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I don't know what the next step is...!!!!

Nov 30, 2015 7:53 PM

I was diagnosed with Fibromyalgia a few years ago. Right after the diagnosis i lost my insurance. The pain is soo bad now that i am losing soo much muscle mass, strength and stamina which seems to be deteriorating daily. I take otc meds but that is a lost cause...i work 10-14hrs a day until 2 weeks ago when i had to let go of some hours which means i let go of money to survive....it is a vicious cycle. But the pain is just constant and debilitating. Does anyone have any suggestions on how to get ins and where do i go when i do get some ins. I guess the real question is WHAT IS GOING TO HAPPEN TO ALL OF US I. ANOTHER FEW YEARS....??? How are we suppose to survive when we can't provide for ourselves ...??? I am truly getting very scared for myself and does it just keep getting worse bc i dont know how much more i can take of this excruciating pain..CONSTANTLY. ..!!!! ANY advice or help in the right direction is soooo desperately needed and appreciated. Thank you all in advance. I am new here and this is my first post.

Nov 30, 2015 8:12 PM

I'm sorry I don't. I'm dealing with this similar thing. Today I learned I've got change insurance plans since my current one is no lo get available. And the only plan close is twice as much. I've not worked in a year and can not work according to the doctor. My disability hearing is 15 months away. Sorry to dump my issues like this. But your post hit a nerve. I can say as far as getting insurance there is the market place. That's the fastest way although fast is relative. I spent two hours on the phone and still done have a new plan. But its worth a try. I would also try and suggest you stay as calm as possible while you go through this. I know its hard. My fibromayalgia is connected to my emotions also so any fluctuation in mood causes extreme pain. Blessing to you.

Nov 30, 2015 8:19 PM

Ya know i have always been tough and very strong mentally and physically. ..this is just getting to me soo bad that i truly dont know what to do about it...how to stop it or how to deal with the fact that my life is gonna be like this forever...bc everyday is a real struggle. Although i do find comfort knowing that i have finally found people that honestly understand and sympathize with each other. Thank you all soo much for that. And thank you for just being there and all the advice and support.

Nov 30, 2015 9:23 PM

Welcome to the community Jillrk! Newfibrogirl's suggestion of the Healthcare Marketplace is a good place to start for insurance. I'm sorry to hear you've had to cut your hours to get through the work day.

I left work in 2010 for surgery on a pelvic mass, thinking of eventually return to work. Five years and 6+ additional medical problems later I'm unable to work at all. I'm waiting for my disability hearing, 15+ mos away. I had to start using a cane this year for dizziness & imbalance, but sometimes need my rollator or electric cart. My hubby has income so we aren't struggling as bad as some. But I wish I could work.

I was unable to do any exercise from July 2014 until June 2015, due to asthma, allergies, and heart issues. I was completely deconditioned, and I've slowly been doing treadmill walking, increasing time and/or speed when I could. It's still a slow progress but it's better than nothing. I'm using stretches and stretch bands to try and retain some strength. Not exercising actually hurt worse than it does not.

Try not to get focused on years to come. Just focus on one step at a time, one hour, one day. While you work, try and find ways to cut back wherever you can. I downsized our TV program, cell phone plan, etc. I even refinanced my car for an additional 3 years praying more in the long run, but it decreased my car payment so we could afford to keep it. Without my job we couldn't have otherwise. We stopped giving birthday gifts and Christmas gifts to extended family. I looked for every way I could save $ and we made the changes. The grown kids are told "sorry but we can't help anymore." They're now learning to be independent & proud of their own finances. While I worked they always had their hands out for one reason or another. I wouldn't see them go without a real need, but my health deterioration and loss of income has changed them to be responsible for their own families. It's hard to say no, but when it means we don't have bread and milk...

My siblings, older than me, got insurance through the HC marketplace. They're minimum wage income. Check out our and see what you can find. Good luck & Good bless! 🙏🌼

Dec 01, 2015 12:35 AM

Hello Jill, I've always been a very strong person, with a high tolerance to pain; but this has really kicked my butt. I actually say that mother nature is using Mr as her boxing body bag for practice because that is what it feels like...horrible and I have the random, unexplained bruises to show for it too.
As of now I am still able to work, though my doctors are not happy that I push myself so much, and work through the pain instead of taking care of myself. Stubborn? ! What I'm trying to tell you Jill is don't overdue it - take care of yourself first. Try the HC Marketplace for the insurance, or go to your county offices and see if they can help- that's what I tell my patients.

Dec 01, 2015 2:58 AM


My advice right now for you is to use this app and mark down as much information as you can.

Secondly, seek advice from your specialist and say otcMy local gp here didn't really give me any diagnose till I reach the 6 month constant pain period before they took me seriously. I hope that doesn't happen to you or anyone else for that matter. Request scans and all, especially now, when you've been actively working for long hours. Don't wait till the point where you can't function and then to only be taken seriously when by that time you've lost your motivation to work and have no income for your medical bills. Please request to see a specialist or get some scans done asap. Even if it's at your own expense. Cut down on some luxury stuff if you have to. The earlier the better.

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