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CatchMyPain Community and Pain Diary App to manage chronic illness

I HATE LIFE

Dec 22, 2015 9:47 PM

Fibromyalgia, polymyalgia and ms suck! I don't want to feel like this any more. I'm sick to death of pain!

Dec 22, 2015 11:03 PM

Oh, I hear you. I wish it would go away, and seems like i will I never find my potion to help with pain, to live a decent normal life. Especially been hard for me at least to get in the Christmas Spirit. I think if not for my son and family I wouldnt be. But I hear ya vent, and I pray for Christmas and the next year some relief your way

Dec 22, 2015 11:04 PM

Being sick just makes it all 100% worse,

Dec 23, 2015 1:14 AM

I'm glad that I found this site. I'm in bed right now crying like a baby because I deal with pain and chronic inflammation! The doctors won't give me anything because they think I want drugs when it's documented that ive been dealing with chronic pain for years!!!! I'm tired I'm not in the Christmas spirit. I'm always witI attitude I HATE myself because I always say that I don't feel good. I'm just tired of being sick and tired.

Dec 23, 2015 3:18 AM

Ditto to all of this!

Dec 23, 2015 7:49 AM

yup!

Dec 23, 2015 7:49 AM

!!

Dec 23, 2015 7:54 AM

bad!!

Dec 23, 2015 9:38 AM

Welcome to all of you. I am sorry that you are in need of a pain support group but I am happy that you found ours. We are a close knit, zany, loving and understanding family. We are all here for one another. We pray for each other, hold each other up, celebrate good days, and just all around love one another. This is a safe forum to unburden yourself of your worries, fears, anger, or whatever you need. There are no judgements here. We are all here for different diagnosis but are all joined together by the commonality of chronic, irretractable pain. You will never be alone, day or night. There is always someone who will be there when you need help. I have been in severe pain for 22 years and have had 29 surgeries in that time. I have been formally diagnosed with Fibromyalgia, Degenerative Joint and disc Disease, CRPS/RSD, Costochondritis, long thoracic nerve palsy, scoliosis, cervical spondalytic myelopathy, SI Joint Disfunction with fractures, TMJ, knee issues, GERD, anxiety and depression (and a laundry list of other stuff I can't think of right now). It isn't an easy life and yes, it's frustrating. I have been sick for over a month and I'm feeling a double flare coming on. Here in the North East (NY) it is rainy and horrible out and it has been for 3 days. The longer it stays that way, the worse the pain. Add the stress of the holidays, rushing to make sure things are done and all the emotions (bad and good) that come with this time of year, it doesn't make for an easy time. I hope that you all settle in and find comfort in knowing you're not alone, that there are people here who understand and that you will be a member of a wonderful group of people. I send you all gentle {{{Hugs}}} and prayers that your pain levels subside and you have a peaceful day. Welcome aboard!! πŸŒ»πŸ™πŸ»

Dec 23, 2015 1:02 PM

Welcome to our new community-family. It's very sad that we all are here because of chronic illnesses & pain. But it's a very understanding group with various experiences and suggestions to get through the pain with a little more ease. I hope my suggestions will be of some help to you.

Beckiebubbles, I am very sorry to hear you are struggling to wade through life riddled with pain! Life is filled with challenges & hardships. But having chronic illnesses makes it 10x more a struggle. We hear your pain & understand. I have fibromyalgia and usually the mornings are worse, or when I've been on my feet too much. Warm showers help to limber me up, as well as gentle, slow stretches. I'm using 2 lb handwrite and stretch bands to try and stay lumber, while not losing strength. My doc gave me gabapentin for the neuropathy pains. Has your doc tried corticosteroid for the polymyalgia? It may help give you a remission. I don't have any suggestions for the MS. They thought I had it but my tests were negative. Instead I have other issues that cause symptoms like MS. I'm sending you positive vibes, (((hugs))), & prayers that you find the strength to get through each day, and that something will occur to give you a spark of hope & joy!

Sutherngurl, I am so sorry your docs will not provide you much needed relief. I've been where you are; crying from immense (undiagnosed) pain, crying from frustration because the doctors don't hear or believe you, crying to be heard, crying because I hated being in pain and tired all the time. It was a long struggle for years before diagnoses began to come, with some treatments that helped and some that caused further complications & pain. I still have daily pain and being tired. The more I do the more tired I get. But the more I do also brings more strength in muscles that had become weak & trembly. I'm trying to exercise anywhere from 10-30 minutes a day, from walking a treadmill, stretch bands, 2 lb weights & gentle stretches, depending on how I feel. If I miss a day because I just don't feel I can do it, it's ok. I'm unable to take narcotics for pain so I'm using OTC meds like Tylenol Arthritis, Aleve, (rotating the 2), and my Ortho gave me voltaren gel rx that I can rub into the muscles. It's especially helpful with my shoulders, cervicogenic headaches, and night time muscle cramps. I do have gabapentin for the fibro, Plaquenil for the Sjogrens, and 2 meds for my hypothyroidism. These 3 dx share so many common symptoms, it's taken time to figure out how to tell which one is flared up. What type docs have you tried to see? If I see a doc that isn't helping, I find a new one. I've changed several docs who did not fit my "team" of doctors. I have a specialist for every organ system of the body, because a GP/PCP just isn't specialized enough to help the many diagnoses problems I've developed since 2006. Please know I'm praying for you, that you will find a caring & compassionate doctor that will help you. (((Hugs))) πŸ™‚πŸ™πŸŒΌπŸŽ„

Dec 23, 2015 1:06 PM

handwrite = hand weights
lumber = limber

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