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I have been sad for a while

Apr 02, 2017 3:02 PM

It has been a month that I have been completely consumed by pain and sickness. I am nauseous and I am not eating much. Just one meal a day. I don't even snack. I have lost thirty pounds this month. I am happy about that but I have not been trying. I am usually always hot but now I keep a cover on me because I feel chilled. I have not left my recliner most of the month because it hurts so bad to move. It hurts like if you have sprained or bruised yourself. But what saddens me is my family doesn't even notice. They live with me but it is business as usual. It has been hard lately because the doctors are cutting my pain medicine even though they are getting more evidence of things causing me pain. They have just taken pictures of four places that have extreme arthritis. One of them is bone on bone. Then the CRPS. Sometimes it is all just too much. They have to come up with something better. You know they can. It is just not that important to them. I hope all of you are keeping your head up and finding ways to deal with your pain. Take care.

Apr 02, 2017 3:28 PM

(((( gentle hugs )))) we have storms moving through. Moms been sick and dad's not been well. My cup is full and overflowing. Just have to decide if that's a blessing or now.

Apr 02, 2017 5:50 PM

Mimikay, I am sorry about your parents. It is hard to see our parents getting older isn't it? I hope they are not hurting to bad. I wish not at all. I really should not have complained. Everyone is dealing with something. Mine is nothing compared to most. I hope you keep things together well for yourself and your family. Make sure you make time for yourself. They say that when you are a caregiver, it is very important that you refresh yourself every now and then so that you can keep from getting down.

Apr 02, 2017 6:37 PM

Profiler . (( gentle hugs )) I'm sorry to hear all your dealing with . I understand what you mean by people living with you and not able to see that you are in pain. I Prey you find the strength .

Stay strong and think positive. We are all here for you 😊😊😊😊

Apr 02, 2017 6:39 PM

Mimikay. I am sorry to hear about your parents . I also Prey for you and your family
(( gentle hugs )) . We are all here for you as well. 😊😊😊😊

Apr 02, 2017 6:56 PM

Profiler... True, we are all going through something. Its what makes this forum a blessing. We can come and complain and everyone understands without judgement. I didn't mean to sound as if I was dismissing you. I thought I had written more. Fibro Fog. I hope your week will be one filled with blessings. ((( gentle hugs )))

As for me - for now adrenaline is getting me through. Predicting a crash and burn when I go visit my children in April.

Apr 02, 2017 10:07 PM

Oh profiler it is hard when family don't realise that your pain is worse than what it was and they don't notice that you've been in your recliner because it hurts too much to be anywhere else.
I don't think they mean not to notice but they become so caught up in their own lives and become....Hhhmmmm..... distant?.... immune?.... side tracked.... I can't think of a better word at the moment.... so they just assume that you are as normal and forget to stop and take time to talk to each other and you.
It seems the doctors are cutting everyone's pain meds over the pond where you are, I've noticed many people saying that since Obama care came into action, they're basically saying anyone on long term pain meds are junkies no matter what pain your in 😞 I'm truly sorry that is happening no matter what pain it leaves people in 😞
I hope you're able to find some relief and I'm sending you positive vibes and warm healing hugs xx

Apr 02, 2017 10:15 PM

Profiler we are here to listen when you need to vent, yes we are all dealing with something and all need to air our troubles so please don't feel you shouldn't complain and yes your troubles are just as important as anyone else's troubles, we all need help and to vent so never think your troubles are trivial because to you they're not trivial, to you they are important

Apr 02, 2017 11:39 PM

Sounds like fibromyalgia. It probably has occurred because of your other issues. Not sure if you nausea other than possibly ideas come to mind: gallbladder, liver, kidneys. Are you getting fevers? You new cold aspect.
I'm in bed for most days now. I also eat only one meal a day. I do snack on chocolate. But I know exactly how you feel. I on the other hand can't afford insurance nor can I get in Medicaid because my husband receives a small disability chk. My whole lumbar area is herniated with leaking discs, scoliosis and major nerve pain. I'm stuck. I need surgery, and need doctors help but can't. I have to rely on my pain doc. I also can't work which has hurt our finances.

Apr 03, 2017 3:07 AM

Thanks Sezzy, what you said was were sweet and probably very true. I am just thinking of myself . I don't mean that negatively. But when you are depressed, you tend to only think of yourself and not like you said how the rest of my family may be perceiving things. Thanks for making me consider another way. I really needed that. You don't know how much.

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