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im going to screammm!...you don't understand!😤

Aug 22, 2017 9:19 PM

I've been in bed in severe pain for 5 days now. My friend come over, she asked me "how are u doing??? Duh, I feel.freaking horrible! I go on to tell her how my entire body hurts and I can barely get from the bathroom to the.kitchen without feeling like my legs are going to snap! Plus, I'm sleeping all day and night because my body is exhausted. She tells me, I know what you mean I barely got sleep one night and it through my entire week off. She said I was in pain and exhausted. She said "It should get better soon"🤤🤤🤤🤤 are you kidding me. I wanted to take the energy I had and kick her off my bed. Then I text my mom (she lives in Chicago and I'm in Dallas). I tell her the reason I haven't called is because I'm having a horrible flare. My husband's been doing everything because I can't get out the bed. She said "I have a rough day to didn't get much sleep" I know how you feel im exhausted and about to go to bed..... THEY COULD NEVER UNDERSTAND! WHAT MAKES PEOPLE THINK THAT THEY KNOW HOW I FEEL! ARE YOU FREAKING KILLING ME. NO MORE CALLS, TEXT OR VISITORS. PERIOD! Then when husband checks on me he see me like a vegetable in the bed with tons of cover over me, a heating pad, and a box of meds next to my bed i open my eyes and he's looking at me like I'm dead. SMH. 😦😦

Aug 22, 2017 9:24 PM

It's awful when people try to tell you that they know what your going through, Maybe you need to have a chat with your family and explain to them the agony your in and that it upsets you when they make lite of your situation 😡😤 Sorry your still in your flair and your in so much pain but your doing the right thing sleeping as much as possible.
I will be thinking of you and hope the pain eases off soon 💕💕💕💕

Aug 22, 2017 10:57 PM

You are so positive! Thank you so much for you kind words. LittleLola 😚

Aug 22, 2017 11:15 PM

I am sorry you are in such a bad flare up! I get frustrated with people as well! They can only understand if they are in our bodies! Feel better soon! Gentle hugs!

Aug 22, 2017 11:22 PM

Christmas7 Thank you, I wish I had someone near me that can UNDERSTAND me. My younger sister has fibromyalgia but she's in another state. 😶 Yes I received very bad news on Friday. I woke up Saturday in a flare worse then any other. Tomorrow will be the 5th day. 😔

Aug 23, 2017 4:25 AM

I'm so sorry you're in so much pain. Our friends and family can suck sometimes. (((gentle hugs)))

Aug 23, 2017 4:56 AM

I wish I had a magic wand to make people at least understand what pain your in and how bad your fatigue is but I don't 😔

As patronising as it sounds they are trying to sympathise with you albeit their experiences are no where near in comparison to you.
Its horrible but people will do this throught life or they will compare you to someone they know who has the same conditions etc....

Could your husband be feeling helpless as theres nothing he can do to help you? From what you've said he sounds very supportive and all he'll want to do is to love you and protect you, in most peoples minds that means they also want to cure you....oh how I would love that, to be cured and go back to work and show my children what it really means to support them!!!

Sending you positive vibes and warm healing hugs XX

Aug 23, 2017 4:42 PM

I would like to go back to my career, and be able to go to all my kid games. I'm a independent person and I don't want to NEED anyone. That scares me so much! My husband is awesome but I don't won't to NEED him either. I always lived with a second plan (a just it case). I wanna just jump out of this body and go back to what I think is NORMAL! Sezzy

Aug 23, 2017 6:56 PM

I know and it leaves a bitter taste in my mouth to not be able to go back to work and do normal things with my kids without becoming soo tired that we have to leave early or not go at all if my pain is bad 😔
This is the life we have so we have to do what we can when we can and make memories with our loved ones while doing so 💖

Aug 23, 2017 7:19 PM


Aug 23, 2017 7:32 PM

@MochaBarbee. Hey 💕 I am so sorry to hear that they don't understand how much pain you are in. There is no comparison. Everyone has there own pain level ect.. 🤗🤗 I can understand why you are so upset and maybe even feeling hurt.

I am sorry you are still having bad flare ups. I Pray it will ease up for you. Very Gentle hugs sending prayers your way 🤗🤗

Hang in there . Stay Strong . I am Proud of your husband for doing his best to understand and help you . And I am proud of you for being so strong .

Pm anytime . I'll do my best to help you . 💕💕

Aug 25, 2017 6:24 PM

Stay strong an stay prayed up...🌹

Aug 25, 2017 10:22 PM

I am sorry you are in so much pain! Just try and rest and breathe through each moment! Don't look to far into the future! Just get through the next few minutes, and then the next few and so on. Gentle hugs 🤗

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