@Aliya. You know your body best, if you feel it worth them looking into then keep pushing. The condition is so rare it took them ages to dignose me and kept telling me is stress related head aches, was very frustrating :/
@Aniecea. I hope all goes okay next need, I have been suffering from more sever eye pain recently but I think because my eye's have been under so much pressure for so long, even when the pressure is lower we forget that our eyes still need time to heal back to normal.
My regular eye doctor discovered my swollen optic nerves when I went in for an eye exam. I thought I needed new glasses since I had a headache that was not going away. Long story short, I was diagnosed with pseudotumor cerebri. I have have been symptom free (at least not having swollen optic nerves) for a few years now. Occasionally I have headaches that remind me of the type of headache from PTC but I am realitively symptom free, to date.