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I feel useless

Aug 30, 2017 8:30 AM

Since I was diagnosed with Sjogrens I have allot of days where I can't do anything, this month has been one long flair and my poor husband works his honey off outside and then comes in a does the dinner dishes. I feel so useless! I know I have the conserve my energy for having to work the concession stand on Friday night.. every school year I am always busy having to do stuff for the band booster committee since I am thier secretary so it's safe to say that even though I am just the secretary, I have been doing allot of the other officer's work to because they have job's and I am a stay at home wife/mother so I could get more work done. But when heading to use all my energy for that I am so exsausted that all I can do is crash on the bed and not move. I sometimes wonder what my husband thinks... Does he think I'm just being lazy? Or does he really understand... Either way I hate it.. I Like to try and get things done on the inside just like he works hard on the outside.... My house isn't dirty, just have clothes that are hanging on the back of the chairs that needed to be hung up. And maybe vacuum the floor again. Ugh I hate this!

Aug 30, 2017 8:38 AM

Be gentle and patient with yourself. You are the priority, not all that extra stuff. So take care of your self first and feel good about your decision. It does not matter what other people think about you. That is their problem.🤗

Aug 31, 2017 4:02 AM

I work 2 days a week and it takes me 5 days to recover enough to be able to work again. I get anxious if I am not feeling good and I put pressure on myself to be well. Two days kills me. How can I explain that to people?

Aug 31, 2017 7:09 AM

Peep that's a tough one. If we had an arm hanging by a thread people would understand but since we "look fine" it's hard to explain and hard for others to understand. Would it help to tell people you have some ongoing health issues that totally wear me out? I sometimes say that. If they ask what's wrong I just tell them it's too much to get in to.

Aug 31, 2017 7:12 AM

I totally get how you feel! I feel useless a lot of the time! I can't work at all as right now I'm struggling to get up without fainting. You need to look after yourself and also remember your doing the best you can and your doing great! I will be thinking of you 😘💕🌸

Aug 31, 2017 3:42 PM

I am trying to be "normal" but it's getting harder and harder. I was on Plaquenil but it made me insanely itchy so I had to stop. It made me feel much better and I thought I was getting better. Now I have to try sulphasalazine. The change in meds is sooooo hard.

Aug 31, 2017 7:58 PM

@Sjogrenspain77. No way are you useless. 🤗🤗 you do the best you can with what you got 😊 your hubby sounds amazing.
Take care of yourself. Everything else well line up in place in time. 💕💕

Sending prayers your way. Stay strong . 🤗🤗🤗🤗

Aug 31, 2017 9:50 PM

Am so sorry i have been AWOL neighbor. We need a lunch date soon. I need time away from my chaos and time with a friend. You are never useless hun. Your famiky depends on you being there. Even if you can't physically do things your love and support is what they need and hold on to.

Sep 06, 2017 5:31 AM

I want a job and see other people completely healthy that do not want to work that upsets me

Sep 07, 2017 6:54 AM

Sorry I was AWOL as well, haven't much slept in 3 day's, let alone eat much. Stress of things with my parents and my dad being in the hospital and this stupid hurricane that is headed right for them! Brother is a first responder so he will be out in that mess! I to work the football game band concession stand tonight and tomorrow night it's going to be a very long day. Hopefully my body will hold out, I'm usually at the school at 4 and don't get home until after 10 pm. I have to meet with the vendor to get the supplies dropped off and then onto Sam's club for the rest of the stuff. I must admit it will be a good distraction. I hope that you all are having a blessed day and it is a pain free day!

Sep 07, 2017 7:11 AM

Wow full load! Prayers for you and your brothers safety and all who help.

Sep 07, 2017 8:03 AM

I with you on that. My husband does everything working, cooking ,washing, cleaning,..... He says he understand but I know he is irritable and I get it. However, when I'm not in pain I will do what needs to be done. Sometimes he washing and fold clothes after my front room looks like a nightmare. He doesn't fold clothes correctly and he leaves them on our couch until he wants to put them away. Or he will leave recycling stuff on the kitchen counter. It drives me nut I start try to refold clothes and put them up. I start throwing the empty containers in the recycling bin in the garage. It gives me anxiety so bad. So when im having a good day im cleaning the house and everything is going in the garbage if its not in its proper place. #OCD I know my husband is irritable because he has to take on a lot. However, I didnt everything including wrk before the fibro pain.

Sep 07, 2017 5:03 PM

Sounds like a really good guy you have. 👍👍👍

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