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Jan 15, 2015 2:09 PM

Irritable Bowel Syndrome anyone? I tend to get flare ups with this too. Not many, but every few months. Of course the day I am in a pretty good mood and can manage my pain I get pains and need to run to the bathroom when a client is in my office! I really just hate this. I don't want to have to stop working but how can I be reliable to people?!

Jan 15, 2015 2:21 PM

Freakin IBS got me good yesterday after I tried dutch bros coffee for the first time yesterday. I think for me there are some things that irritate it more and doctors will tell you to try to regulate it with diet, but IBS is so random it's hard to figure out. Have you taken anything for it? I tried levsin and bentyl for it. I've also noticed that it gets worse if I'm having a kind of emotional day, sometimes I can calm down with yoga or deep breathing. But man, it sucks!

Jan 15, 2015 2:24 PM

Libedon- it just hits me when it's hits me! I wasn't even stressed today! It sucks bad! I had to leave and go to the bathroom with a client there! I mean really?! And it's happens a few times a year.

Jan 15, 2015 5:23 PM

I used to suffer with it as a kid and coming from a divorced family, it would hit when I was emotional. Needless to say sometimes my parents (more my step mother) would say it was attention seeking, which aggravated it. It used to hit a couple days after, so like I'd be stressed and two days later, after the stress was gone, if be cramping. My dr gave me proper placebo tabs, pure sugar and they worked for me. a. For the psychology of take the pill and b. The sugar content. I learned to over come it by 'caring less' and taking control of even the smallest anxiety attacks. I still fear it will return, so drink loads of water and make sure I 'go' regularly.. Doesn't help since I'm on cocodimol (codeine) 4x a day and that constipated me.

Jan 16, 2015 12:48 AM

I have the IBS case from hell. I've been dealing with it for at least 20 years now & my body has turned it into a nightmare fit for one of those wacky medical shows on tv.

I am actually trying to get disability for IBS & it hasn't been easy. As you've read, people chalk it up to attention seeking (tho I really think that we can come up with like a million more ways of getting attention than being stuck on a toilet with horrific pain, stinking up the whole house with what ends up coming out). My IBS has gotten so bad that I'm in constant, extreme pain & I can't even go to the bathroom anymore without a lot of meds. But when the stupid colon did cooperate I too could end up in the bathroom at the worst times.

Have you trIed using pribiotics? Acidophilus is a good one & you should be able to find it at Wal-Mart for less than $10. If you aren't "regular", you can use the fancy yogurt (if you can stomach it - yuck) or Metamucil. If those won't work (for whatever reason), try Miralax. There are generic versions that work as well & you can try to regulate yourself.

I do need to say that I am NOT a doctor, just someone with an evil colon. My suggestion should not take the place of your doctor or your own good logic.

Good luck. I hate having IBS & I hate that it now rules my life. If you only take one piece of advice from me, let it be this one: get your colon under control now & keep it there. I don't wish this on my almost worst enemy.

Jan 16, 2015 11:34 AM

I've had IBS for 30+ years. The mass they removed in 2010 grew so long and adheased to so many areas in my pelvis, I now have pelvic congestion and pelvic floor dysfunction, along with some nerve damage to intestinal tract and bladder. Means my constipation v/s diarrhea is 2x or more worse than ever. There's days I can't leave home, and I have permanent protective pads in my car seat.

To try and stay regular, because we all know how important that is, I use probiotics, Citrucel, & India Natural Psyllium fiber source. I've also turned allergic to wheat so Metamucil & Konsyl are out of the question for me. Also very important is water, water & more water. These allergy & cold medicines are drying up my water!

Jan 16, 2015 6:23 PM

Flappy - YIKES!!! I always tell myself there's someone out there who has it worse than me but when it comes to my IBS, I've always hoped I was wrong. I am so sorry. I'm only asking for future reference but how much pain are you in, on a scale of 1 to contemplating removing your colon on your own?

Jan 16, 2015 7:14 PM

I have also got IBS. It used to be IBS - D 'naturally' now it's IBS - C from medications. When it was D, after a battery of tests, my gastro doc finally told me there really wasn't anything they could do about it and gave me a huge box of Imodium Advanced. Great, huh? I was told to try fiber products like Metamucil or Fibercon (two different types of it), try probiotics (the one they wanted me on was pricey), avoid Dairy, avoid Coffee or Tea, etc. the only thing that helped besides Imodium that I continue to use are Pre-Lief tablets. You just take two tabs whenever you eat or drink something with a lot of acidity, like coffee or speghetti sauce. It helps my acid reflux as well.

Now I have C, so I rotate between Colace, Milk of Magnesia, and Miralax. And water of course. And plenty of Phasyme gas pills 😉.

Jan 16, 2015 7:21 PM

Sort of off topic, but has anyone here tried Cysta Q for inflammation and nerve damage pain? I get it from Farr Labs online, no script needed, altho a Urologist recommended it to me. Here is the website it is on: www.farrlabs.com

worked wonders for me, for the terrible burning nerve damage I have. There are also other products they have I am considering. But anyways, there it is if anyone is interested 😊.

Jan 16, 2015 7:23 PM

Hmm, just realized the CystaQ I take is specifically for my type of bladder/vaginal pain. I don't see why it couldn't help other nerve based pain and inflammation tho.

Jan 16, 2015 8:48 PM

Lol Deena, yes its quite embarrassing at times but comical at others. You remember the old 3 stooges and shows like that...add the whoopee cushion, except its me when I squat or even walk sometimes. Fun, let me tell you! 😨 I've gotten beyond wanting to cry from embarrassment. Even my 8 yr old granddaughter knows enough about my issues and if necessary (to make me laugh) she blames "grandpa!" 😁

As for pain, it depends on when I'm in the constipated phase like now (from cold meds). I've had pressure building all day (actually 3) in the pelvis and its like a heavy weight inside pushing downward on the pelvic floor (front to back). Ladies who've been pregnant can relate from the baby pressure just before birth, except its way worse. It keeps going into the thighs, and depending on how long I'm up or out running g errands makes it worse...to the knees.I'd say right now I feel like a 7 out of 10.

I have an appointment next week with a Urogynecology surgeon. In some ways I'm scared of possible more surgery, but if it brings some relief ... Am I willing to do it? That's the million dollar question seeing as one thing gets fixed something else goes haywire. I don't want a colostomy if I can help it.

Jan 16, 2015 9:00 PM

A coroner told my husband, who asked "how often do you do autopsies with scar tissue" that where scar tissue adheres to the intestines and they can't move as they try to filter out the body, well the scar tissue stretches, pulls, and tears. Pain!

Jan 16, 2015 11:33 PM

The doctors are telling me that a lot of my pain could be scar tissue. I had one doctor who told me that my colon hated me & was out for revenge. I don't care what the reason is, I would just like one of them to realize that giving me pain meds would HELP me more than it would hurt me.

And I like the idea of blaming grandpa. Here it's the dogs - hehe.

Jan 17, 2015 8:23 AM

The problem... IBS just rears its head worse with pain meds. I have donnatal for the IBS cramps

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