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i think i have fibromyalgia?

Sep 04, 2015 9:49 PM

hello i need some help. i think i might have fibro. i've had this widespread pain for 6 years now and been to the doctors but they all either think 'i'm to young to be in pain' or 'my mind is doing this' which i don't think at all.

i did some research couple months ago what the pain could be or causes it and came across fibromyalgia! like the pain is exactly where i have it and the sensitivity to touch and trouble sleeping and ibs. so i think it could be that.

I'm going to see a doctor next week and want help about my pain, do you know what i should do? i'm kind of nervous if i just say 'i think i have fibromyalgia' idk can you help me???? X

Sep 04, 2015 9:52 PM

I hope you find out soon what is wrongπŸ™

Sep 04, 2015 10:22 PM

Hi gabby do you keep track of your symptoms ? Thats probably the best way to establish a pattern that you can show the doctors. I know for myself when it all first started i didnt do that for the first 3-4 years .. id go in and it would happen to be a good day and u forget how bad the week before was so it took a really long time to show the pattern.

Thier is no age limit to diseases including fibro .. things can happen at any age .. sometimes I think fibro can be a side effect of other issues that are going on.. they have a tendency to cross over so i think the docs have a hard time pinning the true cause down.

For me I eventually found out I have rheumatoid arthritis. . But my initial dx was fibro amd the only reason I found about the RA was because they sent me to a rhemy ... the more controlled my RA has become with the right treatment the less problems i seem to have with the fibro.

You can always ask could fibro be a possibility when you see the doc but i wouldn't assume thats the problem. Most docs are touchy about self diagnosing. If your not getting anywhere with your doc though and you dont feel like he\shes listening it might be time to try anothrer doc.

Hope you find out whats going on soon. I know how hard it is to be in limbo and feeling desperate. . Best wishes xx

Sep 05, 2015 3:00 AM

I think the diary is a great idea. You may even try to backtrack if you can remember some time periods and symptoms. In my experience, it is never Good to suggest a disease to a doctor. They will assume that you have spent your time in front of a computer and have self diagnosed yourself. That is what a lot of us have done with much success because we knew before we went to the doctors by our thorough research what we were dealing with.

Just to give you an idea, I was diagnose with fibromyalgia. I personally think that the doctors gave me that diagnosis because they had no idea what was going on with me. But I am relatively sure I don't have it. The primary reason, I don't have pain in these trigger points. I can't even identify the trigger points. From what I understand, that is like a standard in the disease. If you have it, you can try to do what other people are doing to get relief. They are exercising, stretching, eating right, getting the right rest. I hear on here these are very important. By the way, this is not a speech. But this may be a way for you to figure it out because there is no test for the disease. It is a diagnosis of exclusion. They rule out everything else and say this must be it. Except from what I understand, the trigger points are important. Correct me anybody if I am wrong. I always say study all you can know about what you really think you have. Try to know more than the doctor. They don't have the time to research everything. There is a wealth of information on here just for the asking. I would make sure you take your temperature regularly as with these type of pains. Sometimes you may not realize you can have a low grade fever which can indicate a different problem. Just a suggestion. Best wishes to you. I really hope you get the answers you are looking for. Oh one last thing. I would really impress upon them how much pain you are in. That it is not in your mind. Tell them what your life is like dealing with pain. Let them see the impact it is having on you. Don't be surprised if they suggest an anti-depressant. They recommend these for people with pain. People who deal with pain are depressed. When they are happier, their pain is easier to deal with. So they are not suggesting you are crazy. One medicine is Cymbalta which is specifically used for fibro and pain. Again best wishes.

Sep 06, 2015 7:54 PM

Petitegabby, Linda & profiler are right. Trigger points are important. I began symptoms in 2008-2009, but wasn't diagnosed until 2012.

Out of curiosity, do you have any other diagnosed issues in the autoimmune area? Just this year I was dx with hypothyroidism and sjogrens. I was really surprised to find they share many symptoms with fibromyalgia! There's a possibility you have more than one thing going on. Tracking symptoms is very good support to show doctors. I hope you'll get some answers this week. πŸ™πŸŒΌ

Sep 07, 2015 2:31 AM

Thats a good question Flappyslady. .. many of the fibro symptoms cross over with my rheumatoid arthritis and the more controlled that is the less problems I have with fibro

