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I don't know what to do anymore.

May 08, 2017 9:02 AM

I've recently been diagnosed with fibro even though I know that I've been suffering for years. Right now I work 35 hours a week and I'm also a part time student. In the last year or so I've been getting worse just in every aspect possible. I've been having to miss work, either from just being to exhausted that my body just shuts down, and I sleep for most the day, ibs related stuff, or migraines. The list goes on. At this point I'm at a crossroads. I love my job and everyone I work with, especially my very understanding bosses who I've been very open with about what's going on. My dilemma is do I continue to work and try to push through, in the hopes that maybe something will make me feel better, or is it just something I'm going to have to accept that I might not be able to do anymore. I'm going to school to for another job anyways, but now I might be heartbroken if I'm not able to manage this enough to do that in the future. It's just really hard. What are some things that help anyone manage on really bad days?

May 08, 2017 9:10 AM

This is a tough one. I have Fibro too, IBS, arthritis etc. I worked part time too but missed so many days that I knew I wasn't a reliable employee. That mad me sad. I finally had to retire. Thankfully I have an understanding husband and we are able to pay our bills. Stress is one of the worst things for pain. If you can stop, relax and take some deep breaths. Try to relax. Acceptance doesn't mean you have to like it but that it's just the way it is. I am a prayer person. I try to pray and ask Him to give me strength. I take naps and keep on my regular schedule of meds. Chiropractic, massages, heat and ice. That's the best I can do but sometimes it just sucks. We are tossed around by weather fluctuations, stress etc. hang in there shmegs. We all understand and are here for you. ❤️🙏

May 08, 2017 9:14 AM

Thank you so much. I'm definitely trying to pray and give this to God as much as possible. I knew I had pushed myself to hard this weekend, I just hardly ever give myself the rest I need and that's difficult too because I have so much on my plate. I see the doctors again next week and the week after, so I'm hoping they can give me a little more about what's going on, because they also think I have an autoimmune disease. So it's just been a lot of waiting and just going back and forth with how I feel.

May 08, 2017 9:21 AM

For me it helped when I finally was diagnosed. I thought I was losing my mind because I knew how I felt but no one could figure it out. After I was diagnosed I sought out help. I was persistent with the docs cuz I had to be. Seemed like no one took it seriously. Then the acceptance part was a process too. I had to go through a mourning process cuz I was so used to doing everything for everyone. I had to realize that I can only do what I can do on a given day. Sometimes it doing nothing. After I finally accepted that this was my new life I seemed to calm down some. I begin my prayer in the morning. It seems to help my day go better. More so than if I do it later in.

May 08, 2017 9:30 AM

I definitely feel like I'm losing my mind. Lol. It's like so hard to explain how I feel. I see both my general and my rheumatologist in the next two weeks so I'm just trying to hold out. I will definitely just keep praying through this, and also I will send lots of prayers for you and everyone suffering from this. I didn't really know how much it was going to change my life until recently. I thought maybe I would just get better once I started doing everything the doctors suggested, but it's like hit or miss everyday.

May 08, 2017 9:31 AM

Prayers for you too honey! Let us know how your doctor appts go. 👍

May 08, 2017 9:32 AM

Thank you I will! Today I took for rest so I'm going to make sure to utilize it well.

May 11, 2017 7:51 PM

Maybe you should talk to your doctor about taking lyrics. It's for the nerves. I have peripheral arterial disease. I'm a type 1 diabetic and through the years of not taking care of myself my nerves aren't doing good.
Well I hope this helps

May 12, 2017 1:22 PM

Thanks so much :)

May 18, 2017 3:37 AM

I'm have always been independent. I have a career that I've worked do hard to obtain. However, now I'm unable to function. I'm in the industry that there is a zero tolerance for errors. So to prevent from making mistakes, I've taken time off. In my industry it takes years to build a customer base. If Im ever able to continue, its like start from zero. I have a husband that supports our family. However, working gave me a sense of accomplishment. I've learn that you can only do what your body allows. "Listen to your body"! If you push your body it may worsen your PAIN.

May 18, 2017 1:22 PM

Thank you MochabaRee. I've noticed a lot of people have significant others, as for me, I ended my 3 and half year relationship, so I'm totally supporting myself right now. I have the option to move back home, but I'm going to be 28 soon, so it doesn't sound ideal. But I know if I need to I will. It's just confusing. I've finally been having some good days so it's like oh I can do this, but I know the good days aren't always guaranteed.

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