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I just can't win!

Mar 11, 2016 1:21 AM

I just can't win! My husband got up this morning with the flu and said that his body was aching. He said it hurts even to lift a cup. After acknowledging his pain and giving him advice on flu meds I took this opportunity and said "that will give you some idea of what it feels like to have a flare up of Fibromialgia, that pain with tiredness". He said "Aw, you've always complained, have you had Fibromialgia all of your life?".
When I got hurt by this he said he was joking. But it hurts, I don't want to feel like this, I don't want to complain, I don't want this pain.
I just thought it was a good opportunity to help him to understand what my body is putting me through.

Mar 11, 2016 6:13 AM

Wow I'm sorry. I wish there was a way to not hurt healthy people, but be able to show them exactly what it's like to live with a chronic illness or disease. I've seen short movies made that show how depression makes you feel to help those who haven't had it understand. Maybe if a high quality game where you have to try to live as a disabled character where regular actions are challenging would help others understand. I wish people would understand that making jokes at our expense is not ok.

Mar 11, 2016 6:14 AM

People will never truely understand until they have to deal with themselves. I have a fantastic wife but she admits herself she just doesn't understand fibro and how it affects people x

Mar 11, 2016 12:09 PM

I'm sorry. Others really can't understand unless they go through it long term.

Mar 11, 2016 9:57 PM

You hang in there Ireland! He may just be snarky because he is feeling crappy, and now he knows he put his foot in it with you. No one who doesn't have the kind of pain we do is going to understand if and until they do. I hear you. I feel your pain.

Mar 12, 2016 12:30 PM

Thanks guys, I'm on day 2 of coming out of a two week severe flare up. Feeling stronger mentally and able to understand how hard it must be for him to imagine my daily struggle. Thanks for you kind words and support. I'm so glad to have found you all xx

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