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I keep trying

Jan 29, 2016 9:25 PM

So today was an OK day pain in my left leg worse but I have another thread about that. So today I was out with mom running errands so I took an opportunity to try and speak with her about my depression and what not and its almost like a teacher educating a child that is just not getting it. We went walking and inwent off in aonlthe direction then her. Just to be alone. And I did pretty well but bout halfway back I was giving out legs burning knees locking ect...
So mom commented " your just gonna have to push pass the burning " and for once her comments did not make me angry or sad it just confirmed to me that she will never get it. She does not want to to get it.
I later went by my sisters house and we talked for a moment. And we began to speak bout the walking and pain ect and she says " ull just have to be consistent. Have to stick with it..". And again its not clicking.. This is not a will power issue this is not a lazy issue this is a medical issue. They just don't get it.
It does hurt a little I wish I could have support from the ones I see all day. But it just is not gonna happen.

Jan 29, 2016 10:23 PM

Newfibrogirl, no matter how often we try to explain, there will always be those who do not want to &/or are incapable of comprehending our issues. Sending you hugs & love & prayers that tomorrow will be a much better day! 🙂💕🙏🌼

Jan 30, 2016 12:39 PM

I totally understand. A lot of other teens are the same way about me. If a normally peppy person gets an injury, and it's visible (say a wrist injury) people think it's real, but with me people decided I was so quiet and exhausted I must just be lazy. It's hard, and the saying "you don't get it, until you get it" is especially true for chronic pain.

Jan 30, 2016 12:43 PM

Yep that's how it is sadly. Unless you've had chronic pain you can't understand fully what it is like.

Jan 30, 2016 5:56 PM

Sorry to hear that your family does not understand. I have Fibromyalgia and other health issues that are invisible as well and I totally understand how you feel. I had my mother research it on the internet just so she could understand and now she does. I still have family that doesn't understand and have chose not to tell them anything and to have as little contact as I can with them now. Maybe try to get your family to research it... it could help them to understand what you are going through a lityle better. It helped my mom.

Jan 30, 2016 6:00 PM

Melanie..I've tried to get my mom to do that. I've even printed noff information for her to read . basically did thr leg work for her. I've gotten her notes from the Dr to look at and she is just not into it. She seems to get it at one point in one area but then regresses and its like she does not know a thing. Sadly she only seems to really come to her senses whe n I had a crash. And I totally out or in tears with pain. It's to the point right now I'm just tired of tring to get her or anyone on my side.

Jan 30, 2016 6:45 PM

I completely how you feel I'm here for you

Jan 30, 2016 7:33 PM

Girl i had to go to er today right..soo i go there and im in pain my aunt calls my husband and says i dont think she is in pain i think shes depressed omg what a slap in my face! Im sorry honey feel better!

Jan 30, 2016 7:34 PM

Michellled i was thinking about u today.. How r u feeling now? What did thr Dr say? As for the aunt. Ugh..girl I'm so sorry..

Jan 30, 2016 7:36 PM

Ok so i was having the gall bladder symptoms and they thought i had a stone lodged sent me to or..they said its a kidney infection and thats why my hip hurts ! I do not believe this back upper yes hip though?

Jan 30, 2016 7:37 PM

I would be so happy if it was though!!!

Jan 30, 2016 7:37 PM

Oh my..they took u all way to OR to find that bout.. Wow.. How's ur pain now?

Jan 30, 2016 7:38 PM

Yes lol i went to dr and they said you have to go to or gave me dilaudid and script for antibiotics on a 1 to 10 im a 20 :(

Jan 30, 2016 7:39 PM

That's horrible

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