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I’m done

Apr 29, 2019 5:27 PM

So I’m usually a positive person but lately I’ve been trying so hard to stay positive but I can’t. I’m So tired of dealing with my parents and medical along with a job and school. I’m 15 so I don’t get to tell my parents to shut up or that they need to leave me alone. I’m exhausted and my mom recently quit her job so she is obsessed with trying to figure out all my medical issues but I need her to clean the house instead (it’s currently for sale) but she sits in bed all day and doesn’t do anything to help I’m behind in online school, I’m going to talk to my therapist about a service dog because my pain is getting worse and I can hardly walk to the bathroom without feeling as if I’m going to fall over (I often do fall) I get tested for pots in 2 weeks and my mom thinks there is a genetic link because my sister and i have the same issues at the same age (my sister does not have chronic pain). My friends sister has a service dog and her dog has alerted to heart rate spikes and scratching from a panic attack I had when I thought I saw my dad( My friends sister was in the hospital for surgery and couldn’t take her dog do to no one being able to care for it at the hospital) after talking to my friends sister and parents they think I should get a dog and even offered to loan me money for a dog. I’m so nervous and I just don’t want to ask because I feel like I’m just going to get shut down by my doctor because I feel like service dogs are meant for people with blood sugar issues and macs ect. Another issue I have been having is the fact I still can’t ride do to my doctor saying no, my legs are still weak and they feel really heavy like I have just run a mile along with my CRPS flaring off and on. My anxiety is really bad and I can’t handle sounds and textures I start crying and hyper ventilating and sometimes pass out. I’m just done I don’t want to do all this anymore I feel myself slipping into bad habits again and I’m struggling to stay above water but I don’t think I can anymore.

Apr 29, 2019 5:41 PM

Hi Talia I’m Shore nice to meet you ,I have chronic pain in my feet spasms and Siatica nerve pain left .
I feel like give up at times but what helps me cope is being with my Fiancé September 6,2020, he so wonderful. We help each other . See he has Lupus and only one good leg his right leg. That he is dealing with yet we are getting Narried still ..
He is also going to move in with me and live at my place , yet we struggle with our health issues .
Just know I’m here if you need to chat I’ll look on once in awhile I do anyways. This helps by talking to others . I’m glad I found this site.
I hope that you feel better soon and have faith .🙏🙏🌈🌈❤️❤️I’ll pray for you also hug gently Shore ))))) I all ways want to be done but I turn around saying nope .See I lost both my parents they both passed away . Their is faith and Hope I found that all out when I’m an adult I’m 48 . I’m women btw. Hug 🤗Have a nice day ...

Apr 29, 2019 9:19 PM

👋Hi I’m also going to the dr for follow up Thursday on how my Back injection went three weeks ago or so.
I’m going to tell him my back still hurts and gives out when I over do it .I also get my leg calf spasm and feet every once in awhile still hmm .
I’m doing a prayer card presentation tomorrow to on how I make them by hand . I hope that I do good.hug later Shore

Apr 30, 2019 9:39 AM

Hi btw make prayer cards do help me out maybe it can help you . I take a picture or bulletin from church cut around it use the back and put different things on to it . Like sayings and pictures so let me know how it goes for youbhug ok 👌Shore 🙏🙏🌈❤️❤️🌹

Apr 30, 2019 1:04 PM

Hi btw my presentation went really great I liked doing it once I got in to it.
I seen others smile while I was telling them along with my pastor . I hope that you get to try it out sometime soon . Hug gently Shore have a nice day 🌈🌈🙏🙏🤗🤗

Apr 30, 2019 2:20 PM

Talia, as a parent I can only imagine how hard it is on your mom watching you in pain all the time. As a fellow CRPS warrior, I sympathize with your pain. I’ve been in a terrible flare for days now. It’s hard for me to deal with at times, I can’t imagine being a teenager trying to deal with all the teenage things plus this constant pain. Service dogs help people with many conditions and I think one could help you by getting things for you, possibly alerting you to changes and just companionship. Talk to your doctor. I’m not sure where you live but there are organizations that may help cover the costs of s dog.
Most importantly, hang in there sweetheart and breathe. (((Hugs)))

May 01, 2019 6:17 PM

Talia, even at a young age you can have PTSD due to chronic pain. Your pain now is labeled under intractable pain. Yes, you need a dog to help with both. Also, ask your school to have a mental health therapist to visit with you. With CRPS there are lots of groups that can help you out.

May 02, 2019 7:34 PM

Update I’m getting a mental evaluation because some things may be due to undiagnosed mental health issues and my therapist wants to go over that plan and then also talk with me more about a service dog. I’m also going to leave here for a few days I got grounded because of a meltdown I had and I disrespected my patients I feel awful so I’m giving them my phone so that I can take some time to myself. Thank you everyone who commented it really helped, send hugs and prayers to all you wonderful warriors out there

May 02, 2019 8:51 PM

Talia I’m sorry about your loosing your phone privileges. Maybe it’s best for now. With all distractions out of the way you can focus on getting better. Love you and hope your able to get the help you deserve.🌺

May 02, 2019 8:58 PM

Hi there I hope that you feel better soon I had a melt down today even , this morning at the dr office .
It was over scheduling I fact it gets me all the time .
So when are you come back on?
Btw my back update is thus I need to get a shot Tuesday in two different spot on my right lower side . They are trying to get my back stronger .I hope you can stay on bc, this helps me and I showed my dr and they said to be in it to .
I hope that you get the service dog I know one my choir at church has one her name is lily . Hug have a safe one come back soon and feel better ok . I also talk to done one so I hope that you can chat to someone that can help you .. hug gently . Shore 🌈🙏🤗💕

May 03, 2019 6:22 AM

Sorry you are losing your phone but as PainWarrior said, a break may do you some good. It’s great that you are getting an evaluation. My therapist has helped me so much because I can just cry or rant without worrying about hurting anyone’s feeling or making my family or friends feel bad.
Hang in there little one and take care of yourself. Keeping you in my prayers

May 03, 2019 9:59 AM

Talia, I'm sorry you are having such a hard time. I hope you are using a cane or even a walker to get around, as it's very helpful to keep me from falling, when my POTS causes blood pressure drops & heart rate spikes, which cause dizziness. Your therapist is someone you can safely express your stress anxiety and frustration to. It can't be easy for your parents to see you hurting and then not knowing how to help or what to do. You take time to focus on you the next few days. And check into the suggestions by zetarlov and others. And I'll be praying you can get the support dog, with hugs & love! 🙂❤🙏🌼

May 07, 2019 8:51 PM

Hi talia I hope that you are doing ok? I went to get my shots this afternoon went really good. So less pain but we shall see in the morning time.
Hug to you and everyone here rin the community. Ty for your su to me also 🌹🌹🌈🌈🤗💕💕later Shore

May 08, 2019 12:42 PM

Hi everyone I just wanted to let you know I’m back thank you for all your love and support! I hope everyone has low pain today, sending love and prayers your way ❤️

May 14, 2019 4:44 PM

Hi talus I’m still Shore new title 200 lol hug have s nice evening . I hope your doing good also . Hug gently 🙏🙏🌈🌈🤗🤗 Shore

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