Sep 07, 2015 8:40 AM

Same with me Linda. Once they dx the sjogrens and started me on the Plaquenil my general all-over muscle pain dropped to a 3-5, even my tender points aren't as sensitive, and my pain mostly stays closer to the three. If I'm more active it might flare it up, but I've yet to go back up to the 8-9 range. Now if I could just get the dryness in my mouth throat and nose to be better it would be great. I'm having a nose bleed this am, another Sjogrens symptom. Sometimes while talking my throat gets so dry I can't speak or swallow, and it feels like sandpaper just swallowing that sip of water to help! πŸ™πŸŒΌ

Sep 07, 2015 9:04 AM

Good morning Flappyslady - for a few years after I was dxd i started having problems with dry mouth, throat and eyes. I started developing mouth sores about a year and a half ago then over the winter they got so bad I couldn't take it anymore. . In between for the dry mouth I found some over the counter stuff called biotene in the dental section of the pharmacy. I didnt find the tooth paste very helpful but the rinse and the tablets you put under your tongue helped me a lot. I know its a symptom of your AI disease so it won't make it go away but might help a little.

Also ask your rheumatologist about a lidocane rinse that you can swallow. That helped me alot when i developed mouth sores.the sores ended up being a side effect from the enbrel i was on for my RA but they went right away after I started a new treatment. Hope you find something that helps.((hugs))

Sep 07, 2015 9:23 PM

Linda, thanks for sharing about the lidocaine rinse. I'm using the Biotene rinse, spray, and toothpaste. I don't like the toothpaste and I don't think it helps with cleaning my teeth. I tried something mentioned on the sjogrens website called xylimelts, but they leave a slimy feeling in my mouth, not pleasant. Between the sjogrens oral rash and the thrush caused from my inhalers (regardless of how much I rinse and gargle) my hubby won't kiss me anymore because I have "cooties." That's all right though... My dog loves me! Lol It is frustrating though. And to think I use to complain about the fall and spring nasal allergues that caused a runny nose. πŸ‘ƒ What I wouldn't give to have it now instead of the excessive dryness! Lol. πŸ™πŸŒΌ

Sep 08, 2015 10:48 AM

Flappsy!! LOL... I am so glad your dog loves you. I'll take slobbery dog kisses any day! I have a 145 pound bullmastiff named Hope. She's 6 years old and will put her paws up on your shoulders and lay across you. OMG.. I tell her she needs to take her elbow out of my spleen. Then she'll talas and give me lots of kisses and then put her head on my shoulder. It's not pretty if someone goes passed the house and she pushes off me to bark out the window!! I tell her, I didn't need that lobe of my liver or it's ok, I have 2 boobs!! LOL!! She is a joy. She loves you to take her chin in your hands and kiss her on the lips. She won't lick you but if you keep your eyes open and look at her, her eyes are crossed😜 it cracks me up every time!! Pets are really a blessing. They love you no matter what and all they want is to please you and be loved in return. πŸ’•πŸ™πŸ»πŸŒ»

Sep 08, 2015 12:26 PM

Bear is the first dog I've had that kisses my face; only chin or cheeks though. He'll be asleep then wake up, get up and stretch, then slowly meander his way up my chest until his paws are on my sternum. If I play like I don't see him, he takes his paw and puts it right on my cheek below my eye then starts picking. When he's given me kisses he suddenly just called over sideways so I'm cracking him like a baby! Lol πŸ™πŸŒΌ

Sep 08, 2015 12:28 PM

Picking = licking
Called = falls over
Cracking = cradling

Sep 08, 2015 12:30 PM

DAMN that auto correct!! LOL!!

Sep 08, 2015 12:31 PM

My dog also only licks my cheeks and chin and my hands. When I kiss her on her face, or her lips, she won't budge because she's afraid you'll stop kissing her so she just stares at you.. LOL!!

Sep 08, 2015 2:02 PM

Thanks for sharing. This helped me a lot although I did not start the discussion.

Sep 08, 2015 2:41 PM

Dave78, glad to hear that you found help here with us!! Hang around and you'll find humor, advise, compassion and understanding with no judgement.πŸŒ»πŸ™πŸ»

Sep 08, 2015 5:17 PM

Ok alwayz and flappys .. i just about fell off my bed laughing over your messages!

Flappyslady I didn't like the tooth paste either. . The lidocane mouth rinse actually made my mouth water a lot so thats probably why it helped the dryness.

Dogs do the craziest things.. my yorkie who is almost 2 has a morning routine.. he stares at me like kujo till i get up.. then its outside. .then he has to get his morning pettng then when hes satisfied he runs off to find a toy and makes me play for awhile lol every day! The things he does cracks me up constantly!

Sep 08, 2015 7:38 PM

Linda, glad we were able to give you a chuckle for the day!! As they say, laughter is the best medicine. I'll let you know when me and Flappsy take our act on the road!😜

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