Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

I’m new and quite excited to have found a community.

Feb 25, 2019 2:46 AM

Hey, my name is Victoria. I’m in my 40’s and married to my very understanding husband for 22 years. We have 3 teenagers in the house and 3 cats. In case your wondering I think the cats might be easier to herd.

I have multiple diagnosis, so here are the main ones:
Psoriatic Arthritis
Severe Osteoarthritis in my spine
Spinal Stenosis
Chronic Pain
I have been symptomatic since 2004 and had to stop working in 2009. It has been sort of downhill since then (medically speaking). I have never had any noticeable improvement. I switched over to cannabis oil (RSO) about 18 months ago which was a huge improvement.
I’m looking forward to making some connections. I’ve found my support people have dwindled over the years. I’m looking forward to hearing from you.

Feb 25, 2019 1:10 PM

Welcome to the community, it’s a bit deserted at the moment and not many people are posting so I can recommend another more active community of you want ?

Feb 25, 2019 3:13 PM

Absolutely. I always open to suggestions.

Feb 26, 2019 7:18 AM

Welcome to the community. I'm sorry you have chronic pain. Feel free to ask questions or vent if you need to. Look back at older topics to answer some of your questions. Not everyone is on every day.

Feb 26, 2019 5:43 PM

Thank you for the welcome. I am wondering if anyone has any in-depth testing. I have had the more basic tests such as X-ray, ultrasound and MRI’s. I have an appointment next week with a multi disiplined clinic that I know will do additional testing. I really want to do some research but I’m not sure where to begin. If anyone has any advice please let me know. I think they will concentrate on my spine and the nerve damage I have acquired over the years.

Feb 27, 2019 6:18 AM

I've had xrays, CT scans, MRIs and blood work. I've also had nerve tests can't remember what they're called. I had a lot of neurology tests before I was diagnosed with vertigo.

Feb 27, 2019 8:27 AM

I’ve had a CT scan before but I have never had any nerve testing. My rhumetologist wants to have an anastegiologist put cortisone shots put between each of my vertebrae that are effected by the arthritis. I don’t know of anyone having this done but I have some major reservations. The meds have not taken the inflammation out of my back and hips, plus I have drug allergies so I’m limited to what I can take. She thinks this will bring down the inflammation enough that the meds will be able maintain it. Any one else ever had this done or heard of it?

Mar 03, 2019 1:57 PM

Welcome to the community Toria! Like you I left work (2010) due to medical issues. They've continued to multiple over the years and I'm disabled. I have the spinal stenosis, OA, fibromyalgia and Sjogrens along with a long list of other issues. I've had epidural steroid injections between 2011-2013, too many, too often, and now have osteopenia (bone loss) so I can never get them again. They did help a lot for over 2-3 years but now I just have to love with the chronic pain. Many old posted have great suggestions, so look at as many as you think can help. I don't post as often or get on as often because of my health and family obligations for ailing parents the past 3 years. And my hubby of 38 years just had prostate cancer surgery. But I try to check in every week. Be open minded and willing to try different treatment suggestions, including dietary & supplements, because we are all different and not everything works for everyone. Hugs love & prayers you find what works best for you & gain the support you need to cope better! 🙂❤🙏🌼

Mar 03, 2019 11:18 PM

Thank you for such a lovely welcome. I currently get nerve blocks and trigger point injections. Soon I will be starting lidocaine infusions. Honestly I’ve had so many injections that I’m sure to eventually spring a leak. 😉 Unfortunately I know very well we need to try everything we’re comfortable with in order find what works. Where is my fairy godmother with that magic wand? If only it were that easy! 🧚‍♀️

Mar 07, 2019 10:57 AM

🚿 careful on those leaks! 😉☔

Mar 07, 2019 11:22 PM

What is the cannabis oil (rso)...
does it help your facet joints (oa) in Spine

Mar 10, 2019 12:33 AM

I to have many of your diagnoses. Tried the trigger point injections but found them not as effective as I had hoped for. Haven’t tried Cannabis oil ( only because it’s illegal in my state of PA). I’m on OxyContin now but I can see that it’s beginning to loose it’s effectiveness I too have been seeing a Rheumatologist ( have AS, OA, DDD, Spinal Stenosis, Etc). My plaquinil helps my inflammation and gabapentin helps the nerve pain but I’m quickly getting to the max theyveill give me for the nerve pain. For those of us who suffer from severe nerve pain don’t need to say how frightening it is when there are few things left for treatment. I hope your Dr will be able to find another alternative for you. Share with us your outcome no matter what it is. We are truly there for you. Welcome to our community. We’re there rain or shine. .

Apr 10, 2019 6:33 AM

Hi I’m new not sure if I’ll keep this or not . But I do have Siatica and back pain .few weeks ago I had back in jectiob I’m feeling pain again . Hmm this second time one was long time ago. I’m ready to give up . Should I ?. I’m just frustrated is all I take Tylenol and as per cream seems to only help it . I don’t give up also bc. My fiancé going through stuff of his own. Hmm Meditation seems to help to wow 😮 have a nice day everyone .oh I do go to my church a lot and sing in the choir seems to help also and to be with it fiancé .later

May 11, 2019 12:41 PM

Hi toria I’m Shore nice to meet you have a nice day ❤️❤️🌈🌈

May 12, 2019 4:59 PM

I'm new here too. My very first time & you & I have all the same diagnosis except I have a few more but,

May 12, 2019 5:01 PM

I can totally sympathize with your pa8n girl. I also have 1 teenaged daughter, 16 and a cat lol. I'm Rain.

May 12, 2019 5:16 PM

The cortizone shots don't last for me personally. There are better things now like when they go in and numb the area, then kill the nerve. The nerves do grow back but, gives relief for much longer than steroids do. Gives you a chance for PT to build up some muscle on your back to better help support the spine. I know working out hurts so bad but, maybe after a few of these procedures,you'll feel well enough to do so. Also the nerve tests are very hard. Very painful & time consuming. in my experience. I also forgot what a particular one is called but, it really sucks. I cried the entire time. And I'm tough lol
CBD lotions actually work pretty well too BTW. If its illegal in your state,you can always order them online. Good luck to you all & I'm here if you need me. You can email me @ Rainhavok1111@gmail.com

May 12, 2019 5:50 PM

Hi rainhavik I’m Shore nice to meet you and Gappy Mother’s Day . I Have Siatica bnerve oain and rod in my back since I was younger . I’m 48 now I have a Fiancé who I love so much September 6 2020 we are getting Married. I also have keg spasms when I over work them .both my parents are in heaven my fiancé also . We just got back visiting their grave sites today))
That’s a lot almost on me Hug gently ? ❤️❤️🙏🙏🌈🌈 I get mad sometimes when I can’t find out what is hurting je but it’s ok 👌 .dr are try to find it out . Later have a nice night

May 12, 2019 8:39 PM

Hi rain I’ll get you on here ok Hug have a nice night .❤️❤️🌈🌈

May 13, 2019 11:56 AM

Welcome to you Rainhavok! Are you talking about the nerve ablation? I think that's what my doc wants to do at my C2 facet because of the cervicogenic headaches.

Ready to start relieving your pain?

Join Community