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I'm new and your posts have brought me to tears.

Nov 24, 2015 11:38 PM

So after 3 years of chronic pain without any answers it was suggested that I could likely have fibromyalgia. We did lots of blood work (thyroid, pineal gland, cbc, sed rate, hemaglobin etc). My gyno said she can't make an official diagnosis and she thinks I should see a neurologist. Others have suggested a rheumatologist or PCP. I know I need to have other things ruled out but I'd like to take the smartest route. Unnecessary appointments and being told there's nothing more they can do seems expensive and frustrating. I'd like to keep the emotional roller coaster as short as possible.

Nov 25, 2015 5:29 AM

Welcome to the family, I'm still kinda new but everyone is so friendly, warm, welcoming and caring here so it feels like one big family. I'm waiting for January to get here so I can see neurologist and rheumatologist. Hope you find answers soon. Unknown for constant pain is very frustrating.

Nov 25, 2015 6:46 AM

Hi joy--- welcome! I am a fellow fibromite. I would start with your pcp who can then refer you to either a rheumatologist or neurologist. My understand though is that Fibro is nerve related based in the brains miss firing so a neurologist may be better?

Nov 25, 2015 9:05 AM

Welcome Joy, you will find that this site is very informative and the people here are like a second family. Recently one of the doctors did a post on Fibro and their is 2 parts to it, read it and it may help you. Again welcome to the pain family. I pray they can find the problem soon to give you some much needed relief. 🙏

Nov 25, 2015 9:15 AM

Welcome to the pain family joy1717, glad to have you. ☺ we are always here for you if you need anything. I'm glad you found us.

Nov 25, 2015 9:40 AM

Welcome. I would suggest you see a rheumatologist. And try to find a really good primary care physician. They can evaluate the joints and your inflationary issues. I hope you find answers soon.

Nov 25, 2015 10:19 AM

Welcome, Joy!! I hope that you find this wonderful family helpful to you. This is a safe and judgement free zone where you can come and ask questions, vent, rant, celebrate, whatever you need to do. We are all here for different diagnosis but we all share the commonality of chronic irretractable pain. Your gyn was correct to tell you to go and see a neurologist and rheumatologists. Unfortunately, when it comes to chronic pain, time, money, many tests and doctors and frustration are all a part of the process. It's the only way to rule out other issues and try to nail down what's causing your pain. I Have been in pain for 22 years, have had 29 surgeries and have been formally diagnosed with Fibro, degenerative joint and disc disease, Scoliosis, spondylosis, cervical spondalytic myelopathy, lordosis, SI Joint disfunction with fractures among a long laundry list of other pain causing issues that I'm not going to bore you with. Just know that you are never alone. There is always someone here no matter the time of day or night who will come running to your aid when you need it, as you can see by the welcomes you've received by my fellow pain family members. Just remember you never have to feel badly or apologize for venting or pity parties, etc. because we "get it". We live it every day. I hope that your doctors find what the problem is and are able to help you ease your pain and suffering. So, welcome, sending gentle {{{Hugs}}} and prayers that you have a peaceful day with less pain.🙏🏻🌻

Nov 25, 2015 11:17 AM

Ironically my obgyn was first to diagnose me with fibro. A rheumatologist then diagnosed me but where I am they don't treat you other than the basic meds. They pawn you off on others, pain clinics and so forth that have been zero help for me. In addition now that a rheumatologist diagnosed me in Sept of 2014 it took a year to find another rheumatologist who would dig deeper and see if there are other issues. So in my opinion it definitely has a stigma in the rheumatology world. It has also made it more difficult to get into spine specialist even though my Mri's shoe my entire spine has issues.

Nov 28, 2015 8:58 PM

Welcome Joy1717! I've been offline more than online for two weeks and still catching up. I can't really adds more than others have said, except that my rheumy doc took over my fibro after I developed sjogrens and hypothyroidism. I hope you settle in and I'll add you to my prayers. 🙏🌼

Nov 28, 2015 10:06 PM

I suggest neurology and let him refer to rheumatology. My neurologist is a puzzle lover and his goal is to find bites he can take off my pain by finding other stuff. I also have great primary and pain management but have additional issue of CRPS. Best wishes.

Nov 28, 2015 10:36 PM

Hello Joy, I'm also new to this wonderful group. Like you I also have chronic pain & fibro; seen by primary care, neuro, infectious diseases, endo & finally it was a rheumatologist was was able to provide a diagnosis of fibromyalgia,

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