Since September is Interstitial cystitis awareness month I hope everyone is wearing a little bit of teal in support and learning a little bit more about IC. For example: did you know that drinking cranberry juice as well as other fruit juices like orange, pineapple, and even grape can cause your bladder to flare and/or spasm if you have IC?
Other beverages to avoid are coffee, caffenated teas, alcohol, and anything carbonated.
My current flare began late July/early August, with some slight symptoms creeping on earlier in the summer. It ended a two year remission bought by my last round of instillations done by most excellent urologist who uses her own special cocktail of medications for the bladder instillation.
I met with my urologist Monday, just narrowly avoiding needing a cystoscopy, and instead we talked in her office about my upcoming treatment plan. Since my fibro, migraines, and endo are/were all flaring as well I have been forced to make a lot of decisions about my illnesses in a very shot time. I have been placed back into menopause with a Lupron shot a week and a half ago to tame my endometriosis and the ovarian cyst found during ultrasound in the ER. My occipital nerves were blocked. Now I face 6 months of intensive instillations to treat my IC. Next steps are xrays of my ribs and shoulder where I was injured a year and a half ago, restarting acupuncture, and deciding the next steps when the xrays come back.
All of this while job hunting, with little to no income, and starting to get the feeling I'm being black balled from my profession. Been applying to charities for assistance and getting turned down. I'm extremely hurt from all the rejection. Rejection from jobs, rejection from charities that have mission statements claiming they are there to help people just like me except obviously not me because they all say no, rejection from Friends tired of my being sick. I have no idea how I will afford rent, food, meds, and treatments. Still trying to stay positive but I have thought about killing myself in detail. I feel like a burden. And nobody would notice anyway.