by your physician. Keep a pain journal so that when you discuss what's bothering you, you are prepared. I'm sorry you are in pain and pray that you can find some answers and relief.

Mar 10, 2017 1:50 PM

I didn't realize my pain was abnormal until it started becoming difficult to walk. And even now I constantly question myself, like "am I just being a wimp about it?" "is this amount of pain even feasible?" "it'll probably just get better if I do _____" "I'm probably just making it up" "everyone has painful periods/headaches/joints, I'm not special" and it took a lot to get me to go to the doctor. Then once I was there they wanted to send me to the emergency room (cause hip pain so bad you can barely move the joint is taken pretty seriously by everyone except for me, apparently). So I definitely see where you're coming from, especially in regard to age ("I'm too young to be in pain"). It's really difficult to know what normal is as far as pain goes, since everyone has a different pain threshold/tolerance, but if you're in pain everyday or most of the time, there's something wrong.

Mar 10, 2017 3:40 PM

What they said! LOL 😂 We've all been there! They could be telling my story, a few different acronyms, but been there, got the tshirt. Just DON'T drink the water! LOL Pain is NOT a normal, daily, way to live! That said though, some of us have no choice. What other people don't seem to ever understand in my book is, THERE IS NOT ENOUGH SPECIAL TREATMENT in the WORLD to make up for the lack of life and daily grinding agony and other constrictions placed on your existence to make up this ALL in OUR HEAD BS or CHOSE to LIVE this WAY.

I have had daily chronic blinding migraines and cluster headaches for 23 almost 24 years now and recently got on a treatment that gave me my first pain free day in 15 years...(migraine free) I had other pains) but I then had almost 3 days and started thinking abput going back to school and training in a new career and restarting my life! I was so excited!!!! It didn't last, but just being able to think and have some hope for that time...reinforced what I was pretty sure of, no WAY would I EVER CHOOSE THIS!

Ready to start relieving your pain?

Join Community