When I was diagnosed with Fibromyalgia CFS, my Primary Care Doctor sent me to get a second opinion from The Arthritis institute. After my second opinion my primary care doctor, talked to me about Pain Management and I needed to be in a Clinic they were the only ones who could prescribe the pain Medication I would need to manage my Fibromyalgia. They referred me to the Pain Management Clinic that I've been in going on nine years. With monthly appts to talk about any issues and get refills of prescriptions.
What was your experience? And the process of finding out you have Fibromyalgia. Share your story!
I have had M.E/CFS for 6 years but it took 5 years to get diagnosed as no doctors listened to me they said it was in my head and I was making it up, finally after getting diagnosed with that I already knew I had fibro I have also had that for around 4 years and that took three years to be diagnosed, I finally after fighting with multiple doctors again got sent to a rheumatologist who diagnosed me with it.
They have left me in excruciating pain with no help at all I tried a pain clinic but they couldn't help me either! I only have just been given pain killers that work after falling down the stairs and being took to hospital by ambulance but I'm only aloud them for 5 days then I'm left in excruciating pain again wich leaves me housebound.
I have waited 6 years for a to see a M.E/CFS doctor there coming next week but I have got past the point with that illness where they can't help anymore!
I can't believe you get monthly appointments I'm so happy for you! I'm lucky if I get a appointment once every 3 years 😂
I'm so glad you have been looked after so well I wish it had been the same for me 🙁
I've only been to seen one pain specialist, but I am currently looking for one again.
My first experience was when I was 17 years old. I've suffered from back pain and scoliosis since birth. At first the doctor sent me through physics therapy hoping to build up some core strength to help stabilize my spinal muscles. After that he did a couple rounds of steroid injections in both my facet joints in the spine, and my hips. I would get very little or very short success with the injections. In 2012 when I was 18 he performed a rhizotomy ablation surgery on my lower spine. Basically, the did 4 incisions and used a laser to burn off nerve endings. But since I was so young, they grew back quickly. Due to the down time and lack of activity I began gaining weight. I was later diagnosed with polycystic ovarian syndrome which also made me gain weight. My pain dr no longer wanted to treat me until I had lost weight. So I am now, years later, looking for a new pain management dr because my new primary won't keep prescribing my hydrocodone like my old primary care dr did. I take maybe 1-2 pain pills a week but with the new CDC guidelines, it's much more strict.