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Sep 22, 2016 12:03 AM

Hi everyone. I have been told twice that I have fibromyalgia. I didn't even believe in it the first time I saw a rheumatologist and was sure I had arthritis so I asked to be seen again a couple years later. Still the same.. FM. After reading more about it and since I have every symptom I finally believe! I have been off work for stress and major depression for several months. Actually, I can't imagine working again. Some days I can barely walk! I'm curious if I could get disability. I also have osteoarthritis in my hands and knees. I had a reconstruction surgery in my right hand(twice) and I need knee replacements.
I don't think I could make it through a full day at work... Not without crying or getting stuck in my chair.
Does anyone get disability for FM?

Sep 22, 2016 1:48 AM

I do. Since 1999. I was a home health nurse but had reached a point where the "fog" was so bad I would get lost trying to get to my patients homes. Knew if I couldn't remember how to get there I had no business giving or setting up medications. :(

My disability was approved due to Fibromyalgia, Chronic Fatigue and migraines. I had gone to a Walk For Awareness in DC. The lawyer that spoke at the conference specialized in clients with FMS. He said the more diagnosis you can list the better chances you have. So if you have a phobia such as fear of crowds list it. Low immune system. List it. Etc. He also said to never dress up when going to talk to the disability people. They need to see you at your worse. Their way of thinking is if you could spend the time to get dressed up you could certainly work.

Best of luck to you. Am.so sorry you are not doing well right now. The change of seasons is always hard.

Sep 22, 2016 3:06 PM

Gogogirl, it's very hard to get awarded your disability these days. I have seen so many folks in this forum that have waited years and have had appeals and hearings, etc.. I was prepared to go through that when I could no longer work and I was approved before I even left the building. I saw their doctor, their psychiatrist and had X-rays taken by them. They told me I'd receive my award letter in about 2 weeks and I did. I wish you the best of luck. Is it possible that you can work hourly instead of full time? At least this way you'll have money coming in and then you can get all of your medical records together and apply. Sending you well wishes and a lighter pain load. Please try not to be depressed. I know how hard it is because I've lived it for 23 years and had 30 surgeries and have a list of diagnosis the length of my arm. Try to be upbeat and remember all the blessings you find through the day. They are there and sometimes you have to really look but if you can see the sunshine, feel a warm breeze on your skin, hear the birds sing, make someone smile.. You CAN have a good life even with horrible pain. It's all what you make it. Believe me, I have my days and today is one of them but I'd sure rather smile than cry. Hang in there and hang out with us.. It'll be ok!!! {{{Hugs}}}πŸ’•

Sep 22, 2016 3:13 PM

Apply for ssd no one awards it. Get ssd atty and dont go back to work

Sep 22, 2016 4:24 PM

Welcome to the community Gogogirl! I've been waiting since filling in October 2014. I hired a lawyer and was are waiting for a hearing. I was told in March-April there's a 17+ month wait for hearings (in GA). I have many diagnoses contributing to my disability with the fibro. Hugs love and prayers for strength & patience to get you through it all! It's nerve wracking to say the least. πŸ™‚πŸ’•πŸ™πŸŒΈ

Sep 22, 2016 4:53 PM

Hello Gogogirl and welcomed, I'm in Australia and have been waiting for quite a while. Was diagnosed with fibro in 2013 (I think) memory's bad! I applied in 2014 and have been jumpin through hoops, not literally because that would be impossible πŸ˜‚, since then. Over here they make you wait because they think you'll give up. But not me. My pain is getting worse due to stressful living accommodations and the depression is the same. Best of luck young lady. This is a fabulous community and the wonderful people here with lots of compassion and understanding πŸ’ŸπŸŒΌπŸŒ»

Sep 23, 2016 10:49 PM

Thank you all so much for your feedback, hugs, and even for just listening. It helps talking about it and hearing others experiences. This is/has been so difficult. Not just for myself but my family too. I know I need to apply but I almost think in the back of my head I'm afraid I am still not applying because I am still somewhat in denial. Sigh. I'm ready...

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